1. A Need for Guidelines: Delivery of a Fetal Anomaly Diagnosis
Shandeigh N. Berry, MSN, RN, CNOR, PhD Student Karen Colorafi, PhD, MBA, RN, Assistant Professor
College of Nursing, Washington State University, Spokane, WA
Background
Congenital anomalies, such as anencephaly, are:
Leading cause of infant death in the United States
Responsible for nearly 20% of infant mortality
Current practice: nearly 100% of providers recommend termination of pregnancy.
Nursing literature suggests as many as 40% of parents receiving the diagnosis of anencephaly wish to carry the pregnancy to term.
Available options:
Donation
Whole Body
Organ
Tissue
Perinatal Palliative Care
Method
Literature review of databases
PubMed
CINAHL
PsycINFO
NICE Evidence
Inclusion Criteria
English Language
Published in the last ten years
Search Results
Titles reviewed: 185
Abstracts reviewed: 28
Articles reviewed: 20