1. Gerry Brady and Gillian Roche CSO Ireland Washington Group, Manila, October 29-31 2008 National Disability Survey Ireland 1

2. Overview 2006 Census of Population - 2 Questions on disability Census questions used to select sample for a detailed follow-up survey - the National Disability Survey This presentation: - Compare Census and NDS disability rates - Present detailed NDS findings on disability types and difficulty profiles of disabled in Ireland Focus is on coverage issues relevant to use of short Census question set 2

3. Census of Population questions 3

4. Definition of disability in NDS 4

5. Two samples from Census 5 NDS was primarily designed to examine in more detail the situation of persons who had a disability in the Census = Census Disability Sample (CDS) A small sample of persons in private households who did not have a disability in the Census were also included in the NDS = General Population Sample (GPS)

6. Census and NDS consistency 88% of CDS private households sample had a disability in both Census and NDS (weighted) 97% of CDS non-private households sample had a disability in both Census and NDS (weighted) 89% of GPS private households sample from Census neither had a disability in the Census nor in the NDS (weighted) 6

7. NDS sample & target population Sample and target population Achieved sample Target population Census disability sample14,518370,500 resident in private households13,868344,100 resident in communal establishments65026,400 General population sample1,5513,700,000 Total16,0694,070,500 7

8. Census and NDS 8 High consistency between NDS and Census Small number of persons who had no disability in the Census indicated a disability in the NDS. These persons have a much larger weight attached to them as they represented around 91% of the population Inclusion of these persons in the prevalence rate would increase it from the 9.3% recorded in the Census to 18.5% (after excluding persons who had a disability in the Census who did not have a disability in the NDS)

9. Review of differences 9 CensusNDS Prevalence 9.3%Prevalence 18.5% Multi-purpose surveySpecific survey Yes or No response5 point scale Self-completed at household level Personal interviews of named individuals Long-lasting conditionLasting 6 months or more or regularly re-occuring

10. Prevalence rates by disability type 10 Mobility (83 per 1,000) and Pain (86 per 1,000) difficulties were the most reported in the combined CDS and GPS samples Disability rates increased from 38 per 1,000 in the Census Disability Sample to 86 per 1,000 in the combined samples for Pain and from 18 to 40 for Breathing

11. Disability type (rate per 1,000) Disability type Census Disability Sample General Population Sample Total population Seeing131427 Hearing141024 Speech9413 Mobility & dexterity453783 Remembering & concentrating281946 Intellectual & learning181431 Emotional, psychological & mental health 272048 Pain384886 Breathing182240 Persons with a disability (rate)81105185 Persons with a disability325,800423,300749,100 11

12. Level of difficulty 12 Persons who reported a Census and NDS disability had higher levels of difficulty than persons who only reported an NDS disability 33% of persons in the CDS who had a disability in the NDS had a moderate or lower level of difficulty This rose to 47% when the two samples were brought together (CDS and GPS)

13. Level of difficulty (%) Level of difficultyCensus Disability Sample General Population Sample Total population Just a little2%4%3% A moderate level31%53%44% A lot of difficulty43%35%38% Cannot do at all24%7%15% Total100% Persons with a disability 325,800423,300749,100 13

14. Age differences 14 Persons aged 0-17 reported a disability rate of 35 per 1,000 in the CDS but reported a much higher disability rate in the combined CDS and GPS (110 per 1,000) The 35-44 age group were the next most likely to be missed in the Census with the rate increasing from 59 per 1,000 to 164 per 1,000

15. Prevalence (rate per 1,000) Age group Census Disability Sample General Population Sample Total population 0-173575110 18-34384583 35-4459105164 45-5486124210 55-64135165300 65-74181214395 75 & over377282660 Persons with a disability (rate) 81105185 Persons with a disability325,800423,300749,100 15

16. Census Disability Sample profile 16 The following slides profile persons in the CDS (had a disability in the Census and in the NDS) There are too few persons in the General Population Sample (No disability in the Census but had a disability in the NDS) to include them in the detailed profiles

17. Disability type and sex 17 56% of persons with a disability in the Census Disability Sample had a Mobility and dexterity disability Pain was the next most reported at 47% 48% were men and 52% women Intellectual and learning (61%) and Speech (54%) were the only disability types where there were more males than females in the CDS

18. Census Disability Sample Disability typeMalesFemalesTotalPersons Seeing425810050,60016 Hearing50 10057,60018 Speech544610035,30011 Mobility & dexterity4357100184,00056 Remembering & concentrating 4951100113,00035 Intellectual & learning613910071,60022 Emotional, psychological & mental health 4753100110,60034 Pain4357100152,80047 Breathing495110071,50022 Persons with a disability 4852100325,800100 18

19. Disability type by difficulty level 19 35% of persons with a Mobility and dexterity disability Could not do everyday activities Over 60% of persons with Hearing, Emotional & psychological, and Breathing disabilities had at most a moderate level of difficulty

20. Census Disability Sample Disability type Just a little A moderate level A lot of difficulty Cannot do at all Total Seeingn/a55415100 Hearingn/a61363100 Speechn/a483418100 Mobility & dexterityn/a313435100 Remembering & concentratingn/a493913100 Intellectual & learning17363512100 Emotional, psychological & mental health 2342324100 Painn/a49483100 Breathingn/a63352100 Persons with a disability2314324100 20

21. Disability type by age group 21 36% of persons with a Seeing difficulty, 38% with a Hearing difficulty and 33% with a Mobility difficulty were aged 75 & over in the CDS (this age group represents 5% of the population) 38% of persons with an Intellectual and learning difficulty and 29% with a Hearing difficulty were aged under 18 (this age group represents 25% of the population)

22. Census Disability Sample Disability type0-1718-3435-4445-5455-6465-74 75 & over Total Seeing58613151636100 Hearing6671116 38100 Speech29189108818100 Mobility & dexterity47812181733100 Remembering & concentrating 16131011141125100 Intellectual & learning38251110746100 Emotional, psychological & mental health 916 18171013100 Pain291116221723100 Breathing89813201923100 Persons with a disability 11131113161422100 22

23. Accommodation by disability type 23 61% of persons with a disability in Nursing homes, hospitals and children’s homes had a Remembering and concentrating disability compared with 32% of persons with a disability in private households The corresponding figures for a Speech disability were 33% and 9% Conversely persons with a disability in Nursing homes were less likely to have Pain or breathing disabilities

24. Census Disability Sample Disability type Private household Nursing home, hospital and children's home All persons Seeing152216 Hearing181718 Speech93311 Mobility & dexterity557656 Remembering & concentrating326135 Intellectual & learning222722 Emotional, psychological & mental health334534 Pain483047 Breathing221622 Persons with a disability %100 Persons with a disability300,20025,600325,800 Average number of disabilities per person2.53.32.6 24

25. Accommodation by difficulty level and by age 25 63% of persons with a disability in Nursing homes were unable to do everyday activities compared with 21% in private households 62% of persons with a disability in Nursing homes were aged 75 & over compared with 19% in private households

26. Census Disability Sample 26 Disability type Just a little A moderate level A lot of difficulty Cannot do at all TotalPersons Private households 2334421100300,200 Nursing home, hospital and children’s home 212236310025,600 Disability type 0-6465-74 75 & over TotalPersons Private households 671419100300,200 Nursing home, hospital and children’s home 26126210025,600

27. People with a single disability 27 26% of persons with a disability in the CDS had only one disability, Pain comprised (4%) and Breathing (3%) of this group 42% of persons with a disability in the combined sample had only one disability, Pain (9%) and Breathing (7%) comprised almost 40% of those persons 29% of persons with an Intellectual & learning disability in combined sample had no other disability, the corresponding figure for Breathing was 30%

28. Persons with only one disability 28 Census Disability sampleTotal population Disability type % of disability type with only this disability % of all persons with a disability with only this disability % of disability type with only this disability % of all persons with a disability with only this disability Seeing 102 254 Hearing 173 203 Speech 30 181 Mobility & dexterity 95 136 Remembering & concentrating 41 82 Intellectual & learning 184 295 Emotional, psychological & mental health 134 195 Pain 84 199 Breathing 113 307

29. Conclusions 29 Level of difficulty scale, range of explicit disabilities and survey methodology can all combine to greatly affect prevalence rates 33% of persons with a disability in the Census Disability Sample had a moderate or lower level of difficulty 47% of persons with a disability in the combined sample had a moderate or lower level of difficulty

30. Conclusions 30 26% of persons in the CDS had only one disability, this proportion rose to 42% when the GPS was included In a Census question that has Yes/No response options, respondents should be instructed to include a moderate level of difficulty as a disability A short question set is more likely to miss out on children and persons aged 35-44 and on persons with Pain and Breathing disabilities depending on domain coverage