1. Celiac Disease : Building Community Awareness Compiled by Jane Marler

2. What is Celiac Disease? 4 Genetic digestive disorder caused by an allergy to protein fractions in certain grains. –Wheat –Rye –Barley

3. Damage Caused by Gluten 4 Allergic reaction to proteins leads to damage of the intestinal mucosal lining.

4. Consequences of Damage 4 Osteoporosis 4 Anemia 4 Cancer 4 Lactose Intolerance 4 Multiple Sclerosis 4 Rheumatoid Arthritis 4 Diabetes

5. How Common is Celiac Disease? 4 1/133 have the disease. 4 Only 1/2,500 have been diagnosed in the U.S. 4 1/22 with celiacs in their family have the disease.

6. Do You Think You Might Have Celiac Disease? 4 Symptoms: –Bumpy rash –Weight loss and gain –Diarrhea –Bloating –Constipation –Fatigue –Weakened bones –Muscle cramps –Depression

7. How is Celiac Disease Diagnosed? 4 Available Blood Tests: –Anti-Gliadin Antibodies –Endomysium Antibody –Tissue Transglutaminase Antibody –Genetic indicator 4 Final Indicator: –Upper Endoscopy

8. Is there a cure? 4 Stop consumption of gluten. –Wheat –Rye –Barley –Oats* 4 What do gluten-containing foods provide? –Fiber –Protein –Vitamins –Iron –Zinc 4 How do you replace the nutrients lost? –Fruits –Vegetables –Dairy –Nuts –Alternative flours and cereals –Daily vitamins * In North America, oats can be cross-contaminated with dangerous grains.

9. Where is Gluten? 4 Wheat –Wheat Bran –Wheat Starch –Kamut –Spelt –Triticale 4 Barley –Malt –Malt Extract –Malt Flavoring 4 Rye 4 Oats –Oat Syrup –Oat Bran 4 Bulgur 4 Couscous 4 Cereal Binding 4 Semolina 4 Graham Flour

10. Ingredients to Look Out for 4 Hydrolyzed Plant or Vegetable Protein 4 Seasonings 4 Flavorings 4 Starches 4 Modified Food Starches 4 Dextrin 4 Maltodextrin T Be sure to watch out for questionable ingredients not only in foods but also in medicines.

11. Eating Gluten-Free Breads, Cereals, Rice and Pasta: 4 Amaranth 4 Arrowroot 4 Buckwheat 4 Cornmeal 4 Corn Flour 4 Flax Seed 4 Garbanzo 4 Garfava 4 Potato Starch 4 Rice 4 Soy 4 Millet 4 Sorghum 4 Tapioca 4 Quinoa 4 Teff 4 Breads, cereals, and pastas made with gluten- free products.

12. Fruits and Vegetables 4 Apples 4 Grapefruit 4 Oranges 4 Bananas 4 Grapes 4 Pears 4 Peaches 4 Strawberries 4 Blackberries 4 Spinach 4 Celery 4 Potatoes 4 Onions 4 Squash 4 Cucumber 4 Carrots 4 Peppers 4 All unbreaded vegetables

13. Meats, Poultry, Fish, Dry Beans Eggs, and Nuts 4 Eggs 4 Turkey 4 Chicken 4 Tuna 4 Beef 4 Peanut Butter 4 Soybeans 4 Kidney beans 4 Lentils

14. Milk, Yogurt, and Cheese 4 Milk 4 Cheeses 4 Yogurt 4 Cream 4 Watch out for additives.

15. Fats, Oils, and Sweets 4 Butter 4 Ice Cream 4 Honey 4 Jams and Jellies 4 Chocolate 4 Soft Drinks  Salad Dressing

16. Daily Meal Options: Day 1 4 Breakfast: GF cereal, fresh fruit, and a glass of orange juice or milk. 4 Lunch: GF bread with turkey and cheese, corn chips, and an apple. 4 Snack: Yogurt. 4 Dinner: GF Homemade Macaroni and Cheese, steamed carrots, and a fresh fruit salad.

17. Day 2  B: GF waffles or pancakes with eggs and bacon. 4 L: GF crackers with cheese or hummus, yogurt, and rice cakes with peanut butter. 4 S: Peanuts, almonds, or unseasoned soy nuts. 4 D: GF pizza with a fresh salad.

18. Day 3 4 B: Fresh fruit smoothie.  L: Baked potato with cheese or butter and a fresh salad with green peppers and tomatoes. 4 S: Rice cake with peanut butter. 4 D: Grilled chicken, brown rice, steamed broccoli, and GF rolls.

19. Day 4 4 B: GF toast with peanut butter and a bowl of yogurt.  L: Fresh fruit salad and rice with chicken. 4 S: Popcorn. 4 D: Mashed potatoes, pork chops, GF bread, and a fresh fruit salad.

20. Getting Started 4 Begin a gluten-free environment. 4 Buy flour mixes, cereals, breads –First Alternative Natural Foods Co-op –Fred Meyer –Bob’s Red Mill Natural Foods, Inc. –Trader Joe’s 4 Always check labels 4 Call or email if ingredients are questionable 4 Find support in a fellow celiac or group 4 Use resources

21. Celiac Resources Organizations/Websites: 4 Celiac Disease Foundation 4 Celiac Sprue Association/USA, Inc. 4 Gluten Intolerance Group of North America 4 Canadian Celiac Association Magazines: 4 Gluten-Free Living 4 Living Without Books: 4 Dangerous Grains by James Braly and Ron Hoggan 4 Waiter, Is there Wheat in My Soup? by LynnRae Ries Cookbooks: 4 Gluten-Free Diet: A Comprehensive Resource Guide by Shelley Case 4 Gluten-Free Baking by Rebecca Reilly 4 Wheat-Free Recipes & Menus by Carol Fenster 4 The Gluten-Free Gourmet: Cooks Fast and Healthy by Bette Hagman

22. What should you do in these situations? School

23. Friends’ houses

24. Family gatherings

25. Restaurants

26. Tips for Life as a Celiac Always question.

27. Remember: C ontent C ontact C ontamination !

28. View life as a new normal and find a positive aspect.

29. What does the future hold? 4 Food Allergen Labeling and Consumer Protection Act 4 Vaccine 4 Medication 4 Primitive wheat 4 Research

30. Questions?