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Public Opinion about the Importance of Privacy in Biobank Research

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Presentation on theme: "Public Opinion about the Importance of Privacy in Biobank Research"— Presentation transcript:

1 Public Opinion about the Importance of Privacy in Biobank Research
David J. Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L. Hudson  The American Journal of Human Genetics  Volume 85, Issue 5, Pages (November 2009) DOI: /j.ajhg Copyright © 2009 The American Society of Human Genetics Terms and Conditions

2 Figure 1 Percentage of Respondents Who Believe Specific Types of Medical Information Deserve Extra Privacy Protections Percentage of survey respondents who believe that various types of information in a medical record need extra privacy protections, among those who believe that some types of medical information need extra protections (n = 1574). The American Journal of Human Genetics  , DOI: ( /j.ajhg ) Copyright © 2009 The American Society of Human Genetics Terms and Conditions

3 Figure 2 The Relationship between Privacy Concerns and Willingness to Participate in Research When the Benefits of Participation Vary Relationship between concerns about protecting privacy in the large cohort study and willingness to participate in the study, under differing scenarios of study benefits. The American Journal of Human Genetics  , DOI: ( /j.ajhg ) Copyright © 2009 The American Society of Human Genetics Terms and Conditions

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