1. Dialysis Patient Needs In A Disaster List information On your local / regional meeting And your presenters In this space

2. What is Dialysis? Dialysis is a medical treatment for people who have kidney failure. Dialysis patients come into a dialysis center three times a week to have the impurities cleaned out of the blood stream. Large needles are placed in a special access in the patient’s arm. Blood is pumped out of their body, cleaned, and then pumped back in.

3. Dialysis Facilities Dialysis facilities are very dependent on electricity and water for their operations. They cannot operate without the required utilities. The nurses and technicians that perform the dialysis treatment have had specialized training.

4. Facility Disaster Preparation Develop individual facility disaster plan Build relationship with utility representatives Build relationship with local disaster planners Educate the staff and patients on disaster plan

5. Facility Disaster Preparation Secure the dialysis facility Secure equipment to minimize potential harm to persons or property Secure medical records Secure business records

6. Emergency evacuation “Clamp and Cut” procedure to get off the dialysis machine quickly (leaves about 1 cup of blood behind) Designated gathering place Emergency evacuation box should have needed supplies for removing needles, etc.

7. The Patient Connection to the Dialysis Unit Patients receive life sustaining treatment Spend a minimum of 15 hours a week at the dialysis unit Have a close connection to staff and other patients Feel the unit is a home away from home

8. Home Dialysis Patients Home hemodialysis patients have treatment at their homes 3 to 6 times per week Difficult to take a hemodialysis machine and supplies with them in an evacuation Will have the same needs as a hemodialysis clinic patient

9. Home Dialysis Patients Peritoneal dialysis patients perform treatment at home Can be done away from home Some patients will be able to take supplies with them and perform treatments away from home Greatest need will be a continuing source of supplies

10. Dialysis is a Necessity not an Option Patients will become critically ill and perish without treatment This is basic life support that becomes more important than anything else during a disaster

11. Patient Concerns if Treatment is Interrupted by a Disaster Heightened sense of fear and confusion May be physically weak, dizzy, disoriented May have just begun treatment at time of disaster and will be concerned about next treatment

12. Issues in Disasters Many dialysis facilities may be inoperable Patients can be scattered in the evacuation. Utilities and supplies can be scarce Local communication can be disrupted.

13. The Color Purple Purple has been designated the official color of the Kidney Community in a disaster We are encouraging the use of purple arm bands, wallet cards and signs for car windows to help identify kidney patients Local Emergency Planners need to be aware of this, so that they recognize the significance of the color purple Thanks to TEEC, the Texas ESRD Emergency Coalition for developing this concept.

14. Needs of Patients in a Regional Disaster Priority will be to find and receive treatment Patients should have some disaster preparation As a group, they will be weaker and sicker than the average person

15. Patient Disaster Preparation Patients should be provided educational guides on surviving a disaster, such as those created by CMS and the National Kidney Foundation The information in these manuals is general and will not work for every patient in every situation Information includes: Preparing for an emergency, gathering important medical info, alternative arrangements for treatment, emergency supplies, diet, disinfecting water Dialysis providers should provide additional patient education regarding their emergency plan

16. Patient Disaster Preparation Unless they are told to evacuate, patients are instructed to stay at home as long as it is safe to do so Patients should take emergency supplies with them, as listed in these manuals Start the emergency/disaster diet (sometimes called the three day diet) immediately If patients must go to a shelter, to inform the person in charge of their special needs

17. Dialysis Patient Special Needs During a Disaster INFORMATION! Greatest fear will be where and when will they receive treatment Will want to know who is in charge Will need to be reassured that their needs are understood

18. Dialysis Patient Special Needs During a Disaster - Diet Special diet reduces protein and potassium Sodium restriction is very important Patient disaster manuals have detailed meal plans included

19. Dialysis Patient Special Needs During a Disaster – Fluid Restriction Fluid Restriction will be a primary concern in patient survival Fluid overload is a major threat to health that will lead to death if dialysis treatment is not received Fluid intake guidelines are included in the patient survival manuals

20. Thank You! Questions?

21. Links www.ersdncc.org www.kidney.org/help www.kcercoalition.com CMS Disclaimer: This presentation was developed by Northwest Renal Network while under contract with the Centers for Medicare and Medicaid Services, Baltimore, MD, contract # HHSM-500-2006-NW016C. The contents presented do not necessarily reflect CMS Policy Special Thanks to ESRD Network 16 for Developing This Resource! www.nwrenalnetwork.org Linda Ball, QI Director Jim Curtis, QI Consultant (Feel free to modify this presentation as needed)