1. Simon Wallace, Research Director Overview of the One in a Hundred Report

2. Just over 1000 respondents Surveys and focus groups Living with autism, experiences of the UK health system, attitudes to science and research priorities (medical) http://autistica.org.uk/document_downloads/Reports/Autistica-1-100-Report.PDF

3. Three quarters of parents felt that having a child with autism had helped them learn about disability issues 94% of parents worried about their child’s future 72% of parents felt they were judged or misunderstood by others

4. Three quarters of adults said there was nothing for them after they received a diagnosis Parents reported a range of emotions around the time of diagnosis: relief, despair, anger, guilt. Half of parents and adults reported a generally negative experience of interacting with their GP 75% of adults requested help with stress and anxiety

9.  Families see the importance of research  Families are looking to engage more in the research process  There are areas of the health service, which need significantly improving: ◦ Early diagnosis and early intervention  Selecting research priorities: ◦ Early diagnosis and early intervention ◦ Adults and ageing ◦ Mental health

10.  Research funding of interventions and support for the period after diagnosis  Research programme at Newcastle University  Research programme at the Institute of Psychiatry, London  The Autistica Gateway: ◦ ASD-UK ◦ Redesigned website and science communications ◦ Information resources  First resources will be for the period immediately after diagnosis