1. Personal Health Records (PHR) Personal Health Record (PHR) A Tool For Managing Your Health Itara Barnes American College of Rheumatology Dept. of Quality, Registries & Health Informatics

2. Personal Health Records (PHR) ePatient EquippedEnabled EmpoweredEngaged

3. Personal Health Records (PHR) What is a PHR? The PHR is a tool that you can use to collect, track and share past and current information about your health or the health of someone in your care.

4. Personal Health Records (PHR) 69% of primary care physicians said they send patient information to specialists upon referral Recent Study Found:

5. Personal Health Records (PHR) 69% of primary care physicians said they send patient information to specialists upon referral Only 35% of specialists said that they actually receive that information. Recent Study Found:

6. Personal Health Records (PHR) Your PHR can make a difference The PHR can enable you to partner with your health care providers, or it can be a private reference used to keep your family informed about your health history.

7. Personal Health Records (PHR) With your PHR you can: Knowledgably discuss your health with providers Provide information to new caregivers Easily access your health information while traveling Access your information when doctor’s office is closed

8. Personal Health Records (PHR) With your PHR you can: Record your progress toward specific health-related goals Refer to physician instructions, prescriptions, allergies, medications, insurance claims Track appointments, vaccinations, and other wellness healthcare services

9. Personal Health Records (PHR) A PHR is not a Medical Record Medical records contain information about your health compiled and maintained by each of your healthcare providers. A PHR is information about your health compiled and maintained by you. Privacy and confidentiality

10. Personal Health Records (PHR) What is found in a PHR? Diagnosis and problems Medication and any allerigies Medical history Notes about your visit with your doctor Laboratory results Imaging reports Summary of events Family history (especially if anyone else has lupus) Information that you feel is important to your health

11. Personal Health Records (PHR) Starting your PHR Request copies of your health records Some providers offer a plan for starting a PHR It is not necessary to gather all information at once Try to gather information from as far back in your treatment as possible

12. Personal Health Records (PHR) Choosing a PHR provider Health care provider Employer Insurer Tethered PHR system

13. Personal Health Records (PHR)

15. The website www.myPHR.com maintains a list of PHR vendors available in the marketplace.www.myPHR.com Untethered online vendor

16. Personal Health Records (PHR)

19. For more information visit: www.thelupusinitiative.org

20. Personal Health Records (PHR) The production of this video was supported by Grant MPCMP061013-04-02 from the Department of Health and Human Services Office of Public Health and Science (DHHS OPHS). Its contents are solely the responsibility of The Lupus Initiative and do not necessarily represent the official views of the DHHS OPHS.

21. Personal Health Records (PHR) Your PHR and Lupus Benefits to patients with lupus – Thorough medical history is particularly useful when visiting multiple providers/specialists – Can assist you in tracking the causes of flares