1.  FGMToolkit.gwu.edu A living virtual toolkit for the care and prevention of FGM/C for women and health care providers
August 28, 2019

2. Acknowledgements
We are grateful for the FGM/C prevention funding and support from the Department of Health & Human Services, Office on Women’s Health.
We are indebted to all the women, health care providers, and experts that participated in and supported the development and testing phases of the educational toolkits.
Our toolkits would not have been possible without the dedicated research team and staff at GWU and our community partner, RAHMA.

3. Presentation Overview
Project Overview
Phase 1: Development
Educational Toolkits Demonstration
Phase 2: Alpha Testing
Phase 3: Beta Testing

4. Project Overview

5. Project Aims
Describe the experiences and resulting service needs of women who have undergone FGM/C.
Describe the services rendered by direct service providers currently assisting women who have experienced FGM/C.
Determine direct service providers' challenges in working with women who have experienced FGM/C.
Describe the perceptions and experiences of direct service providers to meet the health and social service needs of FGM/C survivors and young females at risk for FGM/C.
Develop and evaluate a toolkit for health care and social service providers (HCP) to effectively communicate with women who have experienced FGM/C and young females at risk for FGM/C.

6. Continuous quality improvement & content management
Toolkit Progress
25 HCP interviews
26 FGM/C survivor interviews
12 key informant survey and interviews with HCPs and FGM/C survivors
Phase 1: Development
Phase 2: Alpha Testing
Phase 3: Beta Testing
51 HCP surveys
156 Women surveys
Website development
Continuous quality improvement & content management

7. Phase 1: Toolkit Development

8. Toolkit development Up-to-date and evidence-based content
Factsheet with general FGM/C information
Screening forms for HCPs to use in practice
D.C. specific resources for FGM/C survivors
Diverse content types including videos
Case studies and survivor stories

9. Two Educational Toolkits

10. Phase 2: Alpha Testing

11. Alpha testing
Participants: 12 key informants from DMV area – FGM/C survivors and health services providers
Format: survey and follow-up interviews
Topics:
Overall toolkit content
Participant knowledge and awareness
Clarity of information
Toolkit usability
Submenu design and integration
Cultural sensitivity

12. Alpha Testing - Results
Results were mainly positive with a few suggestions for improvements (i.e. videos, DC resources, general formatting)
On a scale from 1 (lowest) to 10 (highest), all submenu pages on the HCP and Women’s toolkits averaged 9+ in terms of:
ease of understanding and clarity of information presented.
how easy and pleasant each submenu is to use.
whether the submenu provides the features the participant thought they would need or would use.

13. Alpha testing - Results
"Because of the FGM I have to constantly take medicines because of infections [UTI]. I don't have a doctor here [DC]. I was looking for a doctor when I was asked to look at the toolkit. I now have a doctor and I have my medicine so I'm not in pain. I can't thank this toolkit enough for helping me to find what I needed.”
- Survivor
"Clear layout, excellent design/branding. Easy to navigate”
– Health care provider
"Impressed with the simplicity and 'user friendly’ [women’s] toolkit. The videos that allowed the user to hear from victims are very good.
- Survivor

14. Beta Testing

15. Beta Testing - Overview
Knowledge and Awareness
Toolkit usability
Toolkit content and navigation
Self-efficacy
Format:
Online anonymous survey
Participants:
207 women and HCPs

16. Beta Testing - Recruitment
Communities were selected due to significant immigrant and refugee populations where FGM/C is commonly practiced.
Many of the faith-based organizations also provide social and health services.
Participants were also recruited from professional networks.

17. Beta Testing- Demographics
Women (n=156)
Health Care Provider (n=51)
103 U.S. born and 53 immigrants
83 were years & 73 were years
58 participants had never heard about FGM/C before this survey
19 participants have family and/or friends who had experienced FGM/C
4 survivors of FGM/C
37 were years & 14 were years
24 clinical HCPs & 27 social services providers
42 no prior FGM/C training

18. Next Steps Data analysis in progress for beta testing survey
Continuous management and improvement to the toolkits
Official Toolkit Launch
Global Woman P.E.A.C.E Foundation’s 3rd Annual FGM/C Award Ceremony October 18, 2019

19. Thank you! Karen McDonnell, PhD kmcdonne@gwu.edu fgmtoolkit@gmail.com