1. Difficulties, benefits and vision of 2-1-1 research collaboration Matthew W. Kreuter Kate Eddens Jason Q. Purnell Debbie Pfeiffer Health Communication Research Laboratory Washington University in St. Louis

2. Session goal Explore 2-1-1/research collaboration Interactive Your opinions matter

3. Why this topic? Researchers discovering 2-1-1 Balancing service & research Protecting 2-1-1 interests

4. Structure of the session Audience response survey Discussion of results A sample project Tomorrow

5. Audience response survey

6. Using your Handset Questions & answers on screen Numbers on slide = numbers on handset When countdown clock appears, push button on handset to answer Please leave Handset on chair when session is over.

7. Practice questions

9. Should the toilet paper roll go over or under? 1.Over 1.Under

10. You are stranded on a desert island. Which would you most want with you? 1.Your favorite food 1.Your favorite music 1.Your favorite book 1.Your own pillow

11. REAL questions

12. Background information

14. Which best describes your I&R? 1.2-1-1 1.Aging / Disability 1.Blended Crisis 1.Comprehensive I&R (non 2-1-1) 1.Other specialized

15. Which best describes your role in your I&R? 1.President, VP, or CEO 1.Executive or program director 1.Call center manager 1.Information specialist 1.Resource specialist 1.Data manager or research analyst 1.Training coordinator 1.Other

16. Evaluation of standard services

18. How often does your I&R prepare a formal evaluation report in print or online form? 1.Every few years 1.Once a year 1.More than once a year 1.Not on a consistent schedule 1.Dont know/not sure

19. How would you rate the process used to evaluate your I&R? 1.Outstanding 1.Excellent 1.Very Good 1.Good 1.Fair 1.Poor 1.Dont know/not sure

20. Evaluation of special initiatives

22. Has your I&R ever conducted a special initiative? 1.Yes 1.No 1.Dont know/not sure

23. Has your I&R ever conducted a special initiative focused on personal finance? 1.Yes 1.No 1.Dont know/not sure

24. Has your I&R ever conducted a special initiative focused on health? 1.Yes 1.No 1.Dont know/not sure

25. How often does your I&R formally evaluate its special initiatives? 1.Every time 2.Some of the time 3.Almost never 4.Never 5.Dont know/not sure 6.Not applicable

26. How would you rate the process used by your I&R to evaluate special initiatives? 1.Outstanding 2.Excellent 3.Very Good 4.Good 5.Fair 6.Dont know/not sure 7.Not applicable

27. Media campaigns

29. Has your I&R ever conducted a media campaign to promote awareness or use of services? 1.Yes 1.No 1.Dont know/not sure

30. How often does your I&R formally evaluate the effects of its media campaigns? 1.Every time 2.Some of the time 3.Almost never 4.Never 5.Dont know/not sure 6.Not applicable

31. Work with researchers: Experience & perceptions

33. Has your I&R ever worked with researchers? 1.Yes 1.No 1.Dont know/not sure

34. How would you rate your past experience working with researchers? 1.Very positive 2.Somewhat positive 3.Somewhat negative 4.Very negative 5.Dont know/not sure 6.Not applicable

35. What would be your greatest concern about working with researchers? 1.There would be additional strain on staff & resources 2.Researchers may have different priorities than ours 3.Our stakeholders may not value research 4.Our callers may not benefit from research 5.Assuring we can protect the privacy of our data 6.I have some other concern 7.I dont have any concerns

36. What would be your next greatest concern about working with researchers? 1.There would be additional strain on staff & resources 2.Researchers may have different priorities than ours 3.Our stakeholders may not value research 4.Our callers may not benefit from research 5.Assuring we can protect the privacy of our data 6.I have some other concern 7.I dont have any concerns

37. What would be the most important benefit of working with researchers? 1.Strong evaluation methods 2.Help analyzing data 3.Potential for improved services 4.Access to research funding 5.Learning about program effectiveness 6.Some other benefit 7.I see no benefits

38. What would be the next most important benefit of working with researchers? 1.Strong evaluation methods 2.Help analyzing data 3.Potential for improved services 4.Access to research funding 5.Learning about program effectiveness 6.Some other benefit 7.I see no benefits

39. How interested would you be in forming a research partnership involving your I&R? 1.Extremely interested 2.Very interested 3.Somewhat interested 4.Not at all interested

40. Which best describes how valuable your responses are? Thank you!

41. Please leave the Handset on your chair when session is over.

42. Building a 2-1-1 research consortium Can research… …advance 2-1-1s mission? …enhance 2-1-1s services? …help secure 2-1-1 funding?

43. Building a 2-1-1 research consortium Can 2-1-1… …build a knowledge base? …monitor population needs? …expand its scope of helping services?

44. Cancer risks in 2-1-1 callers in Missouri, North Carolina, Texas, and Washington Presented at the Alliance of Information & Referral Systems Conference Rochester, NY May 25, 2010 Jason Q. Purnell, PhD, MPH

45. Cancer Prevention & Control Research Network (CPCRN) King County 2-1- 1 United Way 2-1-1 Missouri North Carolina 2-1-1 United Way 2-1-1 Houston

46. Study goals 1.To estimate the unmet cancer control needs of 2-1-1 callers 2.To compare findings from 2-1-1 to state and national rates 3.To demonstrate the feasibility of partnering with 2-1-1 systems for research

47. Risk Assessment Six areas of cancer risk: Breast cancer screening (mammography) Colorectal cancer screening (colonoscopy) Cervical cancer screening (Pap test) Human papillomavirus (HPV) vaccination Smoking Smoke-free homes and cars Provided appropriate cancer control referrals

56. Next steps Journal article reporting results Ongoing studies integrating cancer referrals into 2-1-1 systems Exploring additional research collaborations through work of consortium

57. Acknowledgments Collaborators Katherine Eddens, Washington University Peggy Hannon, University of Washington Maria Fernandez, University of Texas Matthew Kreuter, Washington University Kurt Ribisl, University of North Carolina Susan Gemmel, King County Crisis Clinic Debbie Fagin, United Way 2-1-1 Missouri Marti Morris, North Carolina 2-1-1 2-1-1 systems King County 2-1-1 North Carolina 2-1-1, Centralized Call Center United Way 2-1-1 Houston United Way 2-1-1 Missouri Staff support Debbie Pfeiffer, Bindu Kalesan, Susie Rath, Andrea Spray CDC