1. The Allies Against Asthma Experience: An Introduction Noreen M. Clark, PhD Linda Jo Doctor, MPH Laurie Lachance, PhD Xin Geng, MS Amy R. Friedman, MPH Christy Houle, MPH National Program Office University of Michigan School of Public Health

2. Asthma control requires putting patients at the center of efforts

3. Management by Patient Family Involvement Clinical Expertise Work/School Support Community Awareness, Support & Action Community-Wide Environmental Control Measures Conducive Policies Clark, 2001

4. Coalition: A group of individuals representing diverse organizations, factions, or constituencies within the community who agree to work together to achieve a common goal. (adapted from Feighery, Rogers, 1990)

6. Goals of AAA: Assist coalitions to develop and prosper creating sustainable community-wide asthma control and prevention systems. Describe processes/relationships congenial to success of coalitions. Assess outcomes of coalition activities. Learn as much as possible about coalitions as a means to improve asthma control.

7. Allies Against Asthma Coalitions Alianza Contra el Asma Long Beach Alliance Pediátrica en Puerto Ricofor Children with Asthma San Juan, Puerto Rico Long Beach, California Marielena Lara, MD Elisa Nicholas, MD, MSPH Consortium of Infant and Fight Asthma Milwaukee Allies Child Health Asthma Workgroup Milwaukee, Wisconsin Hampton Roads, Virginia John Meurer, MD, MBA Cynthia Kelly, MD Fran Butterfoss, PhD King County Asthma ForumPhiladelphia Allies Against Asthma Seattle/King County, Washington Philadelphia, Pennsylvania Jane Peterson, PhD Robert Groves, MA, MPH James Krieger, MD, MPH DC Asthma Coalition Washington, D.C. Lisa Gilmore, MBA, MPH

8. Measuring Coalition Impact coalition development & structure planning/assessment programs and policy development collaboration self-management skills institutional arrangements organization of care quality of life health status healthcare use Processes and Products Intermediate Outcomes Health Outcomes

9. Methods Annual Coalition Self-Assessment Survey (CSAS) to 7 sites (2002 n=294; 2003 n=284 coalition members) Interviews and reports from each coalition provided qualitative data

10. Coalition Self-Assessment Survey Methods –Views of coalition members described –Chi-square analysis performed to compare different groups within the membership on items –Data is being analyzed by site and overall

11. Allies Against Asthma Stakeholders Survey N= 284 CSAS 2003

12. Vision CSAS 2002,2003

13. Benefits

14. Trust

15. AgreeDisagree Baseline88.0%12.0% Follow Up95.7%4.3% Agreement or Disagreement with the Statement: “The coalition is improving health outcomes for children with asthma”

16. Presentations –Engaging the Stakeholders Cynthia Kelly, MDConsortium for Infant & Child Heath Center for Pediatric Research Marielena Lara, MD, MPHAlianza Contra el Asma Pediátrica en Puerto Rico RAND – Decision Making Fran Butterfoss, PhDConsortium for Infant & Child Heath Center for Pediatric Research –Coalitions as a Tool For Coordination and Integration James Krieger, MD, MPHKing County Asthma Forum Seattle/King County Public Health Department