1. Anita MacDonald

2. Liquid protein substitute

3. substitute

4. substitute Naff

6. Problems  preparation time  need water  dirty containers

7. too much effort

8. makes people look different look different

9. New liquid protein substitute  Cooler  130 ml pouches  > 8 years  average dose: 4 pouches daily

10. How good is liquid Cooler?  do people prefer it?  does it affect blood phenylalanine control?  is it easier than powder?  are people embarrassed when taking it?

11. Who did we study?  26 people  aged: 8y – 49y  14 female  12 male  most took PKU Express powder

12. What did we do?  3 parts: 6 weeks  compared liquid protein substitute with powdered equivalent

13. Part 1/2 2 weeks

14. Part 1/2

15. Part 3 2 weeks

16. What did we study?  preference  wastage  self consciousness  phenylalanine levels

17. Evaluation

18. % of either product chosen in part 3 Subjects % Liquid Powder

19. p=0.027 Blood phenylalanine control

20. Subjects % % Wastagep=0.001

21. % 92 38 How easy was it to take? liquid powder p<0.001

22. Feeling self conscious % liquid powder 50 21 25 No self consciousness on liquid but with powder on liquid but with powder No self consciousness on either on either Self conscious on both p=0.003

23. Liquid  more convenient: p=0.002  easier to take outside the home: p=0.001

24. Friends don’t notice! less bullying at school Don’t need to hide in toilet friends say powder is like sick

25. Conclusions Liquid Cooler  popular  easy  convenient

26. Conclusions Liquid Cooler   popular   easy   convenient It rocks! !

28. Cooking 4 Fun

29. lovedfajitas Helped me try new things new things Other children watch….and want to make things Easy and simple …loves making Rainbow drops