1. Champaign County Regional Planning Commission (CCRPC)
Independent Service Coordination Programs
By Katie Harmon, LCSW
Community Services Program Manager

2. Brief Overview
CCRPC is one of 17 Independent Service Coordination Agencies in the state of Illinois
Serve individuals with intellectual and developmental disabilities and their families/guardians in Champaign, Ford, and Iroquois Counties
Primary purpose is to ensure services and supports are responsive to the unique needs and desires of each individual and to effectively promote independence, community inclusion, and self- determination

3. Funding Main sources of funding:
Department of Human Services, Developmental Disabilities Division
Champaign County Developmental Disabilities Board
Community Services Block Grant – Illinois Department of Commerce and Economic Opportunity
Community Services Block Grant (supplemental funding to support DHS and CCDDB funded services)

4. Programs Prioritization of Urgency of Need for Services (PUNS)
Pre-Admission Screening (PAS)
Individual Service and Support Advocacy (ISSA)
Decision Support Person Centered Planning
Transition Consultant Services

5. Prioritization for Urgency of Need for Services (PUNS)

6. Prioritization of Urgency of Need for Services (PUNS)
PUNS is a statewide database that records information about individuals who have developmental disabilities who are in need of services
DHS uses the data to select individuals for services as funding becomes available, to develop proposals and materials for budgeting, and to plan for future needs
Selections from DHS now based on length of time on the waiting list beginning when the person turns 18 years old.

7. PUNS Categories
Seeking Services: Person needs services within one year.
Planning for Services: Person does not need services for at least a year.

8. Crisis
If a person is at risk of abuse, neglect, or homelessness - can work with ISC to complete a crisis application for funding
Would not need to be selected from PUNS for services
DHS’s highest funding priority
DHS has final decision
Unfortunately, we realize that many families would identify their situation as a crisis, however, it HAS to be related to abuse, neglect or homelessness for us to move forward with a crisis application.

9. Services Through PUNS
Medicaid Waiver Services through the Department of Human Services:
Home Based Services
Purchase services form authorized community agencies, pay for personal support workers
Adaptive equipment, assistive technology
Behavior intervention and treatment
Community-Integrated Living Arrangement (CILA)
Community Day Services (Developmental Training)
Supported Employment
Home Based Services – families may contract with an agency to provide a day program or personal support services, hire neighbors or relatives to provide personal support, or parents of adults may designate themselves as the personal support worker.
Community Day Services - focuses on the development and enhancement of daily adaptive living skills and economic self-sufficiency. This training takes place away from the individual's residential living arrangement and is designed to foster the acquisition of skills, appropriate behavior, greater independence and personal choice.

10. Pre-Admission Screening (PAS)

11. Pre-Admission Screening (PAS)
PAS completed by ISC when:
Completing a crisis packet for Medicaid Waiver funding
Individual is selected from PUNS
Assessment of individual with a developmental disability prior to a long term stay in a nursing facility
Assessment of an individual who wants to live in an intermediate care facility (ICF/DD) (does not need to be selected from PUNS)
Many are 16+ bed facilities
Not a Medicaid Waiver funded service
Generally serve individuals with higher support and medical needs

12. Pre-Admission Screening (PAS)
Assessment of the following areas:
Determination of developmental disability
Psychological evaluation (within past 5 years)
Medical history (within past year)
Physical examination (within past year)
Medication review
Service needs
Guardianship screen
Presentation and selection of services
Educate families on service options available, link families to services

13. Individual Service and Support Advocacy (ISSA)

14. Individual Service and Support Advocacy (ISSA)
Individuals receiving Medicaid waiver services
Main functions:
Monitor the general health, safety, and well-being of individuals in the Waiver
Represent the IDHS/DDD's interests in determining whether waiver services are being provided in the best interest and to the satisfaction of individuals receiving the services
Alert the Division when additional monitoring, intervention or technical assistance is necessary and provide support to individuals, guardians, and providers in working through a variety of service issues

15. Conflict Free Case Management
Major changes went into effect July 1, 2017
ISC agencies are now responsible for the person centered planning process with individuals served through the waiver
Plans were previously developed by provider agencies and called Individual Service Plans (ISP)

16. Conflict Free Case Management
Federal Medicaid guidelines specifies that States are required to separate case management functions (including the person centered plan development) from service delivery functions
Case management includes: determination of eligibility, provider identification, service plan development, and monitoring of Plan
"Conflict free" means that case management must be performed by someone other than a relative of the person served, someone other than a direct provider of service, someone who does not have a financial interest in a provider, or someone who is not employed by a provider

17. Person Centered Planning (PCP)
DHS PCP Handbook -
Three main components
Discovery process
Personal plan
Implementation strategies
Completed annually
Revised as needed throughout the year based on major medical or behavioral changes
Edited as needed throughout the year to reflect change in services or supports

18. Personal Plan
The Personal Plan is the single, comprehensive personal vision for a person's life
Focuses on the individual's strengths, preferences, needs and desires
Responsibility of ISC in conjunction with the individual, guardian, family, and providers
Includes risk factors and plans to minimize them
Involves individual and whomever individual identifies they would like to take place in process, guardian, provider
The ISC agency then works with the individual it identify a provider who can provide the services and meet the individuals’ needs and desired outcomes
ISC can assist individual and family in identifying a new provider if individual is unhappy with services and wishes to seek services elsewhere

19. Critical Incident Follow Up
Follow up on critical incidents:
Known injury
Law enforcement
Medical emergency
Missing individual
Peer-to-peer acts
Unauthorized restraint
Unknown injury
Unscheduled hospitalization

20. Decision Support Person Centered Planning Services

21. Decision Support Person Centered Planning Services
Target populations:
Individuals with intellectual and developmental disabilities registering in the Illinois Department of Human Services’ (DHS) Prioritization for Urgency of Need for Services (PUNS) database for the first time and/or for their annual update who would like to complete preference assessments. Preference information is gathered in order to identify what services individuals are looking for as well as receive additional support until they are selected from the PUNS list.
Adults with intellectual and developmental disabilities registered in PUNS who do not have Medicaid waiver funding and are receiving services through CCDDB funded programs.
Individuals with intellectual and developmental disabilities who are transitioning from an Illinois State Board of Education setting and in need of adult services.

22. Decision Support Person Centered Planning Services
Services provided:
Outreach to community on PUNS, Medicaid Waiver services, and Transition Consultant services
Attend IEP meetings to assist with transition planning
Streamline of services from school to adult DD services
Following same framework of DHS with conflict free case management and person centered planning
Linkage to community services
Assist individuals in critical category of PUNS with gathering required PAS paperwork/case management support
Discovery and Person-Centered Planning for individuals on PUNS receiving services through CCDDB funded programs

23. Transition Consultant Services

24. Transition Consultant Services
Provides support to individuals with intellectual/ developmental disabilities and their families who are near graduation from secondary education
Assist with education and support regarding the transition to adult based developmental disability services in Illinois.
Assist individuals and families with developing a transition plan and referral/linkage to appropriate community support services
Support individuals and families in learning about PUNS and registering for services

25. Transition Consultant Current Projects
Meeting with providers of developmental disability services
Developing a list of key contacts within the schools
Attending IEP meetings
Compiling relevant resources and information for families

26. Statistics and Outcomes
DHS Funded Programs
Served 889 Clients
PUNS - 395
PAS - 57
ISSA - 437
Provided over 9,000 hours of service
100% of required PUNS updates completed within the 365 day time period. Ranked first in the state out of 17 ISC agencies.

27. Statistics and Outcomes
CCDDB Funded Programs
369 total clients served
Attended 73 Community Outreach Events
Provided information to 476 people form Outreach Events

28. Statistics and Outcomes
CCDDB Funded Programs
Proposed Outcome: 80% of the parents/guardians completing a survey after using Transition Consultant services will endorse having had the opportunity to be active participants in transition planning and being informed of a variety of resources/services.
Results: 100% of parents/guardians who completed a Client Satisfaction Survey reported they had the opportunity to be an active participant in transition planning.

29. Statistics and Outcomes
CCDDB Funded Programs
Proposed Outcome: 80% of persons given the opportunity to report their service preferences will complete a preference assessment.
Results: 80% of persons given the opportunity to report their services preferences completed a preference assessment.
If individuals already reported their service preferences via the preference assessment the previous year and there interests have not changed, some individuals and guardians did not want to complete this again.

30. What’s on the Horizon DHS Notice of Funding Opportunity for FY20 CCDDB
New competitive application process for ISC agencies across the state. Reduction in the total number of ISC agencies (17 to 12 or less).
Different geographic regions designated by DHS.
If CCRPC awarded funded for proposed region, it would mean an expansion from 3 counties to 13.
CCDDB
Possibility of expanding person centered planning process for other CCDDB funded programs.
Mirroring process of DHS for smooth transition once selected from PUNS.

31. Questions?
Please feel free to contact me directly! Katie Harmon, LCSW Community Services Program Manager 1307 N. Mattis, Champaign, IL