1. Disability Inclusion Webinar
Wednesday 20 November

2. Introductions Karen Stephenson, Fund Director, UK Aid Direct
Susan Pieri, SightSavers
Sudarshan Neupane, Humanity & Inclusion
Ruby Holmes, Humanity & Inclusion
Alex Mindel, Sense International
PHASE Worldwide – UKAD 2

3. Sightsavers International
Our approach to disability inclusive development

4. What does mainstreaming disability inclusion mean for us?
Sightsavers’ Twin-Track Approach
Designing interventions targeted towards the economic empowerment and political participation of people with disabilities
Mainstreaming disability into our programmes.
Inclusive Eye Health
Neglected Tropical Diseases
Inclusive Education
Making sure that people with disabilities are included and have the same rights and same access to services as non disabled people. 

5. Inclusive Eye Health
Based on the WHO health system building blocks, we ensure that every aspect of the health system is inclusive for people with disabilities
UK Aid Match helped us to test and replicate inclusive eye health models
Free eye testing camp site at Kurigram in Rangpur
Sightsavers PowerPoint template

6. Our approach to inclusive eye health
Training sessions and sensitisation activities for health workers at all levels
Conducting accessibility audits in partnership with local stakeholders
Capacity building of disabled peoples organisations (DPOs)
Meaningful engagement DPOs in project design and implementation
Participatory patient feedback mechanisms
Monitoring progress by collecting and analysing data disaggregated by age, gender, disability, location
Sightsavers PowerPoint template

7. Ensuring inclusivity in NTD projects
We focus on Gender & Disability Inclusion
Sightsavers undertakes mixed-methods surveys to identify
how NTD projects address currently key gender and disability issues such as stigma and discrimination
Understanding existing barriers for participation of marginalised groups and how to remove them
Ensuring in consortium work that people with disabilities are represented in surveys, consultation and decision-making processes
Learnings inform DFID-funded ASCEND programme
Sightsavers PowerPoint template

8. Inclusive Education
Our approach strengthens educational systems to improve teaching practices, promotes assistive technologies and improves school accessibility and community sensitisation beyond the classroom in Sierra Leone, Malawi, Uganda, and Mali
EU-funded Education for All – Sierra Leone
Leave No Child Behind - Malawi
Primary School Teacher Training in Uganda
Sightsavers PowerPoint template

9. How we improve our programmes
We monitor progress through the collection and analysis of data disaggregated by age, gender, location and disability using the Washington Group Short Set of Questions (WGSS)
Involving women and men with disabilities in the design, implementation and monitoring of activities
Identifying barriers for accessing health services in partnership with DPOs
Continuous monitoring, evaluation and learning
Evidence, data and consultations guide our programmes

10. Taking the learnings forward
We incorporate evidence and learnings into our programmes for example
Recruitment of more women as TT case finders
We share the learning and experiences with partner organisation and within the development sector
Inclusive health for everyone in India and Mozambique
Mali country office staff in partner meeting

11. Our challenges in projects
Understanding the challenges and frustrations of people living with disabilities
Ensuring the active participation of people with disabilities in project design and implementation
Advocating for participation in consultation and decision making
Building capacity among our partners if needed
Juthika, Ranu and Hanufa in their workshop in Bangladesh
Sightsavers PowerPoint template

12. Our challenges in projects
Filling the research gap
As an awarded International Research Organisation we…
test and replicate innovative approaches
build the evidence base by producing high-quality research
collect, use and share disability disaggregated data
Disseminating evidence
Collaborating with International Development Alliance (IDA) to document learning
Sharing our experiences with development agents to ethically collect, use and integrate data into development programmes
Sightsavers PowerPoint template

13. What we do to become more inclusive
Wellbeing taskforce and Mental Health First Aiders
Training on social inclusion
Ensuring that all colleagues with disabilities get the support they need
Internationally recognised speakers programme
Goal to become an accredited Level 3 Disability Confident employer
Sharing learnings with other international organisations
Our goal is to become a employer of choice for talented candidates with disabilities
Sightsavers PowerPoint template

14. Thank you
For more information: Visit:

15. The role of disability data for donors
19 November 2019
Karen Stephenson
MannionDaniels
Sarah

16. What is driving the donors?
Most of us have experience with DFID
Equally applies to other bi-lateral donors
Donors driven by their commitments:
To support the SDGs
To demonstrate their manifesto commitments
To meet their spending commitments 0.7%
Single Departmental Plan (DFID)
Multilaterals:
To support the SDGs
To enact the CRPD
Individual agencies with differing agendas
Commonalities – all need evidence to demonstrate how they are meeting their commitments

17. What do they want to see?
Want to see evidence of success in driving inclusivity
Move away from catch-all declarations of ‘reaching the most vulnerable and marginalised’
Want to see value for money
Want disability inclusion to be mainstreamed – a change in ways of working
Want to see systemic change
Want to influence at the global level

18. DFID’s Disability Inclusion Strategy
‘Reliable and comparable data and high-quality research..’
‘Understanding who is poor and excluded, where and why, and the most effective policies for reducing poverty, inequality and discrimination in different contexts, is critical to guide action, monitor progress and for accountability.’
‘..combined with evidence from programme monitoring and evaluation, will allow us to better identify what does and does not work for people with disabilities in a diverse spectrum of settings. This requires strengthened data, disaggregated by disability as the Inclusive Data Charter recognises, alongside sex- and age-disaggregated data. It will also be important to collect clear and structured information on the costs..’
‘..what works at a programmatic level, building a rigorous global evidence base’
‘..to identify the most effective disability inclusive.. ‘
‘..ensure that spending - by governments, NGOs and donors – is spent equitably and will have the greatest possible impact on the lives of all people with disabilities.’

19. What do we need to see?
We need to see well designed projects that have disability inclusion at their core
We want to see an analysis of the barriers to inclusion and how they can be addressed
We want to see clearly defined targeting strategies that show how organisations are identifying those with disabilities in their beneficiary communities.
We want to see how organisations are consulting with communities before projects are designed to understand what the constraints are to inclusion
In order to do all this organisations need to know baselines at the community level
Photo credit: CBM UK, UK Aid Match grant holders

20. What do we want to see in reporting?
How do you know it works?
We need to see evidence of what works and how people’s lives are changing
We need to see evidence of the numbers of PWD who are benefitting from projects
We need to see evidence of how they are benefitting
We need to see evidence of what has changed
This means disaggregating data at all stages of the reporting process
More rigorous data analysis and then responding to the findings
Value for money analysis that looks further than the cost per beneficiary – added value, long-term impact
Photo credit: Sense International, UK Aid Match grant holders

21. Experiences from the field
Sudarshan Neupane
Technical Unit Coordinator – Bangladesh Mission

22. Questions for HI
Q1: How easy is it to build in the Washington Group Questions into routine baselines and surveys? – HI Q2: How and why should you work with disable people’s organisations (DPOs)? – HI

23. Use of Washington Group Questions in Surveys
11/10/2017
Use of Washington Group Questions in Surveys
Piloted with the NARI consortium (Regional Disaster Risk Reduction project) in 2014 in Bangladesh (WG Short Set questions)
Rapid Assessment of Disability using the WG different sets in (case example in the next slides)
Baseline of UK Aid Direct funded Disability Inclusive Poverty Graduation project in 2018
Randomized Control Trail (RCT) study of the UK Aid Direct project’s treatment and control areas in Ulipur and Rajarhat areas
Women Integrated Sexual Health Rights, Inclusive Sports for Development + Humanitarian response programs in Cox’s Bazar using different forms of WG Questions in baseline surveys, barriers and facilitators assessment and other routine surveys

24. Rapid Assessment of Disability (RAD) Survey, HI Bangladesh
Project Name: Towards Global Health: Strengthening the rehabilitation sector through civil society Collaborative Partner: Bangladesh Bureau of Statistics (BBS), Government of Bangladesh and Disabled People’s Organizations (DPOs) Research Partner: Nossal Institute for Global Health, Melbourne University, Australia Population: 6,752 individuals from Kurigram and Narsingdi Districts distributed by 3 age groups (2-4, 5-17 and =/>18) The survey tools used were: 1. The Washington Group Short Set questions (=/>18) 2. UNICEF/WG Module (2-4, 5-17 age) for Child Functioning and Disability

25. Key findings from the RAD survey
Using UNICEF/WG Module (2-17) for Child Functioning and Disability, the prevalence for Children was 1.7% and 1.1% among 2-4 years age and 1.9% and 1.2% among 5-17 years age group in Kurigram and Narsingdi respectively
Using WG Short Set questions, the prevalence for adults was 4.4% in Kurigram and 4.0% in Narsingdi
The most commonly reported difficulties were Psychological distress and mobility difficulties among adults and self-care and mobility difficulties among children
Over 50% respondents in Kurigram and 30% in Narsingdi who reported either sensory, physical, communication or cognitive difficulties also reported psychological distress (links with Poverty, disaster, access to essential services)

26. WG short set questions adaptation/clarifications
HI Bangladesh adapted the questions for the better understanding the questions and smooth data collection. Comprise probe questions prior the main questions, like:
Do you wear glass? (Yes/ No) if yes
If Yes, Have you had difficulties SEEING, even if wearing glasses?
If No, Have you had difficulties SEEING?
Challenges to identify some actual limitations- i.e. speech related
More explanation is required on options 2 -3 (some difficulty and a lot of difficulty)
Autism, down syndrome and other types may be difficult in the identification
The WG-SS is a diagnostic tool: FALSE
The WG-SS only serves to measure the prevalence of disability in a project: FALSE
The WG-SS is a targeting tool: FALSE

27. Lessons learned from implementing the WGQ embedded Survey
Intensive training is required for Data Enumerators on Disability, WG questions, assistive products, interview techniques
Using Tablet/ Android phone for data collecting through ODK optimizes efficiency and minimizes data errors
Since it is subjective assessment (self functioning), the result depends on users’ awareness and understanding on functioning. For example, older persons and parents of young children might consider the level of difficulties is ‘normal’ to their age

28. Lessons learned from training consortium members on WGQs
Training offered an opportunity to discuss key challenges and solutions + how to use data
Good entry point for discussing disability inclusion more broadly with partners
Staff responded really well to exercises practicing do’s and don’ts for WGQs
Availability of training pack and tools as e-learning in English is helpful
Coaching, role play and on-site support is necessary for effective use of WGQs

29. Success stories on the use of WGQs
Bangladesh Bureau of Statistics is using them in other national surveys and follow up study is being planned to understand other associated unmet needs of people with disabilities
Different development and humanitarian organizations (BRAC, Save the Children, ACF, WFP, Oxfam, Solidarity, others) have requested for the training, some of these organizations are already using it in their programs.
Training pack shared to our consortium partners, as well as through Age and Disability Task Force – who are lobbying to use them in the broader registration/identification forms
Credible information to the government and other development agencies as they have heard of this
Even all NGOs have started using the questions – have you used Washington questions

30. Working with Organizaitons of Persons with Disabilities (DPOs/OPDs)
11/10/2017
Working with Organizaitons of Persons with Disabilities (DPOs/OPDs)

31. DPOs as active partners
DPOs are organizations led and controlled by persons with disabilities. Typical actions are capacity building, empowerment, advocacy, information provision and monitoring
They are the rights bearers who have the mandate to represent the interests of persons with disabilities towards obligation holders (decision makers and service providers)
They must be included into coordination mechanisms in local development dynamics related to advocacy, the CRPD, SDGs, CBID and more

32. Community to national level
11/10/2017
How HI works with DPOs
International stakeholders (i.e. donors, agencies, DPOs)
Building capacity of DPOs in regard of inclusive CRPD compliant policies
Supporting engagement
of DPOs in inclusive services
Obligation bearers: Decision makers
Ensure that coordination
is participatory, accessible and respects the diversity of disability
Support DPOs in advocacy
Toward decision in
regard CBID
A coordination
Mechanism from
Community to national level
Right Holders: Persons with Disabilities and their organizations
Service Providers (Public and private)
Support to DPOs

33. Advantages of partnering with DPOs from Bangladesh & Nepal experience
Compliance with national and international Disability Acts and Policies (Disability Act, UNCRPD etc.)
Pathways for inclusive and sustainable development: Collaborate with them in raising local and national level advocacy issues (Nothing about them without them)
Local level platform for people with disabilities to access their rights – rights-based approach
Sensitization to government, NGOs and private sectors becomes very effective when collaborating with DPOs
Continuation of activities after a project comes to an end

34. Lessons learned
Engage right from the designing of the project (not just in the implementation of some activities)
Invest in DPOs’ capacity building and institutional development (leadership, internal governance system, quality of work)
Develop DPOs as the resource organizations and service providers on specific needs of persons with disabilities in the working areas
Long-term strategic partnerships with DPOs and their federations for sustainable interventions

35. Example of Disabled Empowerment and Communication Center (DEC-Nepal)
DEC-Nepal is a non-governmental community based organisation running by and for persons with disabilities; Established in 2007 in Banke district, it is registered with Social Welfare Council, National Federation of the Disabled-Nepal (NFDN); NGO federation and CBR National network
DEC-Nepal has been working with various partners in four key strategy areas: Advocacy, Awareness Raising, Networking and Capacity building and Service Delivery
Partnering with HI Nepal since 2013 for implementing inclusive livelihoods, inclusive education, disaster risk management projects
DEC-Nepal works alongside the local and national government championing disability inclusive development processes
Bagged international award from Zero Project: Innovative Practice on Independent Living and Political Participation (available at

36. Thanks a lot for your time and kind attention!!
If you are interested to know more or have any questions please feel free to reach out.
I can also be reached at

37. Disability inclusive value for money (Excerpts from Bond VFM paper)
Karen Stephenson
MannionDaniels
Sarah

38. Myth busting Assumptions are:
that value for money is only about the cost per beneficiary
that DFID want organisations to reach as many beneficiaries as possible
that DFID want organisations to have low costs
that vfm and inclusion are perceived to be in conflict

39. Importance of inclusion
‘..ensure that spending - by governments, NGOs and donors – is spent equitably and will have the greatest possible impact on the lives of all people with disabilities.’
DFID’s Disability Inclusion Strategy
VfM is often interpreted or implemented in a narrow way, and incorrectly equates the best impact with the one that reaches the most people for the lowest cost.
This negatively impacts on those who are most marginalised, including people with disabilities who may be harder and more expensive to reach.
Those who have complex needs (such as deafblindness) or experience multiple intersecting inequalities (for example women with disabilities) are particularly likely to be excluded.

40. Why should you be inclusive?
Donors also have an obligation to ensure that development and humanitarian programmes are inclusive of and accessible to people with disabilities under the UN Convention on the Rights of Persons with Disabilities (CRPD).
Social and human rights – social, environmental and discriminatory attitudes lead to further marginalisation and further poverty
Economic case – substantial economic benefits to individuals, families and social cohesion. Benefits far outweigh the costs
Can’t be considered to represent good value for money if not equitable.
UK Aid Match grant holder: Amnesty/AMNET

41. How do you incorporate it?
Maximising the impact of every pound spent to improve the lives of the most vulnerable and marginalised.
4 Es including equity – it is not an add on
Equity should not be seen as undermining the other areas of VfM, even if it results in higher costs per beneficiary, or fewer beneficiaries for a given cost.
These additional costs are not wasted if they are necessary to reach those who are most marginalised; in fact the opposite is true – they are necessary to maximise the effectiveness of an intervention
Ensure the voices of those affected are heard in the project design and evaluation processes.

42. Please refer to Bond’s paper
More details
Please refer to Bond’s paper
Leaving no one behind: The value for money of disability-inclusive development
documents/leaving_no_one_behind_the_value_for_money_of_disa bility-inclusive_development.pdf

43. QA from participants

44. Digital accessibility

45. What it is and why is it important?
Digital accessibility is making your website or content accessible to all, regardless of age or ability.
1 in 5 people in the UK report having a disability
49% mobility related
20% mental health related
14% hearing impaired
12% vision impaired
We have an ageing population who require more accessible sites.
The UK government brought in legislation in requiring all public sector body websites to be accessible by September 2020.
4 in 10 local council homepages failed basic tests for accessibility.
When putting together your website or creating online content, do you take into account users with physical, cognitive, hearing or vision access issues?

46. Hearing and cognitive Cognitive
Are layouts simple and follow a logical sequence? Is text broken down into manageable chunks?
Do you have any flickering or moving images?
Are acronyms explained?
Use san serif font and do not use italics at 12pt.
Hearing
Caption all video content – make sure font is big enough, contrast in colours.
Open captions vs closed captions.

47. Vision and physical Vision
Alt text for images – you can do this on Twitter
Check headings (Ins+F5) and links (Ins+F7) are logical
Contrast in colours used
Audio description on video content
Physical
Can you tab through the site and can you see where you are on the site as you navigate?
Are buttons big enough?

48. Useful resources Gov.uk guidance on accessibility
Web Content Accessibility Guidelines 2.1 – universal guidelines for creating more accessible websites. The criteria that government websites are measured against.
Introduction to digital accessibility
NVDA – free screen reader technology
Colour contrast analyser – to check if contrast between items is clear enough