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Olmstead, Advocacy, and Community The Modules for Transition-Aged Youth and Their Families.

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Presentation on theme: "Olmstead, Advocacy, and Community The Modules for Transition-Aged Youth and Their Families."— Presentation transcript:

1 Olmstead, Advocacy, and Community The Modules for Transition-Aged Youth and Their Families

2 Families and Adult Service Systems

3 A Holistic Approach to the Olmstead Decision

4

5 Segregation vs. Inclusion The Americans with Disabilities Act

6 The Olmstead Lois and Elaine Decision Photos courtesy of Narcel G. Reedus, Georgia Advocacy Office

7 One Person’s Story “Get into politics as if your lives depend on it. And it does. You can be a soldier of justice. You can be a revolution of one.” Justin Dart

8 Nick Dupree and His Crusade Aging out of Medicaid—16 hours of care to 2 hours under the adult program Nursing home—closest one that could provide his needed level of care: 195 miles away in LA Challenged by his grandmother, Nick began a two year campaign Wrote letters, raised public awareness of the situation Worked with state senator to develop and introduce legislation to eliminate age limit on services When bill defeated, he filed a lawsuit in federal court His efforts caught the attention of the folks at AIMM who along with their friends, families and allies, wrote hundreds of letters to President Bush, urging him to take action

9 Nick: The Rest of the Story Days before his 21 st birthday, Medicaid waiver program for 30 Alabamians approved “I want people to think about the larger problem here. I plan to keep working on this for the rest of my life so that everyone can be safe and can be included in the community—and not locked in a faraway nursing home awaiting their death. http://nickscrusade.com/

10 Next Up Module 3  Consumer Direction: Taking Control

11 Module 4T: Staying in the Community

12 Navigating Systems with the Wrong Map

13 Staying in the Community Even more possible now because of  Olmstead Decision  Guiding principles established by the ADA

14 A public entity shall administer services, programs, and activities in the most integrated setting appropriate to the needs of qualified individuals with disabilities Title II of the ADA

15 Jobs & Job Training

16 Transportation

17 Community Participation

18 A Story About Risk Taking

19 Ticket to Work and Work Incentives Improvement Act Medicaid Buy-In Medicaid Infrastructure Grants Social Security Work Incentives Benefits Counseling or Benefits Planning Assistance Outreach Programs Ticket to Work and Self-Sufficiency Protection and Advocacy for Beneficiaries of Social Security New Freedom

20 Module 5: Medicaid Framework Part I Part II


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