1. WELCOME
COMPASSIONATE COMMUNITIES Making Death, Dying and Bereavement Everyone’s Business

2. Alison Bunce
Programme Lead

3. Public Health Approach to Palliative Care
Making death, dying and bereavement everyone’s business (Kellehear, 2005)
Health-promoting palliative care encourages palliative care services to adopt a public health approach by extending end-of-life care collaborations to community partners.
Health-promoting palliative care acknowledges the social character of dying and provides for the continuing healthcare needs of people with life-threatening/limiting illnesses in community settings.
The aim is to improve health and wellbeing at the end-of-life.
However, a public health approach to end-of-life care goes further still to encourage communities to develop their own approaches to death, dying, loss and caring.
This is often achieved through educational activities delivered in community development programmes that enable community members to identify their unique needs.
Palliative care services have been involved in efforts to deliver services in community
settings or engage community members in their work. However, the meaning of community development is to empower communities, either through voluntary or institutional
action, to be actively and independently involved and to take responsibility for the design and implementation of their own end-of-life care policies and practices.

4. Death and Dying is: a normal part of life
more than a medical responsibility
a Public Health and Societal Issue
a responsibility of a ‘compassionate community’
(Pugh and Aungiers, 2015)

5. Inspiration Professor Allan Kellehear
Compassionate Communities Conference
Interested people / Partnership working

6. Policy Direction
Communities of all kinds are empowered to provide effective support to
those dealing with death, dying, bereavement and loss. (2011)
Communities are stronger, responsible and more able to identify, articulate and take action on their needs and aspirations to bring about an improvement in the quality of community life (2013)
People know how to help and support each other at times of increased health need and in bereavement, recognising the importance of families and communities working alongside formal services (2016)

7. “ A Compassionate community is a community where everybody recognises that
We all have a role to play in supporting each other in times of crisis and loss.
People are ready, willing and confident to have conversations about living and dying well and to support each other in an emotional and practical ways” (2016)
National Council for Palliative Care
Authors
Dr Julian Abel, Dr Libby Sallnow, Professor Scott Murray Michael Kerrin (previous CEO of St Josephs hospice)

8. Role of palliative care

9. Compassionate Communities

10. Local Initiative, Part of a Global Social Movement

12. Compassionate Inverclyde
What it is
Social Movement
Involves ordinary people
Community development
Needs based evolution, with no blue print development
What it is not
A service
About health professionals
A palliative care service
Prescriptive

13. Public Engagement

15. Building Community Capacity
Improving well being
Compassionate citizens (No One Dies Alone)
Work with schools / Annual public event
(to absentfriends)
Compassionate Organisations
Developing and delivering a transferable wellbeing programme which can be offered to patients and carers but also to community groups, work places and schools.
Recruiting, training and developing volunteer “Compassionate Citizens” who will be able to support dying people and their families across the community, acute, nursing homes I partnership with formal services. (No One Dies Alone)
Undertaking awareness-raising and transformational work, initially with schools but also extending this to the wider population.
Working with local businesses and workplaces to promote compassionate policies and processes aimed at supporting and equipping employees dealing with their own or a loved one’s diagnosis and potentially end of life/ bereavement.

16. Improving Wellbeing
Developing and delivering a transferable wellbeing programme which can be offered to patients and carers but also to community groups, work places and schools.

17. Compassionate Companions
No One Dies Alone
Compassionate Companions
Recruiting, training and developing volunteer “Compassionate Citizens” who will be able to support dying people and their families across the community, acute, nursing homes I partnership with formal services. (No One Dies Alone)

18. To Absent Friends
Taking part in the to absent friends festival

19. Initiatives with schools
Undertaking awareness-raising and transformational work, initially with schools but also extending this to the wider population.

20. Progress so Far Initial Public engagement (over 200 people)
Formation of a Compassionate Inverclyde Board and external support network
4 Pilot Groups: Improving Wellbeing Programmes which will be known as HIGH 5
1st pilot Bereavement Café at Branchton Community Centre
1st working group meeting for No One Dies Alone Programme at IRH
1st community ‘toabsentfriends’ event 7 organisations took part
1st meeting with Education about working with young people and parents

22. Current Partnerships
West College Scotland, Lecturer Emma Maxwell is taking forward the High 5
Programme currently running 2nd public group at Branchton Community centre.
Branchton Community Centre. Manager Willie Wilson providing accommodation
and beverages free of charge for Bereavement Café and High 5 group.
Your Voice, Staff have helped facilitate public engagement and developed the
film for the Launch event.
Inverclyde Council dedicated a tree for the absent friends event in the Well Park.
Inverclyde Royal Hospital, pilot of the No One Dies Alone programme.
Initial discussions with colleagues in Seville.

23. Vision for Inverclyde as a Compassionate Community
Every person in Inverclyde will take part in a ‘toabsentfriends event’
100% of churches will have an end of life care group
Every community centre in Inverclyde will have a bereavement cafe
100% of people in IRH will not die alone if that is their wish
Every community centre will have a resource bank of Compassionate Citizens
Art gallery, museum and Beacon Arts center will showcase Art/drama work
Gp’s and Primary care teams know how to make a request for support
Every school in Inverclyde will run the wellbeing programme
At least 50% of people in Inverclyde will die in their place of choice
100% of organisations in Inverclyde will have a bereavement policy in place

24. Evaluation: What does success look like?
2017 Compassionate Communities Symposium at ICC Sydney
Building healthy public policy
Creating supportive environments
Strengthening community action
Developing personal skills
Reorienting health care services toward prevention of illness and promotion of
health

25. Compassionate = Acts of Kindness
Helpful = Say YES to help
Neighbourly = Ordinary people

26. Learning from Australia: A Call to Action
As an Individual
As a Community
As an Organisation

27. Important Facts We are all in it together
Now in a period of radical change
We need to think about Network
Focussed Care
Active Hope
This is the start of a Social
Movement
Death Literacy

28. Integration Perspective

29. Integration health & social care
Joint Future
LHCP
CHP
HSCP
Integrated Joint Boards
The Public Bodies (Joint Working) (Scotland) Act 2014
Reflect how far we have come from the debate over a medical and social bath and how far we need to travel until we reach optimum level of integration.

31. Inverclyde HSCP Governance Structure
Blue - Parent Bodies and reporting structures
Lilac - Inverclyde Alliance Board and sub-committees
Green - NHSGGC Clinical and Care Governance – and three specialist sub-groups
Dark Blue - HSCP NHSGGC and Inverclyde Council advising or Chief Officers
Grey - National HSCP Chief Officer and Chief Financial Officers Groups
Brown - Staff partnership Forum
Pink - Health and Community Care and linked Teams
Light Blue - Children, Families and Criminal Justice and linked Teams
Teal - Mental Health Addictions and Homelessness and Linked Teams
Orange - Strategy and Support Services and Linked Teams
Broken Red line Delegated Responsibility and Advisory Functions which feed into the HSCP 
Broken Black line ---- Reporting links to Parent Bodies 
Broken Blue line --- Reporting lines of Clinical Director to NHSGGC Board Clinical and Care Governance
Thick Red oval shape –Inverclyde HSCP Transformation Board
Red outline and white background shape -  Representative membership of the Strategic Planning Group 
Full red colour shapes - Integration Joint Board , Audit Sub-committee  and Strategic Planning Group
Blue - Parent Bodies and reporting structures
Lilac - Inverclyde Alliance Board and sub-committees
Green - NHSGGC Clinical and Care Governance – and three specialist sub-groups
Dark Blue - HSCP NHSGGC and Inverclyde Council advising or Chief Officers
Grey - National HSCP Chief Officer and Chief Financial Officers Groups
Brown - Staff partnership Forum
Pink - Health and Community Care and linked Teams
Light Blue - Children, Families and Criminal Justice and linked Teams
Teal - Mental Health Addictions and Homelessness and Linked Teams
Orange - Strategy and Support Services and Linked Teams
Broken Red line Delegated Responsibility and Advisory Functions which feed into the HSCP 
Broken Black line ---- Reporting links to Parent Bodies 
Broken Blue line --- Reporting lines of Clinical Director to NHSGGC Board Clinical and Care Governance
Thick Red oval shape –Inverclyde HSCP Transformation Board
Red outline and white background shape -  Representative membership of the Strategic Planning Group 
Full red colour shapes - Integration Joint Board , Audit Sub-committee  and Strategic Planning Group

32. Integration health and social care
National Health and Wellbeing Outcomes
Integration Planning and Delivery Principles
Core Suite of Integration Indicators
Clinical and Care Governance Framework
Strategic Commissioning Plans
Financial Assurance
Localities

33. Integration delivery principles
Evidence how services are planned and delivered in a person centred way;
Demonstrate how integrated services are developed for the benefit of service users

35. INTEGRATION PRINCIPLES SINGLE OUTCOME AGREEMENT (SOA)
NATIONAL WELLBEING
OUTCOMES
SHINARRI
INTEGRATION PRINCIPLES
SINGLE OUTCOME AGREEMENT (SOA)
People are able to look after and improve their own health and wellbeing and live in good health for longer
HEALTHY
Inverclyde’s population is stable with a good balance of socio-economic groups.
People, including those with disabilities or long term conditions or who are frail are able to live, as far as reasonably practicable, independently and at home or in a homely setting in their community.
ACHIEVE
RESPONSIBLE
RESPECTED
Health and social care services are planned and led locally in a way which is engaged with the community (including in particular service users, those who look after service users and those who are involved in the provision of health or social care);
Communities are stronger, responsible and more able to identify, articulate and take action on their needs and aspirations to bring about an improvement in the quality of community life.
People who use health and social care services have positive experiences of those services, and have their dignity respected.
Our public services are high quality, continually improving, efficient and responsive to local people’s needs.
Health and social care services are centred on helping to maintain or improve the quality of life of people who use those services.
ACTIVE
Improve the quality of services;
All children, citizens and communities in Inverclyde play an active role in nurturing the environment to make the area a sustainable and desirable place to live and visit.
Health and social care services contribute to reducing health inequalities
Best anticipate needs and prevent them arising;
The health of local people is improved, combating health inequality and promoting healthy lifestyles.
People who provide unpaid care are supported to look after their own health and wellbeing, including reducing any negative impact of their caring role on their own health and wellbeing.
NURTURED
A nurturing Inverclyde gives all our children and young people the best possible start in life.
People using health and social care services are safe from harm.
SAFE
A positive culture change will have taken place in Inverclyde in attitudes to alcohol, resulting in fewer associated health problems, social problems and reduced crime rates.
People who work in health and social care services feel engaged with the work they do and are supported to continuously improve the information, support, care and treatment they provide.
ACHIEVING
INCLUDED
The area’s economic regeneration is secured, economic activity in Inverclyde is increased, and skills development enables both those in work and those furthest from the labour market to realise their full potential
Resources are used effectively in the provision of health and social care services.
Make the best use of the available facilities, people and other resources.

36. Integration health and social care
National Wellbeing Outcomes
How the 9 outcomes are ‘improving lives’ through the delivery of service
Commissioning
Partnership Working
How has the service worked in collaboration with partners and stakeholders?
Strategic Planning & IJB
Localities Planning and Cluster Working
Financial Performance
Best Value & Inspection of Services

37. Strategic Alliance Inverclyde council – Elected members
Skills Development Scotland
West College Scotland
Scottish Fire & Rescue Service
Scottish Natural Heritage
Scottish Enterprise
3rd Sector Interface
Department of Works and Pensions
River Clyde Homes – Registered social Landlords
Police Scotland
Strathclyde Partnership for Transport
Community Council Forum
In attendance:
Chief Executive Inverclyde council
Chief Officer Inverclyde HSCP

38. Integration health and social care
Integration principles
Community planning
Building capacity
Inclusiveness of Inverclyde community
Choice and control
Individual is focus of service provision support and care

39. THANK YOU