1. www.carers.org www.youngcarers.net © Carers Trust Carers & Confidentiality Ruth Hannan, Policy & Development Manager

2. www.carers.org www.youngcarers.net © Carers Trust Contents 1.Overview of the confidentiality concept 2.Exercise – what is confidential information? 3.Limits and exceptions to confidentiality (Machin) 4.Principles and Solutions 5.Further resources

3. www.carers.org www.youngcarers.net © Carers Trust Overview of the confidentiality concept Keeping something confidential = keeping it private. In health and social care, this means: “information confided [to a professional] should not be used or disclosed further, except as originally understood by the confider, or with their subsequent permission” (NHS Code of Practice on Confidentiality, 2003)

4. www.carers.org www.youngcarers.net © Carers Trust Common-law right, but Human Rights Act 1998 creates legal right to privacy. Also Mental Health Act 2007’s participation principle (involvement of service users and carers) as well as guidance to ensure carers have access to information.

5. www.carers.org www.youngcarers.net © Carers Trust But what is the point of keeping personal details confidential? Maintaining a patient’s confidentiality is vital for: building trust, developing and maintaining therapeutic relationships, and so help that person recover.

6. www.carers.org www.youngcarers.net © Carers Trust Potential Conflicts We all share the same aim: for the cared for to be as well as possible. However, there can be a: conflict between carers’ need/want to know vs cared for’s right and desire for privacy conflict between professional’s duty of care vs institutional penalties for breaking confidentiality conflict between professional’s duty to patient vs need to safeguard family and other carers

7. www.carers.org www.youngcarers.net © Carers Trust Experience of Confidentiality Practice and Training in your area? Good practice?

8. www.carers.org www.youngcarers.net © Carers Trust Why Share Information? 1.Helps professionals keep in touch with situation & gain greater understanding of support available to service user and family 2.Helps promote service users’ recovery by helping carers provide more consistent and informed care 3.Helps support carers’ own needs – especially useful for GP surgeries – may prevent crisis. Great - but the question remains how to do this…

9. www.carers.org www.youngcarers.net © Carers Trust Confidentiality: Limits and Exceptions Confidentiality is:  not an absolute right,  not an absolute duty, situational “The principle of confidentiality may operate to limit the information, about the user, which the professionals can divulge.”[1][1]

10. www.carers.org www.youngcarers.net © Carers Trust Limits of the Concept (Machin) Service user cannot prohibit professional from engaging with carer – info, advice, etc. as long as no confidential information disclosed Service user cannot prohibit professional from receiving information from the carer Professional can talk to carer about facts the carer already knows Confidential information can be disclosed with service users’ consent 1-3 about non-confidential information, 4 is about confidential information.

11. www.carers.org www.youngcarers.net © Carers Trust Exceptions to the Concept Lawful breaches of confidence:  Disclosure in the Public Interest  Team Working: the “need to know”  For the benefit of a user incapable of consenting to disclosure

12. www.carers.org www.youngcarers.net © Carers Trust Useful Resources Partners in Care – www.partnersincare.co.uk Triangle of Care Virtual Ward - http://www.rcn.org.uk/development/mental_health_virtual_ ward/triangle_of_care

13. www.carers.org www.youngcarers.net Carers Trust is a registered charity in England and Wales (1145181) and in Scotland (SC042870). Registered as a company limited by guarantee in England and Wales No. 7697170. Registered office: 32–36 Loman Street, London SE1 0EH. © Carers Trust Thank you Follow us on twitter @CarersTweets Like us on Facebook Ruth Hannan Email: rhannan@carers.org Telephone: 0161 864 3003