1. National Screening Project
Jean Howieson Acute Liaison Nurse Practitioner
Karen Clarke Primary Care Liaison Nurse Practitioner
Adult Learning Disability Service
NHS Lanarkshire

2. Objectives Give a rationale for the project
Raise awareness of new resources now available

3. Equally Well? (2008)
“In Scotland we can point to good progress in the quality of our health care and in major indications of health outcomes, notably record survival rates from the major “killer diseases” such as cancer. This progress is not being experienced by everyone yet”.
“Health inequalities……….remain our major challenge” (A. Salmond 2008)
Recommendation No 52: NHS Boards should target health promotion & health improvement action better for people with learning disabilities and others who may need support with access to information in line with statutory disability requirements
Scottish Government requested proposals from each NHS Board’s Adult Learning Disability Service
Mrs Serrels completed a proposal

4. Why?
Cancer Incidence is rising in the learning disability population Tuffrey-Wijne et al (2009)
Uptake of national screening programmes lower than general populations
Cervical Smear Test 19% vs 77% Djuretic et al (1999)
Mammography 33% Davies & Duff (2001)
Bowel Screening Programme (no stats available)

5. Reason’s for low uptake?
Lack of patient information available in easy read format
e.g. Invitation letter, health promotion leaflets
Health professionals make assumptions:
e.g. women with learning disabilities don’t have sex
Investigatory Procedures – non compliant
Reliance on family/carers to ensure attendance at appointments
QIS (2006)
DDA (1995)
Human Rights (2008)

6. Who was involved Adult Learning Disability Service
Clear Communications
Cancer Services
Lanarkshire Ace & PALS
Losource (Web Designer)
McInness GP Practice Staff
Medical Illustrations
Smallvideo (DVD Production)
Speak Out Advocacy

7. Karen & Jean’s World Tour of Scotland
Dundee – Bowel Screening
Glasgow – Mammography Screening
Law House - Cervical Smear Screening
Newarthill – GP Practice
Melrose – Easy Read Letter Templates

8. What did we do Focus Groups Meetings Purchase additional Resources
Developed evaluation tools

9. What did we do Developed a range of resources: Website Training Packs
5 DVD’s
21 Leaflets/booklets
Total Communication Aide

10. Challenges Project Speech Therapy Post not filled until 4th Feb 2011
Some staff attitudes to why information was required in a different format
Time
Co ordinating people/venues/filming/focus groups
Competing priorities
Primary Care Liaison/Com Nurse commenced dual role April 2011
Copyright

11. Total Communication Aide
Standardised Communication Tool
e.g. Makaton, Body Parts,
Symptoms
Distribution: 1000
GP Practices/Practice Nurses
All Acute Wards/Depts
Ambulance Transport
Out of Hours Service
Care Providers
School Nurses
State Hospital/Prisons
Adult/Locality Centres
Acute/Primary Liaisons across Scotland

12. Evaluation of TCA Evaluation tools distributed to Acute/Primary Care
50% Return
62% had consulted the TCA- very useful
37% have not consulted the TCA but thought it would be useful

13. DVD’s Five DVD’s Produced Going for a Cervical Smear
Going for a Prostate Exam
Boobs (Breast) Self Exam
Balls (Testes) Self Exam
Bowel Screening

14. DVD’s Distribution: GP Surgeries Visual story Gives Explanation:
Why, When, How
Distribution:
GP Surgeries
Libraries – Public & NHSL
Health Promotion
Adult Centres South Lan
Locality Offices North Lan
Care Providers
Social Work Carer Liaison
Scottish Acute/Primary Liaison Nurse Network

15. Evaluation of DVD’s Evaluation tools distributed to Primary Care
Return rate of 52%
63% consulted the DVD’s – very useful
37% have not consulted the DVD’s

16. Leaflets 21 Leaflets Produced National Screening Programmes
Cancer Treatments
Medical & Surgical
Investigations
Distribution:
NHSL Health Promotion Library
Specialist Cancer Nurses

17. Website www.healthelanarkshire.co.uk
Contain all new resources DVD’s Leaflets
Web links to other useful sites
Useful for everyone
Person with learning disability
Family & Carers
Health & Social Care Professionals

18. Easy Read Letter Templates
Invitation Letters
Recall Letters
Generic GP Letter
Distribution:
Available on the website
Copy in Resource Pack

19. Website Distribution/Awareness: A2A
Scottish Acute/Primary Liaison Nurses
Scottish Community Learning Disability Nursing Network
Scottish Consortium for Learning Disability
LD Forum
Cancer Services
General Health Services

20. Evaluation of Website Launched 23rd November 2011 3,708 visitors
67 countries across the world
GB- 230 cities/towns
USA- 45 states
Germany 67 cities/towns

21. Resource Pack Copy of all new Resources Distribution:
Haven, Mini Haven etc
Learning Disability Service (Per locality/Unit)
Advocacy Services Lanarkshire
Care Providers
Carers Together Princess Royal Trust
National Screening
Programmes & Cancer Information
A resource of information in different formats for Health Professionals to aid understanding for people with a learning disability

22. Overall Evaluation

23. Thank you for listening