1. Anita MacDonald

2. Home Delivery of Dietary Products in PKU and other IMD in PKU and other IMD

3.  Have you ever been given the wrong protein substitute?

4.   Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?

5.   Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?

6.   Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?   Do you have to collect your protein substitute from your chemist?

7.   Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?   Do you have to collect your protein substitute from your chemist   Do you ever worry about obtaining your protein substitute?

8.   Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?   Do you have to collect your protein substitute from your chemist   Do you ever worry about obtaining your protein substitute?

9. Home delivery service - organise prescriptions - dispense special feeds - home deliver

10. How did we do the study?   duration: 1 year   2 groups: home delivery control n=30 n=32

11. Home delivery service   essential dietary products   specialist training given to home-delivery team   monthly stock levels agreed   organised GP prescriptions   monthly phone checks with patients/parents

12. Home delivery service   products picked by trained warehouse team   dispensed by pharmacist   delivered to patients/parents home at standard times monthly

13. What did we compare?   mistakes   delays in receiving products   metabolic control   user satisfaction

14. Evaluation

15. Safety number of problems 1 1 12 15 p<0.05 p<0.05

16. Delayed receipt of products home delivery control number of problems p<0.05

17.   control: 31% waited 1-2 weeks for protein substitutes   problems: - low stock levels - lost prescriptions - lack of product supply - repeated errors Delayed receipt of products

18. Blood phenylalanine control

19. User satisfaction % 100 97 63 72 53

20. saves time and never run out of products stress free service. Don’t know what we would do without it now…… made life easier pleased with service… chemist is a nightmare -home delivery is a far better option

21. Conclusions Home delivery service of protein substitutes:   safer than conventional system   reliable   possibly associated with better metabolic control   popular