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Adding Value to Reproductive Health Research Communicating about the moral dimensions of science The Added Values Project A new initiative from the Association of Reproductive Health Professionals
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ARHPs Irvin M. Cushner Award Leading 20 th century public health advocate Reproductive health care innovator Influential leader, educator, policymaker Director, Center for Social Studies in Human Reproduction Professor, Johns Hopkins & UCLA Deputy Assistant Secretary for Population Affairs, DHHS
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Wanda Jones, DrPH 1998 Clinton appointment to DHHS Deputy Assistant Secretary for Health Director, Office of Womens Health 1988 – 1997: CDC Associate director for womens health Associate director for science, HIV/AIDS HIV/AIDS laboratory trainer
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Wanda Jones, DrPH Advocacy National leader in womens health, HIV/AIDS, STIs, health access Science Microbiologist, public health researcher, laboratory practice expert Education PhD public health, lab practice, UNC Masters medical technology, Penn State
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Wanda Jones, DrPH Health advocate for patients & providers Eliminating womens health disparities Preventing violence against women HIV/AIDS prevention & treatment Disabilities Established groundbreaking agencies National Centers of Excellence in Womens Health National Community Centers of Excellence National Womens Health Information Center National Minority Womens Health Expert Panel
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Moral Values Malarkey AP Exit Poll Q: Which issue mattered most in deciding how you voted for president? Dick Meyers, Against the Grain, CBSnews.com November 5, 2004
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Moral Values? Moral Values (22%) 18% 80% Economy/Jobs (20%) 80% 18% Terrorism (19%) 14% 86% Iraq (15%) 73% 23% Health Care (8%) 77% 23% Taxes (5%) 73% 26% KERRY BUSH
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Same AP Poll Abortion 55% want it to remain legal Stem cell research Ample support
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Moral Values? Honesty Responsibility Fairness Freedom Empathy Self-determination Knowledge
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AP Poll Message Perception Moral values equals opposition to abortion, gay marriage Reality Moral values equal different things to different people
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Religious Example Lost Christianities Gospel of Thomas Gospel of Mary Magdalene Gospel of Judas Carpocratians Bart D. Ehrman
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Perception of Science: Professionals We depend too much on science & not enough on faith Scientific research these days doesn't pay enough attention to the moral values of society Scientific research has created as many problems for society as it has solutions
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Perception of Science: The Public We depend too much on science & not enough on faith Scientific research these days doesn't pay enough attention to the moral values of society Scientific research has created as many problems for society as it has solutions
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Perception of Science: The Public
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Ideology vs Science Preserving Core Values in Science Initiative (ARHP & RHTP) Plan B debacle Inappropriate Federal appointments Declining support for environmental regulation Integrity of Science Initiative (UCS) Successfully raised awareness about the issues
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Now is the time to assertively begin the long-term process that can help define and incorporate our own moral principles into reproductive health education and advocacy work Felicia H. Stewart, MD Values Project
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Scientific Values: What Are They? Evidence-based science is key to positive health outcomes & a fulfilling life Pursue answers to questions with honesty Encourage curiosity & questioning Use results to promote common good Recognize the importance of diversity and many more...
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Values Project: Goals Make positive values associated with reproductive health science a valued part of everyday life Communicate positive moral attributes of our research to the public Use easily understood language Emphasize shared values Inform health care practice & policy
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Values Project: Objectives Professionals Ensure that the positive values associated with reproductive health and science are discussed in every appropriate forum Public Develop solid, carefully refined policy concepts with language & communication approaches that explain reproductive health science & its positive values
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Values Project: Our Challenges Learn to speak the language of nonscientists Appeal to the positive aspects of belief systems outside of our experience Communicate key scientific values to general audiences who can benefit Communicate the positive benefits of change to friends & allies Learn to be political not electoral
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Why a Values Project? Public majority does not understand the positive values of science in their everyday lives Moderate to progressive movement is ready for new directions Informed public has the best chance to initiate change for the better Sustainable change can only happen if it is values driven
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Why Start With Reproductive Health? Touchstone for heated political debate Target for misunderstanding & scientific assault Affects the majority of peoples lives Has great potential to effect change Can be a model for other moderate to progressive movements WE ARE UNDER SIEGE!!
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Reproductive Health: The New Code Word
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UN treaty rejects new rights to abortion, euthanasia, homosexuality The UN meeting on the rights of persons with disabilities was on balance a success for pro-lifers. TheFactIs.com, September 1, 2006
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WHO Report: Global Promotion of Abortion One of the most interminable and vociferous debates at the UN is over the meaning and application of the phrase reproductive health. Douglas Sylva TheFactIs.com
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Values Project: Assumptions Long-term project (15+ years) No association with election politics Learn from past mistakes & opponents successes Identify fresh tactics & new trends Be willing to adapt & change If the status quo is no longer working, seek change Seek change through experimentation Duplication of effort can be positive
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Values Project: How will it work? PHASE 1 Review of existing & in-process research Embark on values-based qualitative research Develop written communications & outreach plan Internalize research results Develop a faculty training program & national education project Identify metrics & monitoring tactics
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Values Project: How will it work? PHASE 2 Extend the equity of science as a valued part of life for everyday Americans Train & place expert speakers Advocacy, relationship management Launch marketing plan for paid & earned media. Establish ongoing venues for discussion & change Monitor for success & lessons learned
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Values Project: Timeframe Focus on long-term change A truly informed public must be educated on the full range of reproductive health services the value its adds to their lives the importance of science in determining reproductive health innovations & policies
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Values Project: Timeframe...and this must be done carefully, over time, in recognition of the true diversity of cultures, values, and belief systems that make up our societies Contraception, September 2006
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The Landscape: Media Influence Positive Widespread dispersion of reproductive health information Negative Misperceptions promulgated Incomplete information (7 seconds) Business of selling news trumps science Risks not put in context
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The Landscape: Political Influence Positive Debate about health care issues & benefits Platform to express beliefs Negative Mistrusted, not credible Perception of bias Policy sacrificed for elections
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The Landscape: Academic Influence Positive Emphasis on value of scientific process Self critical Negative Out of touch with everyday life Communication not emphasized Apolitical?
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The Landscape: Social Influence Positive Comfort with the familiar Trusted sources of information New ways to talk Negative Misperception, myth, indifference about science Junk flourishes
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The Landscape: Spiritual Influence Positive Reassurance of belief systems Sometimes a marker of self-growth Some religious platforms are pro- reproductive health & pro-science Negative Misperception, myth, indifference about science Morality & religion intertwined
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The Landscape: Personal Beliefs Positive Personal conviction & experience Reinforced by social interactions We are all sexual Negative Lack of perception of personal biases Easy to feel overwhelmed Environmentally dependent
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Your Challenge Suspend Disbelief Be political Carpe Diem Lifelong learning
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A Final Thought Viví dentro del monstruo y le conozco sus entrañas, y mi honda es la de David José Martí
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Questions Lets talk about the future To become involved valuesproject@arhp.org David Grimes, MD 2006.
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