1. Meaningful Use and Personalized Patient Education: Consumer Health Information Activities at the National Library of Medicine James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the National Library of Medicine

2. Disclaimer This presentation is not intended to promote any commercial entity, including healthcare providers, knowledge resources or children’s entertainment.

3. Personal Health Records

4. Personal Health Records State of the art in PHRs

9. Personal Health Records State of the art in PHRs NLM Personal Health Record

10. How does it differ from other PHRs? Single web page for efficient data entrySingle web page for efficient data entry Generates input forms “on the fly”Generates input forms “on the fly” Can capture almost any kind of structured dataCan capture almost any kind of structured data Aims to code all key facts with US standardsAims to code all key facts with US standards Intelligent, patient-specific remindersIntelligent, patient-specific reminders

17. Personal Health Records State of the art in PHRs NLM Personal Health Record

18. Personal Health Records Electronic Knowledge Resources

19. Electronic Knowledge Resources MedlinePlus

20. Consumer & patient health English & Spanish Coverage: –Diseases and conditions –Health and wellness –Drugs, herbs, and supplements –Videos, interactive tutorials, etc. Stringent quality criteria

21. ~1,000 drugs 100 supplements ~1,000 drugs 100 supplements 172 tutorials 78 anatomy videos 112 surgery videos 5 Sp surgery videos 172 tutorials 78 anatomy videos 112 surgery videos 5 Sp surgery videos >40 languages >250 topics >3,000 links >40 languages >250 topics >3,000 links ~ 3,500 encyclopedia articles > 2,000 images ~ 3,500 encyclopedia articles > 2,000 images 15-20 news stories daily 1,445 links to ClinicalTrials.gov 885 English 856 Spanish 885 English 856 Spanish

23. http://www.nlm.nih.gov/mobile/

24. Electronic Knowledge Resources MedlinePlus Genetics Home Reference

25. Website of genetics information for the publicWebsite of genetics information for the public Currently more than 1,400 summariesCurrently more than 1,400 summaries –Incidence and prevalence –Gene/disease relationships –Common vocabulary terms, defined Background information about geneticsBackground information about genetics –Handbook: Help Me Understand Genetics –Glossary of genetics terms

28. Electronic Knowledge Resources MedlinePlus Genetics Home Reference Clinical Trials.gov

29. Access to data about individual clinical trials 97,835 registered trials from 7,961 Sponsors 2,467 Results entries from 449 Sponsors 43% with associated publications Powerful search tools Users can identify and track trials and outcomes

38. Electronic Knowledge Resources MedlinePlus Genetics Home Reference Clinical Trials.gov Infobot

39. 39 Infobot Augment an EMR with pertinent information from evidence-based resources Provide access to key facts needed to support clinical decision making and evidence based plans of care

40. Inside of CRIS

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46. Electronic Knowledge Resources MedlinePlus Genetics Home Reference Clinical Trials.gov Infobot

47. Personal Health Records Electronic Knowledge Resources Infobuttons ?

48. Context-specific links out to information resources

52. Infobuttons Context specific links out to information resources Resources that respond to specific information needs

53. MedlinePlus Connect for Diagnoses

54. Spanish MedlinePlus Connect for Diagnoses

55. MedlinePlus Connect for Medications

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58. Infobuttons Context specific links out to information resources Resources that respond to specific information needs

59. Personal Health Records Electronic Knowledge Resources LITE Infobuttons ?

60. i Clinical Application with Infobutton Link User Patient Healthcare Institution Infobutton Manager Page of Links Infobutton Manager Knowledge Base The Librarian Infobutton Tailoring Environment (LITE) Institutional Librarian (or other LITE users)

65. Personal Health Records Electronic Knowledge Resources LITE Infobuttons ?

66. Thanks to… Thomas Graf, Geissinger Health System Louise Lang, Kaiser Permanente Clem McDonald, NLM Swapna Abhayankar, NLM Joyce Backus, NLM May Cheh, NLM Deborah Zarin, NLM Dina Demner Fushman, NLM