1. Debra Wheeler General Manager Yorkshire and Humber CHD Network
2018 ….where did that go ??
Debra Wheeler
General Manager
Yorkshire and Humber CHD Network

2. Engagement
Enthusiasm
Support
Ideas
Responsiveness
Saying “yes”
Commitment to improvement

3. JANUARY ACHD Nurses Education Day- January 16th Leeds
Network relaunch as an integrated CHD Network- January 26th
York

4. Outstanding Network

5. FEBRUARY
Launch of on-line National Patient Experience Survey in Level 1 Centres
6 surveys
adult inpatients
parents/carers of inpatients
adult outpatients
patients/carers of outpatients
paediatric inpatients
paediatric outpatients

6. MARCH Appointed Dr Kate English as Speciality Lead for ACHD services
Leading on ACHD strategy for the Network
Identifying link adult cardiologists across the Network
Plans to establish an outreach clinic in Bradford by Nov 2019
Training Bradford cardiologist
ACHD Educational Day arranged for May 2nd 2019

7. APRIL New style Transition Evening piloted in Leeds
Historically poor turn out
New environment, youth worker involvement, PIZZA!
New process introduced to reduce loss to follow up as young people transition across to ACHD services
New Transition Clinic being piloted in Leeds – ACHD nurse specialists and youth worker in attendance

8. MAY National CHD Networks Meeting
Hosted by South West Network in Bristol
Mutual support and shared learning
Agreed some priority work areas for project work
Leeds to lead on role of link nurses and improving lost to follow up rates …
…and organise the next meeting in October !!

9. JUNE Leeds Congenital Hearts Conference – June 7th-8th
Network Meeting – June 14th, Dewsbury
Meet The Team
Echo Teaching
Top Tips for nursing CHD patients
Pregnancy and Contraception

10. JULY NHSE Peer Review Development Group
1st Patient and Parent Reference Group
Meet 4 times a year
Provide a representative to attend Board meetings
Speak at meetings
Produce video diaries/short films
Advise/critique information/video content

11. AUGUST
Appointed Jutta Scheffczik and Mike Cross as Speciality Leads for CHD Anaesthesia
Hull ACHD Outreach Clinic established
1st Quarterly Meeting with NHSE Y+H to review progress at the Surgical Centre – activity, standards compliance and Network development

12. SEPTEMBER Survey Monkey – how are we doing ? Sent to 140 stakeholders
48% response rate
91.3% had had some contact with the Network in the previous 12 months
82.3% felt that the Network had a strong sense of purpose and direction
98.4% felt that the Network had had a positive impact on CHD services in Y+H over the previous 12 months

13. OCTOBER Held our 1st Network Board Meeting
Published our 1st Annual Report
Hosted National CHD Networks meeting in Leeds
Held our 1st Link Nurses Study Day in Leeds, attended by over 50 Link Nurses
Neonatal CHD Awareness Week on NICU Leeds

14. The Beaters Team

15. NOVEMBER
BCCA Poster presentation, “Building an Outstanding Yorkshire and Humber CHD Network”
Echo Teaching Day – Saturday November 24th, Leeds
Fetal/ Neonatal Nurses Study Day – November 29th, Leeds
55 delegates
Good representation from children’s hospices

16. DECEMBER 2nd Board Meeting
Meeting with NHSE Y+H Managers about CHD tariff (3rd meeting)
Meeting with Involve about Telemedicine and videoconferencing (Medio Link)

17. How did we do in 2018? This is what you told us …
Good start …but more to do

18. Looking ahead
We have a work programme for which has been agreed by the Board ( please see Annual Report)
All Specialist Surgical Centres and Networks will be peer reviewed during 2019
Plans to work more closely with our aligned Networks ( PIC, NIC, EMBRACE, Neurosciences, Fetal/Maternity)

19. We shall overcome Sildenafil Establishment of a home delivery service
IT integration
Web based access to 4D
Telemed
Videoconferencing for MDT and education