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OpenSpecimen User Meeting 9 Dec 2014 NIHR Leicester Cardiovascular BRU, OpenSpecimen and open source Nick Holden, Systems and Database Architect, LCBRU.

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Presentation on theme: "OpenSpecimen User Meeting 9 Dec 2014 NIHR Leicester Cardiovascular BRU, OpenSpecimen and open source Nick Holden, Systems and Database Architect, LCBRU."— Presentation transcript:

1 OpenSpecimen User Meeting 9 Dec 2014 NIHR Leicester Cardiovascular BRU, OpenSpecimen and open source Nick Holden, Systems and Database Architect, LCBRU

2 NIHR Leicester Cardiovascular BRU - Open source (mostly) research informatics platform  CiviCRM for participant management and engagement  i2b2 for cohort discovery, and data integration  REDCap for electronic data capture  CaTissuePlus (!) for specimen management

3 NIHR Leicester Cardiovascular BRU - “At the heart of research”  Funded since 2009 by the National Institute for Health Research (NIHR).  A partnership between the University Hospitals of Leicester NHS Trust and the University of Leicester.  Two translational themes: genetics and novel therapeutic interventions.  One of three BRUs in Leicester, 11 BRCs and 20 BRUs nation-wide.  A new building, and participation in a national NIHR BioResource.

4 NIHR Leicester Cardiovascular BRU - CaTissuePlus  16 protocols, 93 users  17,767 participants  330,117 specimen  Fluid (blood and urine) and fluid derived only, a heart on its way!  We will upgrade to OpenSpecimen soon!

5 The NHS and Open Source - A clash of cultures  Connecting for Health, a 'national programme' (NPfIT). £10billion / 12 yrs  Now the Health and Social Care Information Centre (HSCIC)  Centralised planning replaced by local deliverables  Corporate contracts replaced by (some) agile methodologies  Some spine services work well and are largely ignored

6 Research and Open Source - Established in many institutions  Academia has always been open source friendly  NIHR BioResource has many sites using OpenClinica, REDCap, etc.  LIMS systems still almost exclusively commercial products  NIHR still makes no recommendations for infrastructure

7 The NHS and Open Source - A new hope?  NHS Spine 2, live in August 2014, built on open source Riak database  £20million recently earmarked for Open Source clinical developments  Specific Open Source Technology Programme at NHS England  Everything from local department to full EHR implementations  Not much in the laboratory space yet...

8 http://trac.lcbru.le.ac.uk/

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