2. Health Literacy Conference Institute for Healthcare Advancement: https://www.iha4health.org May 6 th - 8 th, 2015 Irvine, CA

3. The degree to which individuals and groups can obtain, process, understand, evaluate, and act upon information needed to make public health decisions that benefit the community PUBLIC HEALTH LITERACY

4. Outline Health Insurance Health Insurance Risk Communication Risk Communication Strategies for a more collaborative health literate community Strategies for a more collaborative health literate community Creating a needs based health literacy initiative, examples from Missouri Creating a needs based health literacy initiative, examples from Missouri Healthy Equity & Health Literacy Healthy Equity & Health Literacy Engaging youth in health discussions Engaging youth in health discussions Translation Translation Intergenerational communication Intergenerational communication

5. Health Insurance: Train the Trainer Session Health Insurance: What it means to have it Health Insurance: What it means to have it What health Insurance is and how it works What health Insurance is and how it works What health insurance covers (and what it may not cover) What health insurance covers (and what it may not cover) How to use health insurance (to stay as healthy as possible) How to use health insurance (to stay as healthy as possible) How to keep health insurance (now that you have health insurance) How to keep health insurance (now that you have health insurance) Resources: enrollamerica.org: Resources: enrollamerica.org: justplainclear.com : definitions for vernacular justplainclear.com : definitions for vernacular

6. Affordable Care Act & Health Literacy Think about MESSAGES and how they resonate in different communities Think about MESSAGES and how they resonate in different communities Utilize community based organizations: NGO, Faith organizations, Salons Utilize community based organizations: NGO, Faith organizations, Salons “Learned Helplessness”: This comes from telling populations over and over again that it won’t work out for them “Learned Helplessness”: This comes from telling populations over and over again that it won’t work out for them GOALS: Less wording, more white space, plain English (no matter what audience, but definitely non English speakers) GOALS: Less wording, more white space, plain English (no matter what audience, but definitely non English speakers)

7. Lessons about clarity from crisis and emergency risk communication “Communicating about risk requires extra attention to clarity.” Ask yourself as a healthcare practitioner: When do I evoke emotions around risk? Tie consequences to the risk Be Clear about what you know, and what you don’t know Use Statements of EMPATHY We continue to have a lack of empathy even though we know that emotions are involved in how people receive and understand health messages Create TRUST : Communication does not happen without trust

8. Strategies for a more collaborative health literacy community Linking Research and Practice: 1% Research is translated to Practice! Linking Research and Practice: 1% Research is translated to Practice!  The Average Journal article is read by 12 people “The answers are right there, but no one is asking the people that are affected.” We need: 1. Participatory design (or “user centered” design) is key 2.Communication as a group Researchers, practitioners, and communities work in tandem

9. Creating a needs-based Health Literacy Initiative University of Missouri Center for Health Policy Studies show that 40-80% of the medical information that patients receive is forgotten immediately and that nearly ½ of the information is incorrect Use a Teach Back method -”Straight Talk” with your Doctor “Implementation Science” – how you implement your intervention makes all the difference

10. Health equity and health literacy Health Outcomes in US are worse than in some developed countries (but we spend WAY MORE money) Health Equity and the Social Determinants of Health Sentiments among healthcare practitioners around these issues: “We didn’t start the fire” BUT by not acting we transform Education disparities into healthcare disparities Health Literacy is a crucial component of Health Equity (mitigating the social determinants of health) “You Be the Tide that Raises all Boats.” - JFK

11. Engaging Youth 10 years ago, nearly 1 in 4 youth ages 12-19 had pre-diabetes, now this one 1 in 11 ½ of these youth will have full blown diabetes within 5 years (25% of white youth, 50% of Latino and African American youth) Visit: www.thebiggerpicture.org www.thebiggerpicture.org (Pediatrics 2012)

12. What’s In A Word?: The Translation of Information Translating Documents: What’s the Goal? To ensure that the meaning and context of the written message are conveyed as intended. Translating word for word does not work. Remember to see through the lens of those who we serve

13. Intergenerational Communication Veterans/ Traditionalists (1922-1945) Veterans/ Traditionalists (1922-1945) Baby Boomers (1946-1954) Baby Boomers (1946-1954) Gen X (1964-1982) Gen X (1964-1982) Millennial (Gen Y) (1982-2000) Millennial (Gen Y) (1982-2000) Linksters (Gen Z) (born after 1995) Linksters (Gen Z) (born after 1995)

14. Issues Under-accommodation / over-accommodation *or the perception of such* Under-accommodation / over-accommodation *or the perception of such* Think of what will work with a Baby Boomer vs. a Millenial, this is very different! Think of what will work with a Baby Boomer vs. a Millenial, this is very different! BE AWARE: Do a Self Assessment: Inventory your: BE AWARE: Do a Self Assessment: Inventory your: Beliefs, Motivation, Self-Efficacy, Norms & Environment 2. Listen 3. Understand 4. Enact

15. Resources Email: virginia.newman@bastyr.edu virginia.newman@bastyr.edu Health Insurance: www.enrollamerica.org www.enrollamerica.org www.justplainclear.com www.justplainclear.comwww.justplainclear.com CDC Health Literacy and clear communication index: www.cdc.gov/healthliteracy www.cdc.gov/ccindex Health Literacy Explains Racial Disparities in Diabetes Medication Adherence : Health Literacy Explains Racial Disparities in Diabetes Medication Adherence : http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3561717/ http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3561717/ Dr. Rima Rudd, Needs Assesment for hospitals: http://cdn1.sph.harvard.edu/wp- content/uploads/sites/135/2012/09/healthliteracyenvironment.pdf http://cdn1.sph.harvard.edu/wp- content/uploads/sites/135/2012/09/healthliteracyenvironment.pdf

16. Resources CDC Top 10 attributes of a health literate organization: https://www.iom.edu/~/media/Files/Perspectives- Files/2012/Discussion-Papers/BPH_HLit_Attributes.pdf https://www.iom.edu/~/media/Files/Perspectives- Files/2012/Discussion-Papers/BPH_HLit_Attributes.pdf Institute for Healthcare Advancement: https://www.iha4health.org The Bigger Picture Campaign: www.thebiggerpicture.org www.thebiggerpicture.org www.opentruthnow.orgwww.opentruthnow.org: sugary drinks, health effects, and marketing www.opentruthnow.org National Standards on Culturally and Linguistically Appropriate Services US Dept. of Health and Human Services Office of Minority Health: http://minorityhealth.hhs.gov/templates/browse.aspx?lvl=2 &lvlID=15