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Harry Myers, PhD; dad to Matthew
Autistic as a Trauma Patient Harry Myers, PhD; dad to Matthew
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Presentation Focus Persons with autism who require full-time support for daily living; will require lifelong living assistance Do not have the needed social skills to navigate alone away from their home or caregiver Limited communications skills Limited cognitive awareness Limited ability to follow basic safety precautions Limited ability to seek help
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Presentation Background
26 year old autistic adult son (requires full-time support) 23 ½ years experience with autism (son and others) Numerous clinical, social and educational interventions attempted Earlier years – a “runner” Earlier years – drawn to animals; now, total fear - phobia Earlier years – one ED visit – fearful; combative; sedated Slight propensity to self-injury
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What Scares Us (the Parents) the Most…
Unintended, unexpected and abrupt separation Accident Large social event Community emergency Self “walking off” Encountering strangers Encountering police Injured and separated visit to the ED Severe injury – trauma care needed Above occurring during respite care
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Spaceship Trauma Bay Big, bright, strange lights Unusually warm
Very strange “bed” Overabundance of very strange looking equipment Overabundance of cables, wires and cords Strange sounds Surrounded by aliens! Muffled voices; foreign language Cutting off the clothes I wear every day Touching me – like really touching me Best to resist and defend myself
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Potential Trauma Bay Issues - Numerous
Limited communication skills Receptive language Expressive language Unique expressive words – e.g.: CVS? Misinterpretation Echolalia May be very rapid, very loud, higher pitch when overly stressed Shouting; ranting – again stress induced
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Sensory issues Light Sight Sound Touch Smell Too bright; too low
Wrong spectrum Flashing – slow to very, very fast Sight Fixation Avoids eye contact, or fixation on eye contact Sound Too loud; too low Wrong sound Music, television, other source; personal listening devices Touch Pressure sensitive – usually for the better, but not human Quick to push away Smell Broad and unique sensitivity
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Other unique issues Self injurious Uncontrolled, continuous movements
Many ways of manifestation – head banging Can be severe Concern: may very much, even aggressively, pick at a wound Uncontrolled, continuous movements Rocking Jerking Hand movement Socialization Odd or different demeanor – may seek isolation Toileting issues Eating – drinking issues ADD; ADHD; PDD; PDD-NOS: parents don’t care about DSM?
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What Might Help Awareness that unusual or odd behavior and speech is first sign the patient has special needs Communication – attempt to establish basic communications. Key words or phrases being spoken – interpretation difficulty Key openings may be hidden in the echolalia – listen Stressed voice; counting; alphabet – very nervous, may be near out of control If possible, have parent or guardian assist with care If not present, can they be contacted by cell If first time in trauma – patient may present new, unknown behavior not known to parent or care giver
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Sight fixation may indicate a concern or interest
Reaching to an object or person, may be concern or interest Lighting – avoidance or fixation Pressure sensory – just don’t hold hand, apply pressure Item to hold and manipulate – something that “belongs to them,” really like hand sensory input Don’t be surprised if not overly affected by procedures that cause discomfort or even low degree of pain BUT – be very careful – strength, agility; fear driven reaction Reaction to medication; even sedatives or greater Unknown current regiment
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Thank you! Questions
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