1. AUCD Pre-Conference Workshop
funded by the US Department of Health and Human Services, Administration on Children and Families, Administration on Developmental Disabilities
9 November 2008
AUCD Pre-Conference Workshop

2. Introduction: National Training Initiative Grants
Jennifer Johnson Administration on Developmental Disabilities Administration for Children and Families
9 November 2008
AUCD Pre-Conference Workshop

3. Process for Identifying Priority Areas
Meeting of experts in February
Major recommendations:
Primary topics
Large-scale projects

4. What do we mean by ‘scaling up self-determination’
Developing tools for using self-determination knowledge:
In multiple settings and contexts
Across the age-span
By various stakeholders

5. Essential Features Coordination of efforts through partnerships.
UCEDDs
National organizations representing individuals with developmental disabilities, parents and guardians, siblings, and culturally and linguistically diverse populations.
Integration with other efforts with other national initiatives
To promote coordination
Identify other entities implementing projects related to self-determination
Sustainability.
An expected outcome is the sustainability of efforts past the five-year grant period.
Ensure continued use of the training resources, updates and modifications to the materials, and continued access to the materials by members of the public.
Have a sustainability plan

6. Phase I: Research and Planning.
Gathering and analyzing information from current literature and on State and Federal initiatives
Identify promising models and practices; gaps and variance in information and potential areas for cross-collaboration with other national initiatives.
Planning for sustainability
Products:
Summary of findings
Final plan for Phases II and III, including the strategies that will be used to sustain the project and the plan for integrating the project with other national initiatives.

7. Phase II: Develop and Test a National Training Program.
Use evidence to develop and test a national training program
Key features:
Be developed with input from individuals with developmental disabilities, including youth, young adults, and adults; and family members, including parents, siblings, guardians, and other relatives.
Use multiple traditional and non-traditional modalities to maximize accessibility and outreach, particularly to those who are hard to reach.
Be culturally competent in all aspects, including the modalities used.
Promote the process of enhancing post-secondary education opportunities for youth and young adults with developmental disabilities.
Products:
The National Training Program
Lessons learned from the pilot and strategies for adapting the National Training Program to various contexts
Follow principles of universal design

8. Phase III: National Implementation and Transition to Sustainability.
Partnering with the ADD Technical Assistance Centers and other national organizations for large scale, nationwide implementation of the National Training Program.
Utilize traditional and non-traditional marketing strategies to maximize outreach.
Transition to maintenance of the project over time.

9. Overview of Gateway to Self-Determination
Carl Calkins Andy Bacon Tamar Heller
9 November 2008
AUCD Pre-Conference Workshop

10. AUCD Pre-Conference Workshop
Beliefs
Key to this initiative are the beliefs upon which this
grant was developed – that development of self-
determination is:
a lifelong process,
a means to obtaining an improved quality of life,
Viewed in a social-ecological framework,
Guided by research to practice,
and most importantly – that people with developmental disabilities must be equal partners in the process.
9 November 2008
AUCD Pre-Conference Workshop

11. AUCD Pre-Conference Workshop
Goal
The overall goal of this project is “to establish a sustainable, evidence-based training system that enhances self-determination training programs that lead to quality of life outcomes for individuals with developmental disabilities throughout the lifespan.”
9 November 2008
AUCD Pre-Conference Workshop

12. AUCD Pre-Conference Workshop

13. DD Act Definition of Self-Determination Activities
Activities that result in individuals with developmental disabilities, with appropriate assistance, having:
the ability and opportunity to communicate and make personal decisions;
the ability and opportunity to communicate choices and exercise control over the type and intensity of services, supports, and other assistance the individuals receive;
the authority to control resources to obtain needed services, supports, and other assistance;
opportunities to participate in, and contribute to, their communities;
and support, including financial support, to advocate for themselves and others, to develop leadership skills, through training in self-advocacy, to participate in coalitions, to educate policymakers, and to play a role in the development of public policies that affect individuals with developmental disabilities.
AUCD Pre-Conference Workshop

14. UCEDD Leadership Consortium
Carl F. Calkins, Ph.D., Co-PI
University of Missouri Kansas City
Institute for Human Development (UCEDD)
Michael Wehmeyer, Ph.D., Co-PI
Kansas University Center on Dev Disabilities (UCEDD)
at the University of Kansas
Andy Bacon, Ph.D.
Westchester Institute for
Human Development (UCEDD)
at New York Medical College
Tamar Heller, Ph.D.
University of Illinois Chicago
Dept of Disability and Human Development (UCEDD)
Hill Walker, Ph.D.
University of Oregon
Center on Human Development (UCEDD)
9 November 2008
AUCD Pre-Conference Workshop

15. AUCD Pre-Conference Workshop

16. AUCD Pre-Conference Workshop
Alliance Members
Self-Advocates Becoming Empowered
the Association of University Centers on Disability including the Council on Community Advocacy
the National Leadership Consortium
College of Direct Support/Minnesota UCEDD
National Association of Councils on Developmental Disabilities
National Disability Rights Network
National Association of State Directors of Developmental Disabilities Services
the National Sibling Network
National Family Voices including Kids as Self-Advocates
9 November 2008
AUCD Pre-Conference Workshop

17. Self-Determination Across the Lifespan
Early Childhood
School Age
Adult
Aging
9 November 2008
AUCD Pre-Conference Workshop

18. Self-Determination and Key Players in an Individual’s Life
Families
Siblings
Direct Support Workers
Educators
9 November 2008
AUCD Pre-Conference Workshop

19. Phase I: Overview of Planned Activities
Approach to Literature Review
Life Chances Planning Tool
Mapping gaps in curricula and lack of access
National Self Determination Guide
9 November 2008
AUCD Pre-Conference Workshop

20. Phase I: Discussion and Feedback
What types of SD training are available for self-advocates, parents, sibling, providers, or others in your state/community? What’s working and what’s not?
Who are the people that are most in need of training that are not being reached and why?
9 November 2008
AUCD Pre-Conference Workshop

21. Phase II: Overview of Planned Activities
Overview of planned specialty curricula to be developed
Examples: Abuse and Neglect, Siblings
9 November 2008
AUCD Pre-Conference Workshop

22. AUCD Pre-Conference Workshop
State Demonstrations
Complete an SD Self-Assessment
Identify Needed SD Curricula
Develop Implementation Plan
Form State SD Supporting Coalitions
Evaluate Outcomes
9 November 2008
AUCD Pre-Conference Workshop

23. AUCD Pre-Conference Workshop
Gateway Web Portal
Dynamic Website
History of Self-Determination movement and research
SD Curricula Products
Technical Assistance Resources
Evidence-Based Practices
Technology Supported Training
Video Vignettes, Lectures
SD Capacity Building Handbook
Implementation Manuals
Evaluation Frameworks
9 November 2008
AUCD Pre-Conference Workshop

24. Planning Training Delivery Methods
Innovative Uses of Technology
Self-Advocates as Trainers
9 November 2008
AUCD Pre-Conference Workshop

25. Phase II: Discussion and Feedback
What is the best way (ideal methods) to provide SD training to self-advocates, parents, sibling, providers, or others (e.g. technology, self-advocates as trainers)?   In your experience, what works and what doesn’t work?
Laura highlighted the planned components of a SD Gateway Online Portal, what features do you perceive to be the most beneficial and what else should be included?
9 November 2008
AUCD Pre-Conference Workshop

26. Phase III: Overview of Planned Activities
Marketing
Sustainability
Implementation
Diffusion
9 November 2008
AUCD Pre-Conference Workshop

27. Phase III: Feedback and Discussion
Do you know of any projects providing self-determination training that we should contact and coordinate our efforts with?
If we were all to meet here again in 5 years to share the many successes of this project, what one outcome would be most important to you?
9 November 2008
AUCD Pre-Conference Workshop

28. Thanks for attending. We appreciate your interest and input.
9 November 2008
AUCD Pre-Conference Workshop

29. AUCD Pre-Conference Workshop
This document was supported, in part, by a cooperative agreement from the Administration on Developmental Disabilities, Administration for Children and Families, Department of Health and Human Services. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration on Developmental Disabilities policy.”
9 November 2008
AUCD Pre-Conference Workshop