1. What do patients want from healthcare? Professor David Haslam CBE Chair, NICE Responsible Officers Conference, Brighton.

3. What do patients want from healthcare?

4. ASK THEM ……

6. A Brief History 1999: Technology appraisals Clinical guidelines 2002: Interventional procedures Implementation 2005: Public health guidelines 2009: Cost saving MedTec programme (new technologies) Diagnostics NHS Evidence 2011: National Prescribing Centre (now Medicines Prescribing Centre) 2013: Social care guidelines Highly specialised technologies

7. The NICE portfolio in 2014

8. What are NICE’s core principles Comprehensive evidence base Expert input Public involvement Independent advisory committees Genuine consultation Open and transparent process Equalities considerations Regular review

9. What do patients/carers bring to the table? The personal impact of an illness, disease or condition Experiences of care Preferences and values Outcomes people want from treatment and care Impact of treatment or care on outcome, symptoms, physical & social functioning, quality of life Impact on family, friends and employers Ease of use of a treatment or service; side effects The needs of specific groups Challenges to professional or researcher views Areas needing further research

10. Patient preferences Example: kidney dialysis Committee assumed patients would prefer dialysis at home. Some patients told us they disliked home machines as it meant their illness dominated their lives.

11. Patients’ experience of care Example: people who self- harm People in mental distress who self-harm told us that they were not routinely offered anaesthesia or pain relief for sewing up wounds in the hospital emergency department. Nothing in the published research to indicate this was an issue. NICE made recommendations to address this.

12. CITIZENS COUNCIL

13. Shut up Listen Care Know Something

14. Framework for Revalidation Four Domains: Knowledge, skills and performance Safety and quality Communication, partnership and teamwork Maintaining Trust

15. Declarations in Appraisal There are six types of supporting information that you will be expected to provide and discuss at your appraisal at least once in each five year cycle. They are: 1. Continuing professional development 2. Quality improvement activity 3. Significant events 4. Feedback from colleagues 5. Feedback from patients 6. Review of complaints and compliments

19. “Evidence is abundant that the public want doctors who are technically competent; give them the best possible clinical outcome; are as safe as possible; are kind, courteous, and respectful; and involve them in decisions about their care.” Irvine, D: “Success relies on winning hearts and minds” : BMJ 2006;333:965-966

20. CONTINUITY

22. Thank you david.haslam@nice.org.uk