1. Intermediate Injury Prevention Course August 23-26, 2011 Billings, MT Data Collection Planning

2. Data Collection Planning Session Objectives 1.Describe the data collection planning process. 2.Describe how HIPAA affects your data collection efforts.

3. Data Collection Buzz Group Have you collected data in the past? What type of data have you collected? Did you have any problems/success in your data collection efforts? What would you like to learn about data collection during this session? Take 5 minutes to discuss these questions with the person next to you.

4. Data Collection Planning A systematic method of collecting information to understand truths and reality about a topic in your community. Truth vs. Perception

5. Data Collection Planning Identify a Specific Question Elder Fall Prevention What are some of the contributing factors that cause Elder falls?

6. Data Collection Planning Anticipate Data Needs Has someone else already asked this question? What information do you need to answer the question? Where do you find the information? Do you have access to this information? Do you need clearance/permission to gather this information?

7. Data Collection Planning Data Collection Methods Record Abstraction Surveys –Self- administered –Mailed –In-person Personal Interviews –In-person –Telephone Focus Groups Source: Dr. Runyan, UNC School of Public Health.

8. Characteristics of Good Survey Questions Specific, clear, and to the point As simple as possible, using commonly understood words or terms Avoid subjective terms (good, bad) Injury Surveillance: A 10-Step Plan

9. Characteristics of Good Survey Questions Measurable? Quantitative vs. Qualitative Provide the information you want/need Injury Surveillance: A 10-Step Plan

10. Data Collection Planning Instrument Design Open-ended vs. close-ended Double-barreled Sensitive questions Recall Length/duration Pre-test, pre-test, pre-test Source: Dr. Runyan, UNC School of Public Health.

11. When traveling in the car, does your child usually ride: 1.In the front seat 2.In the back seat 3.On the roof rack Data Collection Planning Open-Ended vs. Close-Ended Where does your child usually ride when traveling in the car? Source: Dr. Runyan, UNC School of Public Health.

12. Data Collection Planning Double-Barreled Does your child usually sit in the back seat and use a car seat? 1=Yes2=No Does your child ride in the back seat? 1=Yes2=No Does your child usually ride in a car seat? 1=Yes2=No Source: Dr. Runyan, UNC School of Public Health.

13. Data Collection Planning Sensitive Questions How often do you carry a concealed weapon? 1 = Frequently4 = Never 2 = Occasionally5 = Don’t know 3 = Rarely6 = Refuse Some people carry concealed weapons all the time, others do it less often. How often would you say that you carry a concealed weapon? Source: Dr. Runyan, UNC School of Public Health.

14. Data Collection Planning Recall How many times did you wear your bicycle helmet last year? How many times did you wear your bicycle helmet last year? Would you say it was: 1 = Every time I go out4 = Never 2 = Once in a while8 = Don’t know 3 = Rarely9 = Refuse Source: Dr. Runyan, UNC School of Public Health.

15. Data Collection Planning Length/Duration Source: Dr. Runyan, UNC School of Public Health. Keep it simple!!! Only ask the questions for which you need data and you can analyze Be respectful of people’s time

16. Data Collection Planning Pre-testing How is pre-testing done? Can you describe some of the factors you want to investigate during pre-testing?

17. Data Collection Planning Planning Summary Systematic, planned approach:  Identify the injury topic  Narrow your focus  Identify a specific question  Anticipate your data needs  Develop and pre-test your instrument

18. Data Collection Planning Confidentiality What are HIPAA and IRBs all about? How does HIPAA affect your data collection efforts?

19. Data Collection Planning HIPAA of 1996 HIPPA privacy rule provides first national standards for protecting the privacy of health information. Provides protection for the privacy of certain individually identifiable health data (PHI). Regulates how certain entities (Covered Entities) use and disclose PHI. Source: CDC, MMWR, May 2, 2003 / 52(S-1);1-12.

20. Data Collection Planning HIPAA of 1996 “Privacy rule expressly permits disclosures without individual authorization to public health authorities authorized by law to collect or receive the information for the purpose of preventing or controlling disease, injury, or disability, including by not limited to public health surveillance, investigation, and intervention”. Source: CDC, MMWR, May 2, 2003 / 52(S-1);1-12.

21. Data Collection Planning HIPAA of 1996 Covered Entities include: Public and private health plans (HMOs, Medicare, Medicaid) Health Care Providers (physicians, hospitals, clinics) Source: CDC, MMWR, May 2, 2003 / 52(S-1);1-12. Public Health Authorities include: Federal, State, and Tribal public health agencies

22. Data Collection Planning Confidentiality Resources CDC, MMWR, May 2, 2003 / 52(S-1);1-12. Oversight and enforcement responsibilities with HHS Office for Civil Rights: www.hhs.gov/ocr/hipaa IHS HIPAA Homepage: www.ihs.gov/AdminMngrResources/HIPAA/index.cfm CITI Course in The Protection of Human Research Subjects: www.citiprogram.org

23. DATA COLLECTION LAB EXERCISES 4-5 Groups w/facilitator 2 Exercises: Assessing Data Systems Developing a Case Definition 30 minutes each + debriefing discussion

24. Exercise 1: Data Source Strengths & Weaknesses Brief scenario regarding potential availability of state IP data Develop assessment questions re: strengths and weaknesses of the data Debrief to include additional questions to consider and sample data request letters Use worksheet

25. Exercise 2: Injury Case Definition Brief scenario (provided or from a group member) Drafts case definition Discussion of characteristics of the developed case definition; strengths; limitations Use worksheet