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Parental Concordance Regarding Problems and Hopes for Seriously Ill Children: A Two- Year Cohort Study  Douglas L. Hill, PhD, Pamela G. Nathanson, MBE,

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Presentation on theme: "Parental Concordance Regarding Problems and Hopes for Seriously Ill Children: A Two- Year Cohort Study  Douglas L. Hill, PhD, Pamela G. Nathanson, MBE,"— Presentation transcript:

1 Parental Concordance Regarding Problems and Hopes for Seriously Ill Children: A Two- Year Cohort Study  Douglas L. Hill, PhD, Pamela G. Nathanson, MBE, Rebecca M. Fenderson, BA, Karen W. Carroll, BS, Chris Feudtner, MD, PhD, MPH  Journal of Pain and Symptom Management  Volume 53, Issue 5, Pages (May 2017) DOI: /j.jpainsymman Copyright © 2017 American Academy of Hospice and Palliative Medicine Terms and Conditions

2 Fig. 1 Prevalence and concordance of problem and hope domains at baseline and 24 months for parents of children who survived. Overlapped markers represent the domains labeled above and below the overlapped markers, with the left-positioned marker unshifted, whereas the right-positioned marker is shifted slightly. No parents endorsed the problem domain length of life at either time point or suffering at 24 months. No parents endorsed the hope domain medical knowledge at either time point or suffering at 24 months. Journal of Pain and Symptom Management  , DOI: ( /j.jpainsymman ) Copyright © 2017 American Academy of Hospice and Palliative Medicine Terms and Conditions

3 Fig. 2 Problem and hope domain prevalence and concordance at baseline for parents of children who subsequently died. Overlapped markers represent the domains labeled above and below the overlapped markers, with the left-positioned marker unshifted, whereas the right-positioned marker is shifted slightly. No parents of children who later died endorsed the problem domain miracle or cure. Journal of Pain and Symptom Management  , DOI: ( /j.jpainsymman ) Copyright © 2017 American Academy of Hospice and Palliative Medicine Terms and Conditions


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