1. www.managingpain.org.uk Pilot study of a chronic fatigue programme Owen Hughes Head of Pain Management Service

2. www.managingpain.org.uk Background 8 Patients with chronic fatigue syndrome through normal pain management programme Positive outcomes Evidence Based Healthcare Bulletin

3. www.managingpain.org.uk Method Psychometric questionnaires at 6 points: –wl, Pre, Post, 6wks, 6mths, 1yr All participants completed the same programme All had diagnosis of CFS/ME or Fibromyalgia

4. www.managingpain.org.uk Participant Group Youngest = 25 Oldest = 61 100% Benefits Diagnosis 1-11years

5. www.managingpain.org.uk Gender of Participants

6. www.managingpain.org.uk TuesdayWednesdayThursdayFriday 9.00-945 Introduction (Erwood) 8.30-10.00 Stretch (Erwood) 8.30-9.30 Stretch (Erwood) 8.30-9.30 Stretch (Erwood) 9.45-10-30 What is Chronic Fatigue Syndrome? (Erwood) 9.30 -10.30 Goals (Erwood) 9.30-10.30 Sleep (Erwood) 10.30-11.00 Coffee 10.00 - 10.30 Coffee 10.30-11.00 Coffee 10.30-11.00 Coffee 11.00-12.00 Intro. to exercise programme (Erwood) 10.30 – 11.00 Watch Videos (Erwood) 11.00 – 12.00 Setting Baselines (Erwood) 11.00-12.00 Setting Baselines (Erwood) 11.00 – 12.00 Introduction to Psychology (Erwood) 12.00-1.00 LUNCH 12.00-1.00 LUNCH 12.00-1.00 LUNCH 12.00-1.00 LUNCH 1.00-1.45 Relaxation (Erwood) 1.00-1.45 Relaxation (Erwood) 1.00-1.45 Relaxation (Erwood) 1.00-1.45 Relaxation (Erwood) 1.45-4.00 Videos/Medication/ Assessment (Erwood) 1.45-2.45 Theories of Pain and Fatigue (Erwood) 1.45-2.45 Medication (Erwood) 1.45-2.45 Review of the Week Weekend Planning (Erwood) 4.00-4.15 Tea 2.45-3.00 Tea 2.45-3.00 Tea 2.45-3.00 Tea 3.00-5.00 Keyworker 3.00-4.00 Principles of Pacing (Erwood) 3.00-4.00 Keyworker 4.00-5.00 Keyworker Tidy Up

7. www.managingpain.org.uk Results Statistically significant changes on most measures Clinically significant changes Participants with a greater quality of life and a sense of a future

8. www.managingpain.org.uk Beck Depression Inventory

9. www.managingpain.org.uk Energy

10. www.managingpain.org.uk Physical Health

11. www.managingpain.org.uk Mental Health Aggregate

12. www.managingpain.org.uk Catastrophising

13. www.managingpain.org.uk Self Efficacy

14. www.managingpain.org.uk Medications

15. www.managingpain.org.uk Distance Walked in 2 minutes

16. www.managingpain.org.uk Sit to Stand

17. www.managingpain.org.uk Steps

18. www.managingpain.org.uk Conclusions Successful pilot Worth developing Pain management principles transferable

19. www.managingpain.org.uk The future Developing a business plan Conference presentations/posters Continuing to receive referrals