1. Person centered care – the next 25 years
Virginia Bell, MSW
David Troxel, MPH
Photo courtesy Touchmark

2. Person centered care today
Positive Trends
Wide spread acceptance that we need to support human rights, dignity, and maximum autonomy.
Benefits of engagement increasingly clear.
Persons and their carers are more and more knowledgeable & sophisticated
Stronger voices from persons with dementia
Concerns
Many providers still focus on disability vs. ability.
Wide spread use of psychotropic drugs
Activities still often flat, unoriginal.
We are not prepared for the explosion in cases.
Access to services declining
Research failures/lack of immediate new medications

3. The next 25 years

4. Dementia a human rights issue
Increasingly dementia care will be put in a human rights context

5. Living with dementia Social engagement Exercise Learning & growth
Community work
Good food and diet
Memory aides through technology
Alzheimer’s as a chronic disease

6. Clubs and organizations for Persons will grow in numbers and importance
Memory clubs at the gym, senior center, adult education programs.
Self-help groups, “early stage support groups” will expand
Day centers will reach critical mass
Persons with dementia will want to stay connected to their communities.
Long-term care programs will be more connected to the community at large

7. Dementia providers
The market will reward providers who do a great job.
Residential environments will reflect new ideas of home
Training expectations will become significant

8. Diversity
Providers and services will need to expand their reach and serve non traditional families including single persons with dementia without family networks
Younger persons
Multi-cultural
LGBT
Diverse faith communities
Multi-cultural programs must expand

9. End of life dignity
Greater attention must be given to end of life issues, late-stage activities, empowering families and persons with dementia to express their wishes and needs.

10. Stigma will end

11. We can still hope for the treatment or prevention magic bullet

12. Virginia Bell, MSW
David Troxel,MPH