1. Children and Youth with Special Health Care Needs A Mohave County Community Assessment

2. Prevalence of CYSHCN www.mohavecounty.us www.snacmc.org Children & Youth with Special Health Care Needs (CYSHCN): Children up to age 21 Chronic physical, developmental, behavioral, or emotional disability Requires services beyond that required by children generally 241,067 CYSHCN in Arizona

3. What we Know… www.mohavecounty.us www.snacmc.org Limited access to care Insurance coverage Geographic barriers & transportation

4. Special Education www.mohavecounty.us www.snacmc.org Section 504 Individualized Education Program (IEP) Arizona Child Find Program Individuals with Disabilities Education Act (IDEA) Little is known about the experiences of CYSHCN in Mohave County

5. CYSHCN Needs Assessment Why? To identify health care experiences and needs How? 4 surveys: School staff (n=147), Providers (n=71) Parents/caregivers of CYSHCN (n=116) Youth with special health care needs (n=49) 8 key informant interviews with parents/caregivers. Parent/Caregiver group feedback www.mohavecounty.us www.snacmc.org

6. School Staff & Providers www.mohavecounty.us www.snacmc.org 64% = general education teachers 23% = special education teachers 12% = administrators, nurses, and paraprofessionals/support staff Average time on job for providers was 12.6 years

7. Youth & Parents/Caregivers www.mohavecounty.us www.snacmc.org Cognitive Developmental Behavioral/Emotional Physical 70% of parents/caregivers said their CYSHCN had a developmental or genetic diagnosis Mental retardation Memory loss ADHD Autism Spectrum Disorders Depression Anxiety Hearing, speech impediments Half the youth said their disability does not impair their functioning. Those who said they were limited, reported : Learning difficulties Physical challenges (e.g. driving) Difficulties controlling behavior

8. Type of insurance coverage as reported by parents/caregivers Most parents/caregivers surveyed receive public health insurance for their CYSHCN. www.mohavecounty.us www.snacmc.org

9. Most requested services by parents/caregivers: 1.Dental 2.Speech 3.Occupational Therapy 4.Counseling www.mohavecounty.us www.snacmc.org

10. Somewhat Satisfied to Very Satisfied with Health Care Services Received www.mohavecounty.us www.snacmc.org 3 out of 4 Youth 4 out of 5 Parents/Caregivers 1 out of 5 Providers

11. Dissatisfied to Very Dissatisfied with School-Related Services www.mohavecounty.us www.snacmc.org Parents/Caregivers (50%) School Staff (92%) IEP process can be improved

12. Perception of Self Perception of Others www.mohavecounty.us www.snacmc.org A higher percent of school staff (44%, n=66) felt inadequately prepared/trained and perceived their co-workers to be inadequately trained (55%, n=81) to work with CYSHCN.

13. Most Common Barriers to Accessing Health Care www.mohavecounty.us www.snacmc.org 1.Services not available (57%) 2.Cost (41%) 3.Health care plan limitations (37%) As reported by Parents/Caregivers

14. Most Reported Barriers to Providing Quality Educational Services www.mohavecounty.us www.snacmc.org 1.Cost is a limiting factor (54%) 2.Lack of resources (52%) 3.Specialty schools unavailable (45%) As reported by school staff

15. Open-Ended Responses Access to Services School Environment Training and Education

16. Challenges Access to Services Service providers Specialty services Family support programs Socialization and physical activity Health care coverage

17. Challenges School Environment Special education and related services Difficulties qualifying for services IEP complexities Accountability Individualized Education Programs

18. Challenges School Environment (continued) Communication (CYSHCN Advocate) Resources and funding Additional school services Employment and transitional programs

19. Challenges Coordination & awareness of resources Community awareness & engagement Parent/caregiver education Educator & provider training Respite & Daycare Speech Therapists Behavioral Therapist Occupational Therapists Physical Therapists Sign Language Interpreters Developmental Pediatrician Education and Training

20. Additional Challenges in Schools www.mohavecounty.us www.snacmc.org  Wheelchair accommodations  Accessible doors and hallways  Handicap-friendly playgrounds

21. Recommendations: 1.Needs Assessments 2.Coordination and Awareness of Resources 3.Access to Care 4.Special Education & Related Services www.mohavecounty.us www.snacmc.org

22. Next Steps www.mohavecounty.us www.snacmc.org Share with the community and providers Highlight Community Assessment during fall public forum and press releases Guide future efforts of SNAC’s strategic plan

23. Questions? www.mohavecounty.us www.snacmc.org

24. Office: 480-621-6895 www.saguaroevaluation.com admin@saguaroevaluation.com www.mohavecounty.us www.snacmc.org