1. AWARENESS ACTIONS ON PANCREATIC CANCER IN FRANCE
Mariella de Bausset
Secretary General
A.R.CA.D. Foundation
10 October 2018 – European Parliament

2. The French situation
An increasing incidence, and a mortality still close to the incidence
Significant variations in access to care, treatment, diagnosis and specialised centers, resulting in major differences in survival
An action taken by the National Cancer Institute -INCa- in 2017, dedicating a research programme to pancreatic cancer research
But a general lack of awareness among policy makers and low prioritisation in public policies (in the national cancer plan or in the parliamentary debates)

3. What did A.R.CA.D do about this?1
Raising awareness of the signs and symptoms towards GPs
Translation and adaptation of the « Think PC » brochure
Contact plan towards medical associations to disseminate the brochure
Diffusion of the brochure in the GPs’ union newsletter in November 2017

4. What did A.R.CA.D do about this?2
Work towards early referral and care of patients : Enquête Repère and Urgence Pancréas Study
Survey launched in France, called « Enquête REPERE », to identify the loopholes in pancreatic cancer patients management
As an outcome, launch of the protocole « Urgence pancréas », aiming at accelarating diagnosis and intensive care:
Each patient suspected of having pancreatic cancer is included in an integrated process
Care is implemented within 14 days (+/- 2 days): evaluation, nutritional and psycho-social management, pain management, thrombosis prevention or treatment, and biopsy
The main challenge is to reduce the time between first contact with the hospital and treatment – This period of time is crucial for the survival of patients.

5. What did A.R.CA.D do about this?3
Raising among policy makers to trigger policy change
Article in Le Figaro, 24 November 2016
Building up of an expert group around the Foundation, with the support of Shire France
Outreach to members of the Parliament
Organisation of an institutional event, hosted by 2 Senators
Multiple media fall-outs

6. What did A.R.CA.D do about this?4
Addressing the regional variations
Development of policy recommendations on how to address pancreatic cancer and make it a priority in French public policy…
1st regional round table in Lyon, hosted by MEP Françoise Grossetête
Organisation of a set of regional round tables to assess regional variations
2nd regional round table in Marseille, hosted by the Regional Council
…to be further disseminated among French policy makers, in view of the next cancer plan

7. What did A.R.CA.D do about this?5
Raising general public awareness
Organisation of an annual concert to raise funds for pancreatic cancer research and get public attention
Diffusion of a brochure on patient journey, to foster earlier diagnosis and referral

8. What to do next?
Continue our actions to implement the « Urgence pancréas » protocole
Keep raising awareness of pancreatic cancer among policy makers, to work towards prioritisation in the next cancer plan
Use the occasion of World Pancreatic Cancer Day to continue communicating and raise general awareness and knowledge of the disease

9. THANK YOU FOR YOUR ATTENTION!