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NATIONAL RETINOBLASTOMA STRATEGY GUIDELINE DEVELOPMENT

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Presentation on theme: "NATIONAL RETINOBLASTOMA STRATEGY GUIDELINE DEVELOPMENT"— Presentation transcript:

1 NATIONAL RETINOBLASTOMA STRATEGY GUIDELINE DEVELOPMENT
CO-CHAIRS Brenda Gallie & Peggy Gronsdahl GUIDELINE DEVELOPMENT PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit SECTION COMMITTEES CONCLUSIONS LW W R RETINOBLAOMA REFERAL AND CENTRES INTRODUCTION SCREENING & DIAGNOSIS GENETICS TREATMENT PSYCHOSOCIAL & ACCESS TO CARE FOLLOW-UP ORGANIZATION OF CARE FUTURE CARE & RESEARCH ADVOCACY LEAD WRITER (LW) LW LW LW LW LW LW LW LW LW Writers (W) W W W W W W W W W Reviewers (R) R R R R R R R R R ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan Sarah Johnson FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society

2 NATIONAL RETINOBLASTOMA STRATEGY Guideline Development
PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit INTRODUCTION FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation,Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITER Peggy Gronsdahl WRITERS Ian Clark REVIEWERS Elaine Bragg Brenda Gallie EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

3 REFERRAL AND RETINOBLASTOMA CENTRES
NATIONAL RETINOBLASTOMA STRATEGY Guideline Development PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit REFERRAL AND RETINOBLASTOMA CENTRES FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITERS Rosanne Superstein, April Ingram WRITERS Bill Astle, Andy Budning REVIEWERS Vasudha Erraguntla, William Halliday Ale Valenzuela EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

4 SCREENING AND DIAGNOSIS
NATIONAL RETINOBLASTOMA STRATEGY Guideline Development PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit SCREENING AND DIAGNOSIS FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITERS Elise Heon, Susan Leat WRITERS Katherine Paton, Rosanne Superstein REVIEWERS Patrick Hamel, Jo Ayers EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

5 NATIONAL RETINOBLASTOMA STRATEGY Guideline Development
PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit GENETICS FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITER Brenda Gallie WRITERS Jane Green, Johane Robitaille, Kirk Vandezande, Francois Bernier REVIEWERS Lorne Clarke, Mary Connolly-Wilson, Jeanne McKay, Katherine Paton, Joanne Sutherland EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

6 NATIONAL RETINOBLASTOMA STRATEGY Guideline Development
PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit TREATMENT FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITER Nesan Bandali WRITERS Helen Chan, Anne Sophie Carret, Vasudha Erraguntla, Ale Valenzuela Arvinder Bhal REVIEWERS Bruce Crooks, Rosanne Superstein, Jerry White, Valerie White EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

7 NATIONAL RETINOBLASTOMA STRATEGY Guideline Development
PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit FOLLOW-UP FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITER Helen Chan, Arvinder Bhal WRITERS Patrick Hamel, Elise Heon REVIEWERS Julie Gardiner, Robert LaRoche, Johane Robitaille, Caron Strahlendorf EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

8 PSYCHOSOCIAL AND ACCESS TO CARE ISSUES
NATIONAL RETINOBLASTOMA STRATEGY Guideline Development PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit PSYCHOSOCIAL AND ACCESS TO CARE ISSUES FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITER Rob Downie WRITERS Gord Hope, Laura Scott-Lane, Alissa Ulster, Sarah Johnson REVIEWERS Bill Astle, Nesan Bandali, Judith Fischer, EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

9 NATIONAL RETINOBLASTOMA STRATEGY Guideline Development
PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit ORGANIZATION OF CARE FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITER Katherine Paton WRITER Ella Bowles REVIEWERS Ian Clark, Bill Clarke, Lisa Simson EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

10 FUTURE CARE AND RESEARCH DIRECTIONS
NATIONAL RETINOBLASTOMA STRATEGY Guideline Development PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit FUTURE CARE AND RESEARCH DIRECTIONS FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITER Brenda Gallie WRITERS Bruce Crooks, April Ingram Caron Strohlendorf, Susan Leat REVIEWER Helen Chan EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

11 NATIONAL RETINOBLASTOMA STRATEGY Guideline Development
PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit ADVOCACY FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITER Bruce Crooks WRITERS Julie Gardiner, Jeanne McKay, Emma Plant REVIEWERS Peggy Gronsdahl, Gord Hope EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

12 NATIONAL RETINOBLASTOMA STRATEGY Guideline Development
PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit CONCLUSIONS FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society LEAD WRITER Emma Plant WRITER Catharine Ramsey, Peggy Gronsdahl REVIEWER Ale Valenzuela, Kirk Vandezande EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree

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