1. An outline of data processing at the UKRR Fran Benoy-Deeney Data Manager Lead UK Renal Registry 2015 Informatics Meeting: Data Matters

2. This is who we are 4 Data Managers Jo Wilson Jacqueline Stokes Sarika Dahiya https://www.renalreg.org/about-us/contact / Different backgrounds – Electricity Industry – Banking – Accountancy/Finance All with an interest in data…… UK Renal Registry 2015 Informatics Meeting: Data Matters

3. This is what we do We collect data from 62 centres 248 files annually We compare data with other information We resolve the problems we can ourselves We liaise with renal units and others associated with data collection UK Renal Registry 2015 Informatics Meeting: Data Matters

4. This is the quarterly process UK Renal Registry 2015 Informatics Meeting: Data Matters UKRR numbers issued to Site UKRR numbers loaded at Site, extract run and submitted to UKRR UKRR validate and process file UKRR error report returned to Site Site return response to UKRR File updated and prepared for loading to UKRR database File loaded and UKRR numbers produced

5. You see part of the output Errors graded by severity UK Renal Registry 2015 Informatics Meeting: Data Matters SeverityFile FieldError 1QUA10 Field Type Mismatch 2IDN00 Missing Quarterly Treatment Block 2PAT00 Sex set to unknown 2PAT23 Invalid Postcode 2IDN03 DATE_BIRTH must have a value 3ERFAJ Missing 2014 EDTA code 3PAT13 File Value is Different to DB Value 3PAT25 Missing Ethnicity (Existing Patient)

6. This is why it’s important Accuracy Validity Completeness UK Renal Registry 2015 Informatics Meeting: Data Matters

7. How you can help us (and help yourselves) Before submitting your file utilise the UKRR Site Validation Routines (https://www.renalreg.org/datasets/the-uk-renal-registry- dataset/) Use the ERA-EDTA PRD Coding System and related PRD search tool (http://www.era-edta-reg.org/prd.jsp)http://www.era-edta-reg.org/prd.jsp Keep in touch UK Renal Registry 2015 Informatics Meeting: Data Matters

8. How can we help you? Ideas please…… UK Renal Registry 2015 Informatics Meeting: Data Matters

9. Conclusion Working together is vital for the production of high quality information Thank you to everyone involved in supplying the data from the UKRR Data Team fran.benoy-deeney@nhs.net fran.benoy-deeney@renalregistry.nhs.uk T: 0117 414 8166 UK Renal Registry 2015 Informatics Meeting: Data Matters