1. WHERE ARE THEY NOW: Children who are Deaf or Hard of Hearing Identified by Newborn Hearing Screening in Hawai`i 2005 Early Hearing Detection and Intervention Conference Atlanta, GA; March 4, 2005 Beppie J. Shapiro, Ph.D. and Taletha M. Derrington, M.A. Center on Disability Studies, College of Education, University of Hawai`i beppie@hawaii.edu, taletha@hawaii.edu

2. Presentation Outline  Description of Study  Initial data  Discussion

3. Hawai`i Follow-Up Study of Children with Congenital Hearing Loss  Goal: Describe communication, cognitive and social/emotional status and service history  Relate to type and degree of hearing loss  Collect demographic and family information

4. Study Eligibility  Born 1992-1998  Permanent congenital hearing loss  Lived continuously in Hawai`i  Co-occurring disabilities do not preclude assessment

5. Study Process  Funding - CDC & HI DOH  IRB approvals  Recruitment and consents  Parent completes questionnaires & signs releases  Send record abstracts to providers  Determine eligibility  Assess communication, cognitive and social/emotional as necessary

6. Current Study Status  50 potentially eligible children enrolled  Information from 147 providers obtained  Initial data for NHS- identified children entered in database

7. Child Demographics Ethnicity

8. Child Demographics  Mean age upon study entry 6.9 years (range 4.6-10.4, SD 1.8)  7 girls, 15 boys Birth Year

9. Family Demographics  Mean household income 184% FPL (range 55-300%, SD 81%)  Mean age of mother at birth of child 32 yrs. (range 16-42, SD 6.6) Mother’s EducationParents’ Language

10. Parent Report: How Loss Was Identified  Mean age of identification reported by parent was 9 months (range 0-72, SD 18 mo)  One child had a family history of hearing loss

11. Child Service History  36% use hearing aids; no cochlear implants  Mean age of amplification 27 mo (range 2-72, SD 29)  Mean percent of the time child wears aid 65% (range 25- 100%, SD 29%)  Three children use aids only at school

12. Child Service History  82% were enrolled in EI  Mean age at first intervention 1.5 yrs. (range 0-4.75, SD 1.36)  Mean length of enrollment in EI 1.8 yrs. (range 0-3, SD 0.89)  86% attended preschool at ages 3-4  86% currently attend public schools, 14% attend private schools

13. Child Development  95% communicate in spoken English; one child primarily uses ASL  18% had other developmental delays (cognitive, fine motor, gross motor)

14. Discussion What questions do you have?