1. Regional & National Context Rebecca Campbell Yorkshire & the Humber Renal Network Manager 15 th June 2011

2. Patients & Carers 1828 patients on unit-based haemodialysis Varied experiences: ‘First class’ ‘I believe the service does the best it can with the available resources.’ ‘3 hours is too long to get home after dialysis!’ ‘On one day I was waiting for transport since 6.45am and was picked up at 9.45am!’ York Patient Transport Service Questionnaire 2010

3. Commissioning From 1 st April 2010 responsibility for commissioning PTS transferred to PCTs Four areas in Yorkshire & the Humber: West Yorkshire North Yorkshire Hull & East Yorkshire South Yorkshire

4. Renal Units 6 Main Renal Units Bradford, Doncaster, Hull, Leeds, Sheffield & York 20 satellite units 9 run by Independent Sector Providers

5. PTS Providers City Taxis East Midlands Ambulance Service First4Care Metcare Premier Care Direct Yorkshire Ambulance Service Plus – Personal Health Budgets (PHB)

6. PHB Department of Health Pilot for Renal Transport for Haemodialysis Patients hold their own budget to spend on transport to & from the unit Currently 4 patients at the Barnsley Renal Unit (satellite of Sheffield Teaching Hospitals) Subject to formal evaluation Scope to develop further

7. Renal Strategy Yorkshire & the Humber Renal Services Strategy 2009-2014 objective: ‘To ensure that there is equitable, reliable and effective patient transport for renal haemodialysis patients’ www.yhscg.nhs.uk/service-strategy.htm

8. National Guidance NSF for Renal Services (2004): ‘Adequate transport is so important to people on haemodialysis that it plays a vital role in the formation of patient views and attitudes towards dialysis. Good transport systems can improve patient attendance and shorter travel times can improve patient cooperation if dialysis treatment frequency needs to be increased. Efficient transport facilities reduce interruption to patients’ social lives and may therefore improve their quality of life’. UK Renal Association Guidelines: the wait for collection to or from the unit or travel time to the dialysis unit should not exceed 30 minutes.

9. National Audit National Kidney Care Audit – Patient Transport Surveys 2008 & 2010 www.ic.nhs.uk/kidneycareaudit NHS Kidney Care E-Seminar: 16 th June 2011 1130 www.kidneycare.nhs.uk/Eseminars.aspx

10. Key Findings 78% of all patients either claim back the cost of their journey or do not pay at all 76% of patients on hospital arranged transport waited 30 minutes or less to be picked up on their way to dialysis 68% of all patients had a travelling time of 30 minutes or less to get to their dialysis unit

11. Key Findings 75% of all patients waited 30 minutes or less at the unit for dialysis to commence 66% of patients on hospital arranged transport waited 30 minutes or less to be picked up for the return journey after dialysis 88% of all patients said that the transport they used either met their needs all or most of the time

12. ‘I look forward to seeing transport on the agenda of every kidney care network, on seeing ownership of the issue and working together to see what improvements we can make for patients.’ Dr Donal O’Donoghue, National Clinical Director for Kidney Care http://renaltsar.blogspot.com/