1. WHAT I WISHED I HAD KNOWN ABOUT THE CDC WHEN I WAS A UCEDD DIRECTOR Mark E. Swanson, MD, MPH (meswanson@cdc.gov) National Center for Birth Defects and Developmental Disabilities

2. Disclaimer The findings and conclusions in this report have not been formally disseminated by the Centers for Disease Control and Prevention/the Agency for Toxic Substances and Disease Registry and should not be construed to represent any agency determination or policy. The findings and conclusions in this report have not been formally disseminated by the Centers for Disease Control and Prevention/the Agency for Toxic Substances and Disease Registry and should not be construed to represent any agency determination or policy.

3. Prevention Research Centers Conduct research projects on health- or population-specific issues Build research teams of multidisciplinary faculty Seek outcomes applicable to public health program and policies Create research networks for priority health issues, such as aging and oral health Build long-term relationships for engaging communities as partners in research Grantees include: Universities. of WA, AZ, CO, NM, MI, KY, MN, SC, NC, OK, WV, OR Health Sciences, UC-Berkeley, UCLA, UCSD-San Diego St., U of So. FL, Tulane, J Hopkins, SUNY-Albany, Pitt, UT-Houston, TX A&M, St. Louis, Columbia, Emory, Morehouse, UAB, Harvard, Yale, Boston U., Rochester, U of IL-Chicago http://www.cdc.gov/prc/index.htm

4. Public Health Injury Surveillance and Prevention Program PHISP has three primary objectives: Build a solid infrastructure for injury prevention and control; Build a solid infrastructure for injury prevention and control; Collect, analyze, and use injury data; and Collect, analyze, and use injury data; and Implement and evaluate interventions. Implement and evaluate interventions. States with PHISP programs: AZ, CA, CO, CT, FL, GA, HI, KS, KY, LA, ME, MD, MA, MN, NE, NV, NM, NY, OH, OK, OR, PA, RI, SC, TN, UT, VT, VA, WA, WI http://www.cdc.gov/ncipc/profiles/core_state/default.htm

5. Public Health Injury Surveillance and Prevention Program States with TBI Surveillance Programs States with TBI Surveillance Programs –CO, MN, OK, UT States with TBI Service Linkage Programs States with TBI Service Linkage Programs –CO, MN, OK, RI, SC

6. State Disability and Health Capacity Grants Develop and utilize a consumer-driven advisory board and a strategic plan for the Disability and Health program. Develop and utilize a consumer-driven advisory board and a strategic plan for the Disability and Health program. Work closely with state Healthy People coordinators to integrate people with disabilities into their state’s public health agenda. Work closely with state Healthy People coordinators to integrate people with disabilities into their state’s public health agenda. Coordinate with the state Behavioral Risk Factor Surveillance team to assess risk behaviors and health status by age, gender, and ethnicity. Coordinate with other health department divisions to include people with disabilities in health promotion activities and to make clinical preventive services ADA accessible. Coordinate with the state Behavioral Risk Factor Surveillance team to assess risk behaviors and health status by age, gender, and ethnicity. Coordinate with other health department divisions to include people with disabilities in health promotion activities and to make clinical preventive services ADA accessible.

7. State Disability and Health Capacity Grants Collaborate with universities, UCEDDs, centers for independent living, advocacy organizations, vocational rehabilitation and senior or elderly services to facilitate health promotion efforts targeting people with disabilities. Collaborate with universities, UCEDDs, centers for independent living, advocacy organizations, vocational rehabilitation and senior or elderly services to facilitate health promotion efforts targeting people with disabilities. Inform the public about employment, independent living, access, transportation, physical activity, assistive technology, peer support and other state initiatives to improving the health of people with disabilities e.g. statewide annual conferences. Inform the public about employment, independent living, access, transportation, physical activity, assistive technology, peer support and other state initiatives to improving the health of people with disabilities e.g. statewide annual conferences. States with D & H grants: AR, CA, DE, IA, KS, MA, MN, MT, NC, NM, NY, OR, RI, SC, UT, WA http://www.cdc.gov/ncbddd/dh/DHstateprograms.htm http://www.cdc.gov/ncbddd/dh/DHstateprograms.htm http://www.cdc.gov/ncbddd/dh/DHstateprograms.htm

8. State-Based Examples of Network Innovation, Opportunity, and Replication (SENIOR) Grants Assesses and sustains health-related needs, activities, and partnerships occurring between state health departments and state units on aging for ensuring the health of the nation's older adults and to support health promotion and disease prevention programs for older adults at the state and local level. Assesses and sustains health-related needs, activities, and partnerships occurring between state health departments and state units on aging for ensuring the health of the nation's older adults and to support health promotion and disease prevention programs for older adults at the state and local level. AZ, CO, FL, IA, MA, NC, NJ, NY, OR. PA, SC AZ, CO, FL, IA, MA, NC, NJ, NY, OR. PA, SC

9. AUTISM SURVEILLANCE Projects track the number of children who have an ASD, conduct studies to find out what factors make it more likely that a child will have an ASD, and offer education and outreach programs for researchers, families, and others affected by ASD Projects track the number of children who have an ASD, conduct studies to find out what factors make it more likely that a child will have an ASD, and offer education and outreach programs for researchers, families, and others affected by ASD AL, (AR), FL, MO/IL, (NJ), SC, (UT) ADDM AL, (AR), FL, MO/IL, (NJ), SC, (UT) ADDM (CA), CO, MD/DE, NC, PA CADDRE (CA), CO, MD/DE, NC, PA CADDRE

10. Public Health Preparedness The Centers for Public Health Preparedness (CPHP) program was initiated in 2000 to strengthen terrorism and emergency preparedness by linking academic expertise to state and local health agency needs. The program has grown to become an important national resource for the development, delivery, and evaluation of preparedness education. Within the CPHP program, colleges and universities provide preparedness education to public health workers, healthcare providers, students, and others. http://www.bt.cdc.gov/training/cphp/

11. Colleges of Public Health The Association of Schools of Public Health (ASPH) is the only national organization representing the deans, faculty and students of the accredited member schools of public health and other programs seeking accreditation as schools of public health. member schools of public healthmember schools of public healthhttp://www.asph.org/

12. University Centers of Excellence in Developmental Disabilities Research Topic of Interest (RTOIs) facilitating state-based surveillance and research of birth defects and developmental disabilities; facilitating state-based surveillance and research of birth defects and developmental disabilities; developing educational resources and curricula for health care practitioners, researchers, and trainees; developing educational resources and curricula for health care practitioners, researchers, and trainees; disseminating materials and information to state public health departments, policy makers, and advocates; disseminating materials and information to state public health departments, policy makers, and advocates; strengthening expertise in the fields of birth defects and developmental disabilities through training of professionals in public health and related fields strengthening expertise in the fields of birth defects and developmental disabilities through training of professionals in public health and related fields http://www.aucd.org/ http://www.aucd.org/projects/NCBDDD/rtois.htm Arizona, Colorado, Florida, Iowa, Massachusetts, New Jersey, New York, North Carolina, Oregon, Pennsylvania, South Carolina

13. National Health Interview Survey Statistics on illness, accidental injuries, disability, use of hospital, medical, dental, and other services, and other health- related topics, all based on data collection in the continuing national household survey. http://www.cdc.gov/nchs/nhis.htm

14. Behavioral Risk Factor Surveillance System The BRFSS, the world’s largest telephone survey, tracks health risks in the United States. Information from the survey is used to improve the health of the American people. State- and national- level data. http://www.cdc.gov/brfss

15. National Health and Nutrition Examination Survey NHANES assesses health and nutritional status of children and adults, combining interviews and physical examinations. Public use data released in two-year increments continuously http://www.cdc.gov/nchs/nhanes.htm

16. Children with Special Health Care Needs – SLAITS The primary goal of this module is to assess the prevalence and impact of special health care needs among children in all 50 States and the District of Columbia and to evaluate change since 2001. http://www.cdc.gov/nchs/about/major/slaits /cshcn_05_05.htm