1. Organ Donation “The Gift of Life” University of Wisconsin Hospital and Clinics Organ Procurement Organization

2. Organ Procurement Organizations University of Wisconsin Hospital and Clinics OPO (Madison) – Red Wisconsin Donor Network (Milwaukee) – Green LifeSource (Minneapolis) - Blue

3. Recovery Agencies  Organ Recovery Agencies: UW Health OPO – most of WI, UP of MI, Rockford, IL Wisconsin Donor Network – Milwaukee & SE Wisconsin LifeSource OPO – Minnesota, N. & S. Dakota, NW WI  Tissue Agencies: Have contracts with individual hospitals MTF Wisconsin Tissue Bank RTI Donor Services ATSF  Lions Eye Bank of Wisconsin

4. National Transplant Waiting List Type of Transplant Waiting Transplanted in ‘ 08 Kidney 79,25216,514 Liver 15,845 6,318 Liver 15,845 6,318 Lung 1,954 1,478 Heart 2,782 2,163 Heart-lung 85 27 Kidney-pancreas 2,269 836 Pancreas 1,535 437 Intestines 220 185 Totals 101,52427,958 Source: Organ Procurement and Transplant Network - As of 4/14/2009

6. Wisconsin Transplant Waiting List Type of Transplant Waiting Transplanted in ‘ 08 Kidney 1,071 445 Liver 218 155 Lung 66 40 Heart 82 29 Heart-lung 0 1 Kidney-pancreas 5749 Pancreas 11 15 Intestines 2 0 Intestines 2 0 Total 1,470 734 Source: Organ Procurement and Transplant Network, As of 4/14/2009

7. Illinois Transplant Waiting List Type of Transplant Waiting Transplanted in ‘ 08 Kidney 3,707 726 Liver 637 251 Lung 65 60 Heart 109 92 Heart-lung 4 0 Kidney-pancreas 15541 Pancreas 83 34 Intestines 8 4 Intestines 8 4 Total 4,618 1,208 Source: Organ Procurement and Transplant Network, As of 4/13/2009

8. Michigan Transplant Waiting List Type of Transplant Waiting Transplanted in ‘ 08 Kidney 2,502 578 Liver 307 209 Lung 45 43 Heart 84 52 Heart-lung 0 0 Kidney-pancreas 4819 Pancreas 25 7 Intestines 0 0 Intestines 0 0 Total 2.959 908 Source: Organ Procurement and Transplant Network, As of 4/14/2009

9. ORGAN DONATION STATISTICS There are more than 101,000 people currently waiting for an organ transplant in the United States, more than 2,500 are children. There are more than 101,000 people currently waiting for an organ transplant in the United States, more than 2,500 are children. The list is growing at the rate of one person every 13 minutes, or more than 3,000 patients each month. The list is growing at the rate of one person every 13 minutes, or more than 3,000 patients each month. Nearly 200 children and 6,300 adults died while waiting for an organ transplant last year. Nearly 200 children and 6,300 adults died while waiting for an organ transplant last year. 17 people die every day waiting for transplants. 17 people die every day waiting for transplants. More than 90% of Americans support organ donation, yet less than half say “yes” when approached at the time of donation. More than 90% of Americans support organ donation, yet less than half say “yes” when approached at the time of donation.

10. –Heart  Cardiomyopathy, Coronary Artery Disease, Congenital Heart Disease, Valvular Heart Diseases –Lungs  Emphysema/COPD, Cystic Fibrosis, Pulmonary Fibrosis, Primary Pulmonary Hypertension, Congenital Pulmonary Defects –Liver  Hepatitis A,B,C, Cirrhosis, Biliary Disease, Metabolic, Neoplasms –Pancreas  Diabetes Type I without Renal Disease, Hypoglycemic Unawareness, Pancreas after Kidney Transplant –Kidneys  End Stage Renal Disease, Diabetes with Renal Disease –Small Intestines  Short Gut Syndrome, Severe Vascular Disease Organs That Can Be Transplanted & Conditions Causing The Need For Transplant

11. Tissue & Eye Donation Skin Skin Bone Bone Connective tissue (ligaments & tendons) Connective tissue (ligaments & tendons) Heart valves Heart valves Veins Veins Corneas Corneas

12. The Gift of Tissue & Eye Donation Skin is used for burn victims, and in reconstructive and cosmetic surgeries Skin is used for burn victims, and in reconstructive and cosmetic surgeries Bone and connective tissue are often used for sports injuries or trauma repair Bone and connective tissue are often used for sports injuries or trauma repair Veins are used for vascular surgeries Veins are used for vascular surgeries Corneas are used for certain types of blindness Corneas are used for certain types of blindness

13. The Differences…. Organ Donation The patient must be maintained by a mechanical ventilator Organs must be properly preserved and transplanted quickly Life-saving procedure Tissue/Eye Donation Occurs in the first 24 hours after the heart has stopped beating The tissues can be preserved and used at a later date Life-enhancing procedure

14. Organ Preservation Time Limits  Heart: 4 to 6 hours  Lungs: 4 to 6 hours  Liver: 12 hours  Pancreas: 12 to 18 hours  Kidneys: up to 72 hours  Small Intestines: 4 to 6 hours

15. Current Criteria for Organ Donation   Patients who have been declared brain dead OR   Patients with severe neurological injury and family and MD are discussing withdrawing ventilator support   Up to age 75 – flexible – there was a 96 y.o. donor last summer   HIV – (at this time)   No active malignancy – –Exception: Primary CNS tumors Note: Only the OPO can determine donor suitability

16. If I want to be a donor….

17. Say “Yes” to Donation: In Wisconsin you can legally consent to donation by signing the Anatomical Gift Statement on the back of your driver’s license or state issued ID card. In Wisconsin you can legally consent to donation by signing the Anatomical Gift Statement on the back of your driver’s license or state issued ID card. You can indicate your support of donation by attaching an orange “donor dot” to the front of your license or ID card. You can indicate your support of donation by attaching an orange “donor dot” to the front of your license or ID card. You can also include your donation decision in writing in your living will or healthcare POA documents. You can also include your donation decision in writing in your living will or healthcare POA documents. ~BUT~ ~BUT~

18. The Most Important Step Tell your family or legal next of kin your wishes. Hospital staff will ask them about your wishes as they relate to donation.

19. Who is my Legal Next of Kin ? Healthcare Agent/POA Healthcare Agent/POA (if enabled to do so) (if enabled to do so) Spouse Spouse Adult Child Adult Child Parent Parent Adult Sibling Adult Sibling Grandparent Grandparent Grandchildren Grandchildren Legal Guardian Legal Guardian Coroner or ME Coroner or ME

20. Can Your Family Go Against Your Wishes ? If you haven’t legally documented your decision in writing, your legal next of kin has the right to make the decision, even if it’s not the decision that you wanted. If you haven’t legally documented your decision in writing, your legal next of kin has the right to make the decision, even if it’s not the decision that you wanted. It’s important to make sure that you have properly documented your decision and that they know your wishes about donation. It’s important to make sure that you have properly documented your decision and that they know your wishes about donation.

21. Through Organ & Tissue Donation… One donor can… Save up to eight lives through organ donation Save up to eight lives through organ donation Give sight to up to two people Give sight to up to two people Enhance the lives of 40 or more people through tissue donation Enhance the lives of 40 or more people through tissue donation

23. State Donation Data - DMV Wisconsin Organ & Tissue Donor Program: Wisconsin Organ & Tissue Donor Program: https://apps.dhfs.state.wi.us/OrganDonor/public/Home https://apps.dhfs.state.wi.us/OrganDonor/public/Home Website query capabilities on organ donation according to: Age range, ethnicity, county, dates, etc. Allows you to view/print intent map

24. Organ Donation Websites  United Network of Organ Sharing - UNOS www.unos.org  US Dept. Of Health and Human Services - HHS www.organdonor.gov  Donate Life America www.shareyourlife.org or www.donatelife.net  Wisconsin Dept. of Health Services dhs.wisconsin.gov/health/donatelife/index.htm  University of Wisconsin OPO www.uwhcopo.org  Donate Life Wisconsin www.donatelifewisconsin.org

25. Volunteer Opportunities  Sharing your personal story: Churches, civic groups, media, hospital staff who work with donors/recipients, etc.  Staffing a booth on organ donation  Educating others: Driver’s ed classes, friends, community at large  Be a Dottie the Dot mascot/escort

26. Tips for Staffing a Booth Display or Table Set Up:  Keep it simple. Group materials neatly.  Stand or sit at different ends of the table. Talking Points:  Phrases to break the ice: “Hello – would you like a donor dot?” “Hi – have you made a decision about organ donation?”

27. Tips for Staffing a Booth If they answer YES to either question:  Offer a giveaway item (if available)  Ask if they have discussed their decision with their family. If they answer NO:  Offer the one-page info sheet  You can say “This is a good reference with information and common questions about donation.”

28. Tips for Staffing a Booth If you are asked questions & you don’t know the answers:  Be honest. Say you don’t know but would be happy to have someone from the OPO follow up with them. Offer the websites on the one page info sheet. If they would like OPO follow up: If they would like OPO follow up:  Forward their contact info & question to Trey Schwab

29. Tips for Staffing a Booth If someone is “on the fence” about donation – you may say something like: “If you aren’t sure about donation, ask yourself this: If you or one of your loved ones needed a transplant to live, would you accept it? If so, I would certainly hope that you would be willing to give that opportunity to another person.” Offer them a Got Your Dot flyer to take with them. Show them the web site on the back, where they can go to learn more.

30. Tips for Staffing a Booth Please Remember….  A certain percentage of people will say “No”.  Organ donation is a very personal decision.  Our goal is to ask everyone to make an educated decision about donation and to share their decision with their family.  We aren’t trying to coerce people into being donors and we must respect personal decisions.  You are representing UW Health OPO.

31. Tips For Working With The Media Per UW Policies – UW Health Public Affairs needs to be notified of ANY media request for an interview or data. Per UW Policies – UW Health Public Affairs needs to be notified of ANY media request for an interview or data.  Contact Kathy Schultz in Public Affairs: kschultz3@uwhealth.org 608.262.9374 or 719-9086 or pager 4016 608.262.9374 or 719-9086 or pager 4016

32. Tips For Working With The Media Before the Interview:  Kathy will follow-up with the reporter to get a feel for the type of story they are interested in. She will educate the reporter and/or share current data and facts, and will determine who to ask to do the interview.  She will then follow-up with the appropriate person and help them prepare for the interview.  Once she does that – please respond to reporters quickly.  Ask Kathy or the reporter for a list of questions or topics.  Make sure you have consent before discussing any patient information. CHECK WITH KATHY IF YOU ARE UNSURE OF ANYTHING !

33. Tips For Working With The Media During an Interview:  Message, Message, Message!  Speak clearly and use regular language (Avoid abbreviations and acronyms that are unfamiliar to people who haven’t experienced donation or transplantation.)  Don’t lie or try to fudge the truth. If you don’t know the answer, just say so. A good reporter will follow-up to find the answer elsewhere, and/or the question will not be included in the edited interview.  Stay “on the record.” There is no “off the record” with the media. If you say it, they can use it.  Use brief examples. Think “quotable sound bite” >20 seconds.  Use good posture and retain eye contact with the reporter.  Mind your facial expressions and gestures. Body language speaks loudly.  Dress appropriately. Look professional, tidy and prepared. This raised the audiences perception that you are important and know what you’re talking about.

34. Sensitive Terminology Please Use “Recover or recovery” of organs “Harvest or harvesting” of organs “Deceased” donor or “Deceased” donation Instead of “Cadaver” or “Caderveric” donor

35. Common Questions in Regards to Donation ?

36. “ Will the doctors do everything they can to try and save me if they know my wishes to be a donor?” Absolutely   The OPO team is separate from the medical team treating the patient. This ensures that there is no conflict of interest.   Donation is only considered after all efforts to save a patient’s life have been pursued by the medical team.

37. “How does religion relate to organ donation?”   The majority of religions support organ donation.   Most religions view organ and tissue donation as a charitable act.   Talk to your religious leader about donation.

38. “Will donation disfigure the body?” No   Organs are removed through surgical incisions.   Areas affected by tissue donation are reconstructed and concealed by clothing.   A family is able to have an open casket funeral.

39. “Does donation cost a family money?” No   Individual recovering agencies pay for all expenses associated with the recovery.   Those costs are passed on to the recipients and their insurance companies.   The donor ’ s family is responsible for the typical funeral expenses.

40. “ Will donation cause any delays with funeral arrangements? ” No   The recovering agency will make certain the body is released to the funeral home on time.   No extra planning is required by families of organ and tissue donors.

41. “Can you pay to get an organ?” No Allocation Criteria Blood type Medical urgency Tissue match Waiting time Organ size Immune status Geographic distance

42. “Will the organs be transplanted locally?” Yes, If….   There are local recipients for the organ.   There are no status-one patients in our region. (livers only)   There are no recipients in the U.S. who are a perfect tissue-typing match. (kidneys only)   Approximately 85-90% of all organs donated here are used for transplants here.

43.  Dottie is Wisconsin’s very own organ donation mascot.  She is designed to look like the orange “donor dot” (organ donation sticker) that Wisconsin residents place on their driver’s license if they wish to be listed as a donor.  She was made possible by a generous donation from WPS Insurance. The Dottie program is managed by UW Health. Introducing Dottie the Dot!

44. Dottie’s Mission: To increase the number of Wisconsin residents who declare their wish to be a donor.

45. Dottie’s Goals:  Currently, 2.2 million (52 percent) of Wisconsin residents have already declared their intent to donate.  The Dottie program, along with several other state-wide initiatives, is working to raise that figure to over three million people, (75 percent) of Wisconsin residents.  That figure would put Wisconsin at the top of donation rates throughout the nation.

46. Understanding the Job and the Rules

47. Doing your job as a Dottie mascot and/or escort:  You will appear at public and private events in communities throughout Wisconsin to promote organ, eye and tissue donation.  You will promote the “Got your Dot?” campaign encouraging residents to place an orange donor dot on their driver’s license or state ID.  You will ask people if they’ve “Got their dot?” and answer their questions about how to be listed as an organ, eye and tissue donor.  You will direct people to donatelifewisconsin.org to learn more and share their wishes.

48. Dottie’s escorts are…  Champions for the cause.  Able to answer basic questions about organ donation.  Always directing people to the Donate Life Wisconsin’s Web site to learn more.  Responsible for ensuring Dottie’s safety and comfort level at all times.  Clean, neat, respectful and appropriate.

49. How Do I Become a Mascot/Escort?  Email: dottiedot@uwhealth.org or complete a volunteer form today. dottiedot@uwhealth.org  Anyone can be a Dottie escort, however mascots must meet specific height, size and physical requirements to wear the costume.  Join the team of more than 75 people who are volunteering their time and energy to the Dottie the Dot program.  Dottie will be a big part of the Transplant Games in 2010, so don’t miss your chance to join the fun!

50. An Overview – Madison 2010

51. What are the U.S. Transplant Games?  Olympic-style competition that is held every two years.  Competitors have all received organ transplants.  12 sports with 41 different events.  Ages - 18 months to 80+ years.  Programs, ceremonies and workshops.  Organized by the National Kidney Foundation and the Wisconsin Local Organizing Committee

52. Competitions  Badminton  Basketball  Bowling  Cycling  Golf  Racquetball  Road Race  Swimming  Table Tennis  Tennis  Track & Field  Volleyball

53. Additional Activities Giving, Grieving, Growing – Workshop for Donor Families Donor Recognition Ceremony Living Donor Recognition Event Workshops for Living Donors Donor Quilt Pinning Ceremony Coffee House Family Fun Night Games Expo/Athlete Village Opening & Closing Ceremonies Kids Time Activities 5K Public Road Race Nightly Social Lounge Donor/Recipient Golf Outing Professional Conference

54. Program Objectives  Demonstrate success of transplantation.  Call public attention to need for more donors.  Rehabilitation of transplant recipients.  Honor both living and non-living donors.  Involve the transplant community and the local community as a whole.

55. Who Attends?  Transplant recipients  Donor families  Living donors  Transplant professionals  Family and friends  Local community

56. Games Growth

57. Games Locations  1990 – IUPUI (Indianapolis, IN)  1992 – UCLA (Los Angeles, CA)  1994 – Emory (Atlanta, GA)  1996 – U of Utah (Salt Lake City, UT)  1998 – Ohio State (Columbus, OH)  2000/2 – Disney World (Orlando, FL)  2004 – U of Minn. (Minneapolis, MN)  2006 – Conv. Ctr./U of L (Louisville, KY)  2008 – UPMC/Pittsburgh, PA  2010 – Madison, WI (Statewide LOC)

58. Coming Soon:  Complete information will be released to the public and the media. This communication will include the following areas:  Volunteering Opportunities and How to sign-up.  Participation information for transplant recipients who want to compete for Team Wisconsin.  Participation information for donor families and/or living donors who wish to attend and take part in the 2010 Games.  Information for companies and corporations that would like to get involved.  A list of contacts for people who are looking for more information, someone to speak to their group, etc.

59. How Can You Help?  Let your employer, community groups, etc. know that the Transplant Games are coming and see if they would like to get involved.  We will need donations – both cash and in-kind (printing services, professional assistance, etc.)  Spread the word to your friends and families.  Identify any contacts that you have that would be of assistance to Trey Schwab.  VOLUNTEER – we will need approximately 3,000 volunteer days to make the Games a success.

60. To Get Involved  Contact Trey Schwab at the UW Health OPO - (608) 890-9451 or via e-mail at: rschwab@uwhealth.org rschwab@uwhealth.org

61. http://www.dot.wisconsin.gov/drivers/vehicles/personal/special/donatelife.htm Proceeds go to Donate Life WI to help support a WI State Donor Registry

62. Questions?