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WELCOME COMPASSIONATE COMMUNITIES Making Death, Dying and Bereavement Everyone’s Business
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Alison Bunce Programme Lead
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Public Health Approach to Palliative Care
Making death, dying and bereavement everyone’s business (Kellehear, 2005) Health-promoting palliative care encourages palliative care services to adopt a public health approach by extending end-of-life care collaborations to community partners. Health-promoting palliative care acknowledges the social character of dying and provides for the continuing healthcare needs of people with life-threatening/limiting illnesses in community settings. The aim is to improve health and wellbeing at the end-of-life. However, a public health approach to end-of-life care goes further still to encourage communities to develop their own approaches to death, dying, loss and caring. This is often achieved through educational activities delivered in community development programmes that enable community members to identify their unique needs. Palliative care services have been involved in efforts to deliver services in community settings or engage community members in their work. However, the meaning of community development is to empower communities, either through voluntary or institutional action, to be actively and independently involved and to take responsibility for the design and implementation of their own end-of-life care policies and practices.
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Death and Dying is: a normal part of life
more than a medical responsibility a Public Health and Societal Issue a responsibility of a ‘compassionate community’ (Pugh and Aungiers, 2015)
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Inspiration Professor Allan Kellehear
Compassionate Communities Conference Interested people / Partnership working
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Policy Direction Communities of all kinds are empowered to provide effective support to those dealing with death, dying, bereavement and loss. (2011) Communities are stronger, responsible and more able to identify, articulate and take action on their needs and aspirations to bring about an improvement in the quality of community life (2013) People know how to help and support each other at times of increased health need and in bereavement, recognising the importance of families and communities working alongside formal services (2016)
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“ A Compassionate community is a community where everybody recognises that
We all have a role to play in supporting each other in times of crisis and loss. People are ready, willing and confident to have conversations about living and dying well and to support each other in an emotional and practical ways” (2016) National Council for Palliative Care Authors Dr Julian Abel, Dr Libby Sallnow, Professor Scott Murray Michael Kerrin (previous CEO of St Josephs hospice)
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Role of palliative care
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Compassionate Communities
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Local Initiative, Part of a Global Social Movement
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Compassionate Inverclyde
What it is Social Movement Involves ordinary people Community development Needs based evolution, with no blue print development What it is not A service About health professionals A palliative care service Prescriptive
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Public Engagement
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Building Community Capacity
Improving well being Compassionate citizens (No One Dies Alone) Work with schools / Annual public event (to absentfriends) Compassionate Organisations Developing and delivering a transferable wellbeing programme which can be offered to patients and carers but also to community groups, work places and schools. Recruiting, training and developing volunteer “Compassionate Citizens” who will be able to support dying people and their families across the community, acute, nursing homes I partnership with formal services. (No One Dies Alone) Undertaking awareness-raising and transformational work, initially with schools but also extending this to the wider population. Working with local businesses and workplaces to promote compassionate policies and processes aimed at supporting and equipping employees dealing with their own or a loved one’s diagnosis and potentially end of life/ bereavement.
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Improving Wellbeing Developing and delivering a transferable wellbeing programme which can be offered to patients and carers but also to community groups, work places and schools.
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Compassionate Companions
No One Dies Alone Compassionate Companions Recruiting, training and developing volunteer “Compassionate Citizens” who will be able to support dying people and their families across the community, acute, nursing homes I partnership with formal services. (No One Dies Alone)
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To Absent Friends Taking part in the to absent friends festival
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Initiatives with schools
Undertaking awareness-raising and transformational work, initially with schools but also extending this to the wider population.
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Progress so Far Initial Public engagement (over 200 people)
Formation of a Compassionate Inverclyde Board and external support network 4 Pilot Groups: Improving Wellbeing Programmes which will be known as HIGH 5 1st pilot Bereavement Café at Branchton Community Centre 1st working group meeting for No One Dies Alone Programme at IRH 1st community ‘toabsentfriends’ event 7 organisations took part 1st meeting with Education about working with young people and parents
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Current Partnerships West College Scotland, Lecturer Emma Maxwell is taking forward the High 5 Programme currently running 2nd public group at Branchton Community centre. Branchton Community Centre. Manager Willie Wilson providing accommodation and beverages free of charge for Bereavement Café and High 5 group. Your Voice, Staff have helped facilitate public engagement and developed the film for the Launch event. Inverclyde Council dedicated a tree for the absent friends event in the Well Park. Inverclyde Royal Hospital, pilot of the No One Dies Alone programme. Initial discussions with colleagues in Seville.
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Vision for Inverclyde as a Compassionate Community
Every person in Inverclyde will take part in a ‘toabsentfriends event’ 100% of churches will have an end of life care group Every community centre in Inverclyde will have a bereavement cafe 100% of people in IRH will not die alone if that is their wish Every community centre will have a resource bank of Compassionate Citizens Art gallery, museum and Beacon Arts center will showcase Art/drama work Gp’s and Primary care teams know how to make a request for support Every school in Inverclyde will run the wellbeing programme At least 50% of people in Inverclyde will die in their place of choice 100% of organisations in Inverclyde will have a bereavement policy in place
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Evaluation: What does success look like?
2017 Compassionate Communities Symposium at ICC Sydney Building healthy public policy Creating supportive environments Strengthening community action Developing personal skills Reorienting health care services toward prevention of illness and promotion of health
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Compassionate = Acts of Kindness
Helpful = Say YES to help Neighbourly = Ordinary people
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Learning from Australia: A Call to Action
As an Individual As a Community As an Organisation
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Important Facts We are all in it together
Now in a period of radical change We need to think about Network Focussed Care Active Hope This is the start of a Social Movement Death Literacy
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Integration Perspective
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Integration health & social care
Joint Future LHCP CHP HSCP Integrated Joint Boards The Public Bodies (Joint Working) (Scotland) Act 2014 Reflect how far we have come from the debate over a medical and social bath and how far we need to travel until we reach optimum level of integration.
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Inverclyde HSCP Governance Structure
Blue - Parent Bodies and reporting structures Lilac - Inverclyde Alliance Board and sub-committees Green - NHSGGC Clinical and Care Governance – and three specialist sub-groups Dark Blue - HSCP NHSGGC and Inverclyde Council advising or Chief Officers Grey - National HSCP Chief Officer and Chief Financial Officers Groups Brown - Staff partnership Forum Pink - Health and Community Care and linked Teams Light Blue - Children, Families and Criminal Justice and linked Teams Teal - Mental Health Addictions and Homelessness and Linked Teams Orange - Strategy and Support Services and Linked Teams Broken Red line Delegated Responsibility and Advisory Functions which feed into the HSCP Broken Black line ---- Reporting links to Parent Bodies Broken Blue line --- Reporting lines of Clinical Director to NHSGGC Board Clinical and Care Governance Thick Red oval shape –Inverclyde HSCP Transformation Board Red outline and white background shape - Representative membership of the Strategic Planning Group Full red colour shapes - Integration Joint Board , Audit Sub-committee and Strategic Planning Group Blue - Parent Bodies and reporting structures Lilac - Inverclyde Alliance Board and sub-committees Green - NHSGGC Clinical and Care Governance – and three specialist sub-groups Dark Blue - HSCP NHSGGC and Inverclyde Council advising or Chief Officers Grey - National HSCP Chief Officer and Chief Financial Officers Groups Brown - Staff partnership Forum Pink - Health and Community Care and linked Teams Light Blue - Children, Families and Criminal Justice and linked Teams Teal - Mental Health Addictions and Homelessness and Linked Teams Orange - Strategy and Support Services and Linked Teams Broken Red line Delegated Responsibility and Advisory Functions which feed into the HSCP Broken Black line ---- Reporting links to Parent Bodies Broken Blue line --- Reporting lines of Clinical Director to NHSGGC Board Clinical and Care Governance Thick Red oval shape –Inverclyde HSCP Transformation Board Red outline and white background shape - Representative membership of the Strategic Planning Group Full red colour shapes - Integration Joint Board , Audit Sub-committee and Strategic Planning Group
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Integration health and social care
National Health and Wellbeing Outcomes Integration Planning and Delivery Principles Core Suite of Integration Indicators Clinical and Care Governance Framework Strategic Commissioning Plans Financial Assurance Localities
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Integration delivery principles
Evidence how services are planned and delivered in a person centred way; Demonstrate how integrated services are developed for the benefit of service users
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INTEGRATION PRINCIPLES SINGLE OUTCOME AGREEMENT (SOA)
NATIONAL WELLBEING OUTCOMES SHINARRI INTEGRATION PRINCIPLES SINGLE OUTCOME AGREEMENT (SOA) People are able to look after and improve their own health and wellbeing and live in good health for longer HEALTHY Inverclyde’s population is stable with a good balance of socio-economic groups. People, including those with disabilities or long term conditions or who are frail are able to live, as far as reasonably practicable, independently and at home or in a homely setting in their community. ACHIEVE RESPONSIBLE RESPECTED Health and social care services are planned and led locally in a way which is engaged with the community (including in particular service users, those who look after service users and those who are involved in the provision of health or social care); Communities are stronger, responsible and more able to identify, articulate and take action on their needs and aspirations to bring about an improvement in the quality of community life. People who use health and social care services have positive experiences of those services, and have their dignity respected. Our public services are high quality, continually improving, efficient and responsive to local people’s needs. Health and social care services are centred on helping to maintain or improve the quality of life of people who use those services. ACTIVE Improve the quality of services; All children, citizens and communities in Inverclyde play an active role in nurturing the environment to make the area a sustainable and desirable place to live and visit. Health and social care services contribute to reducing health inequalities Best anticipate needs and prevent them arising; The health of local people is improved, combating health inequality and promoting healthy lifestyles. People who provide unpaid care are supported to look after their own health and wellbeing, including reducing any negative impact of their caring role on their own health and wellbeing. NURTURED A nurturing Inverclyde gives all our children and young people the best possible start in life. People using health and social care services are safe from harm. SAFE A positive culture change will have taken place in Inverclyde in attitudes to alcohol, resulting in fewer associated health problems, social problems and reduced crime rates. People who work in health and social care services feel engaged with the work they do and are supported to continuously improve the information, support, care and treatment they provide. ACHIEVING INCLUDED The area’s economic regeneration is secured, economic activity in Inverclyde is increased, and skills development enables both those in work and those furthest from the labour market to realise their full potential Resources are used effectively in the provision of health and social care services. Make the best use of the available facilities, people and other resources.
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Integration health and social care
National Wellbeing Outcomes How the 9 outcomes are ‘improving lives’ through the delivery of service Commissioning Partnership Working How has the service worked in collaboration with partners and stakeholders? Strategic Planning & IJB Localities Planning and Cluster Working Financial Performance Best Value & Inspection of Services
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Strategic Alliance Inverclyde council – Elected members
Skills Development Scotland West College Scotland Scottish Fire & Rescue Service Scottish Natural Heritage Scottish Enterprise 3rd Sector Interface Department of Works and Pensions River Clyde Homes – Registered social Landlords Police Scotland Strathclyde Partnership for Transport Community Council Forum In attendance: Chief Executive Inverclyde council Chief Officer Inverclyde HSCP
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Integration health and social care
Integration principles Community planning Building capacity Inclusiveness of Inverclyde community Choice and control Individual is focus of service provision support and care
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THANK YOU
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