1. Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 Welcome to the Adult Services Stakeholder Conference Living Well with Dementia in Bromley Cllr Robert Evans Care Services Portfolio Holder London Borough of Bromley robert.evans@bromley.gov.uk

2. What is dementia? Dr Kiran Chandan Dementia Champion Bromley Clinical Commissioning Group Living Well with Dementia in Bromley Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

3. Purpose of the Conference Stephen John Assistant Director, Adult Social Care: Education, Care and Health Services London Borough of Bromley stephen.john@bromley.gov.uk Living Well with Dementia in Bromley Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

4. What are we going to talk about today? Map dementia and generic services and activities for people with dementia and their carers and identify gaps Look at the role of the community in helping people with dementia to live fulfilling lives and identify commitments from delegates and their organisations to promote this How information about services and activities can reach all affected by dementia How gaps in services and activities can be filled and best practice spread Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 To hear the results of the consultation exercise (a survey and face-to- face engagement activities) that we ran between 19 January and 25 February 2015 How we can use information gained through the engagement and the knowledge and commitment of delegates to make Bromley a better place for people with dementia and their carers to live :

5. Why did we do the consultation? The purpose of the consultation was to talk to people about their experiences of living with dementia in Bromley or caring for someone with dementia. In particular, the Council wanted to find out: – how easily people can get the information, advice and guidance they need – what helps them to live independently at home – what helps them to live independently in the community – what activities they would like to see provided locally – What it is like to care for someone with dementia We did this so that we can bring this information together and work with local organisations and businesses to make Bromley a better place to live for those affected by dementia. Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

6. The survey: Face-to-face engagement sessions and focus groups: Who took part in the engagement? Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 48 people completed the online survey 115 people were consulted with through 13 face-to-face engagement sessions and focus groups

7. Who responded to the consultation? (cont’d) Of the 48 people who completed the survey: – 46 respondents were carers Of the 48 people with dementia: – 55% have Alzheimer’s disease, 25% have vascular dementia, 10% had other types of dementia and 10% did not know – 87% had had dementia for over 2 years – 21% live on their own – 68% live in BR1, BR2, BR3 and BR6 – Over 90% were identified themselves as ‘white British’ – 60% female, 38% male – 27% under 70 yrs, 30% 70 – 84 yrs and 33% 85 yrs and over Of the 115 people we engaged with through the face-to-face sessions and focus groups : – 79 were people with dementia and 36 were carers Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

8. How do they find information, and seek advice and guidance? What type of information, advice and guidance have people received? Just over half the people who responded had received information about support and services in Bromley Just under half the people had received information about caring, benefits, impact of the specific dementia and activities Where did people get information and advice? 6 out 10 people received information from the Memory Clinic and half from Carers Bromley Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

9. How do they find information, and seek advice and guidance? Did they get the information, advice and guidance they needed? Only 1 in 3 respondents received the information they needed The main gaps in information were: o coping with changes to the person with dementia o how dementia affects people o local activities o finance and benefits o making the home dementia friendly and safe People diagnosed more recently and their carers receive information packs from the Memory Clinic. Those diagnosed previously or who hadn’t been formally diagnosed had had more difficulty getting the information they needed and there are still basic gaps in their knowledge. Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

10. Living Independently at Home What support does the person with dementia receive? About 2 out of 3 people with dementia receive support from someone who lives in their home and 1 in 3 has someone who checks on them regularly 1 in 3 has a paid personal care worker and 1 in 5 has a paid home help 3 out of 5 people have aids in the bathroom/toilet and 2 out of 5 have equipment to help with mobility But 1 in 3 do not have any form of practical help and support 1 in 5 have a Carelink alarm (or similar), but during engagement many said they did not use it or had become confused about how to use it Only 1 of the 10 people who live on their own had any other kind of assistive technology Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

11. Living Independently in the Community What are people’s experiences when travelling, shopping, taking part in social/leisure activities and with money? Many good experiences were reported with instances of helpful people working in public transport and shops as well as considerate members of the public But there were also reports of humiliating experiences, fraud, rudeness and no understanding of mental capacity Travelling o Carers reported the need for vigilance when out with people with dementia as they could often wander off and preventing people from driving when it was no longer safe to do so o People with dementia using public transport could still travel independently on regular routes, but diversions or change caused anxiety and confusion. Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

12. Living Independently in the Community ( cont’d) What are people’s experiences when travelling, shopping, taking part in social/leisure activities and with money? Shopping o Repeated purchases of the same or unnecessary products o Use of bank cards with no purchases brought home Social/Leisure Activities o People continue to maintain participation in activities for as long as possible but the reaction to the way they behave or noise and crowds makes it too stressful to continue. o Refusal to use disabled toilets and becoming confused in gender specific toilets such as being unable to locate the exit Dealing with Money and Services o Difficulties in getting Power of Attorney recognised by financial institutions o Giving out bank details to doorstep/telephone callers o Constantly changing energy supplier without realising it Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

13. Activities Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 What activities for people with dementia do you want near to where you live? People were very positive about activities already taking place in the borough Some people do something every day especially if they have a family member to take them Some go to a day centre one day a week and don’t go out or see anyone the rest of the week People want someone to talk to and help them to go out for a walk or visit the local shops Some people with dementia refuse to go to a day centre and carers miss out on respite Affordable activities Something at the weekend

14. Carers Did carers get the information, advice and guidance needed to help them? 1 in 2 carers had received what they needed to help them as a carer and 1 in 4 had received it partially 1 in 3 said that they had had the support they needed to help the person they cared for to live independently in the community: 1 in 4 said they had partial support and 1 in 4 said they did not have this support Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

15. Carers ( cont’d) Do carers get the support they need? 1 in 2 received support from Carers Bromley, while 1 in 4 had received support from Age UK, Mindcare and/or Alzheimer’s Society in Bromley Positive comments about social workers were made, but some individuals had had problems especially when trying to contact a care manager Difficulties in finding out about all benefits they were entitled to and completing forms were mentioned More sitting services were needed: at short notice, at weekend s, in the evening and able to provide personal care Only 8 carers in the survey said they had been offered support by their GP to meet their own health needs Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

16. What we want to achieve today The four results of the Conference: 1. Map dementia and generic services and activities for people with dementia and their carers and identify gaps 2.Look at the role of the community in helping people with dementia to live fulfilling lives and identify commitments from delegates and their organisations to promote this 3.How information about services and activities can reach all affected by dementia 4.How gaps in services and activities can be filled and best practice spread Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

17. Session 1 What is already available to help people with dementia and their carers – both targetted and mainstream? Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

18. What is a Dementia Friendly Community? Angela Clayton-Turner Bromley Dementia Action Alliance Living Well with Dementia in Bromley Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

19. Dementia Friendly Communities People with dementia are empowered to:  Have high aspirations  Contribute and participate in activities that are meaningful  Be supported with dignity and understanding Carers  Participate in the community Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

21. The National Picture Dementia Action Alliance 2010  125 in England Prime Minister’s Challenge on Dementia 2012  Improving health and care  Dementia Friendly Communities  Better research Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

22. Dementia Friendly Communities Challenge Group Chaired by Jeremy Hughes, Alzheimer’s Society and Angela Rippon Representatives of: Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015  People with dementia  Carers  Department of Health/ Public Health England  Emergency services  Finance organisations  Transport  Retail sector  Energy providers  Legal profession  Telecommunications  Assistive technology  Faith groups  Care home providers  Libraries

23. Task and Finish Groups Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 Assistive Task and Finish Groups technology Retail Employers Financial Services Rural communities Powers of Attorney and Data Protection Civil Society and the Voluntary Sector Sport and leisure Arts Transport Personal Wellbeing

24. Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 Task and Finish Groups – some achievements so far Retail Charter – coming this year

25. A Dementia Friend learns:  How dementia affects people  How they can help people with dementia that they meet. Become a Dementia Friend:  Attend a Dementia Friend Awareness Raising session  Receive training on-line Dementia Friendly Generation  Resource pack for schools, colleges and other youth organisations Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 Dementia Friends

26. Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 Prime Minister’s Challenge 2020  Information, advice and guidance  3 million more Dementia Friends  Half of people living in a Dementia Friendly Community  Dementia friendly businesses  All tiers of local government part of a Dementia Action Alliance 18 key aspirations for 2020 covering:

27. Steering Group established in Sept 14:  Local Dementia Friendly Champions – carers, pharmacies and legal services  Diocese of Rochester  Mission Care  Fire Brigade  London Borough of Bromley  Age Concern Bromley and Lewisham  Alzheimer’s Society Bromley  Lewisham and Bromley Mindcare Members are registering with their action plans Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 Bromley Dementia Action Alliance

28. Other organisations to include :  Local health and care organisations – statutory, voluntary and private  Local branches of businesses already committed nationally  Local schools and youth groups Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 Bromley Dementia Action Alliance

29. Launch of Bromley as a Dementia Friendly Community United Reformed Church, Widmore Road 13 October 2015  Keynote speaker – Trevor Jarvis, member of PM’s Dementia Friendly Community challenge group  Celebration of living well with dementia  Advice on dementia and legal/financial concerns  Dementia Friends awareness session  Market place of service providers – all sectors Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 Bromley Dementia Action Alliance

30. Session 2 What is the role of the community in helping people with dementia to live fulfilling lives? Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

31. Refreshment break and networking

32. Results of Session 1 Cllr David Jefferys London Borough of Bromley Living Well with Dementia in Bromley Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

34. Session 3 What should we do with this information? How can we fill the gaps and spread best practice ? Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015

35. What does the Commitment Wall say? Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 Living Well with Dementia in Bromley

36. Close Cllr Robert Evans Care Services Portfolio Holder London Borough of Bromley robert.evans@bromley.gov.uk Living Well with Dementia in Bromley| Adult Services Stakeholder Conference | 11 March 2015 Living Well with Dementia in Bromley