1. Jill Manthorpe Jill.manthorpe@kcl.ac.uk
People with learning disabilities employing their own care workers: implications for professional practice
Jill Manthorpe

2. The future?
The Golden Age (Cortona)
The Nightmare (Fuseli)
21-Nov-18

3. The (quiet) transformation of adult social care
‘Councils should provide personal budgets for everyone eligible for ongoing social care , preferably as a direct payment, by April 2013.’
Department of Health ‘Vision for Adult Social Care’, 2010, para 4.49
= Increases in number of people directly employed by people using services and carers
Paid workforce may include family members/adult fostering/shared lives
21-Nov-18

4. Range of policy and practice challenges (parked)
How to allocate fewer resources fairly – use of outcomes
Monitoring and review – light touch?
Decisions about buildings based services – especially day care centres
Whole context of reduced public expenditure
21-Nov-18

5. DP ~ IB ~ PB = SDS ~ ISF ~ PB ~ DP
Nationally 52.8% of eligible adults are using personal budgets to arrange their care and support, = increase of almost 40% on the previous year (June 2012)

6. So you want to be the employer?
Range of support from LA or ULO or others
Benefits
Role change
Being the ‘boss’
Pitfalls and risks
Taking on and letting go

7. So your mum wants to be the employer?
Many carers act as care/care managers
Some carers receive indirect DP (suitable people)
Support planning and planning their support
Another form of care work but outcomes good

8. So you want to be a directly employer care worker?
Terms and conditions
Friend or employee
Managing relationships
Stepping stone or career?
Many employers?
Oversight
Support

9. Are people with LD different?
Yes, but only to a limited extent …
Huge range and scale of needs
Reliance on family/parents
Cumulative impact of life events
Multi-morbidity
Citizenship? … been there …
Managing the money (‘burden’)
Higher average budgets...
Keen on choice, control …

10. Implications for professionals
Being PB literate
Knowing duty of care
Changing landscape
Relationship with other funding streams
Monitoring & review
Creativity
Risk work
Safety nets