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The Development of a Deafblind Team:
A collaborative partnership to meet complex student needs Deafblind Network of the Americas April 16, 2018 Kendra Anderson, Annie Lehbauer, Rachel Kavanagh, Michele Kohut-Jones, Tanya Margison, & Michelle Schmidt
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Surrey School District Context
Formed in 1906 70,000 students (largest in the province) Geographical area: 328 square kilometres (126.6 square miles) Larger than the city of Boston by approximately 100 square kilometres 172 languages spoken 101 elementary (K to Grade 7) schools 20 secondary (Grades 8 to 12) schools 5 learning & 2 adult education centres, a distributed (online) learning program, & a variety of satellite and inter-agency programs
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Core District Values Inclusive Education Neighbourhood Schools
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Student Context 13 “Designated” Deafblind Students in 11 schools
All but two medically fragile students, attended their neighbourhood school Kindergarten through grade 12 Variable abilities and needs
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Surrey School District Map with Boundaries
Elementary Secondary
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BC Provincial Outreach Program for Students with Deafblindness
BC Ministry of Education Outreach Program Mandate Referrals Educate and build capacity In-service training Educational programming Strategies and best practices Current research Classroom peer workshops Intervenor certificate program
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Educational Planning Prior to Team
District partner changed yearly and did not know all the students District leadership changed frequently Categorical IEPs IEP for Deaf/hard of hearing-related needs IEP for Blind/visually impaired-related needs IEP for Autism Spectrum Disorder IEP for Chronic Health Condition/Physical Impairment No IEP for Deafblindness IEP meetings separate from domain (i.e., one for each, or one and not another—with no rhyme nor reason for why) Adhoc approach to educational planning, intervention, monitoring, and evaluation Students were often categorized as physically dependent, not deafblind. Their IEP program and supports didn’t have a deafblind lens
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Staffing Context Prior to Team
9 Teachers of the Deaf and Hard of Hearing (TDHH) 4 Teachers of Students with Visual Impairments (TVI) 6 Occupational Therapists and Physiotherapists (OT/PT) BC Provincial Outreach Program for Students with Deafblindness (POPDB) 5 Augmentative Communication Speech and Language Pathologists (AAC SLP) No District Deafblind Intervenor No focus Integration Support Teacher (IST) Mismatch between teacher skill and student needs Local collective agreement has no language
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KEY Classroom Teacher Educational Assist. Case Manager (IST) Principal
TDHH TVI OT PT Nursing AAC SLP POPDB
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Challenges Prior to the Team
Complex needs Itinerant staff—consultation, not direct service POPDB—only individual in the district who knew all students, yet was not a district employee Amount and rate of staffing changes led to perpetual state of transitioning Need for a cohesive continuous educational program, yet differing disciplines have different language, perspectives, experience, philosophies, as well as limited understanding of each other’s role and responsibilities Discussion pertaining to some domains (e.g., Communication) often played out in front of parents and educational teams Key people missing (e.g., OT/PT, Teacher of the Deaf or Hard of Hearing) Absence of existing documentation systems Insufficient knowledge, resources, skills, and time to create meaningful materials (e.g., calendar systems, object cues, weekly calendar, communication systems, communication dictionaries)
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Timeline April Attending & Presenting at Deafblind Network of the America’s Conference May Romania Deafblind International Conference September 2015 DB Team created District Deafblind IST .5 TDHH TVI AAC Fall 2016 District DB IST 1.0 District DB Intervenor TDHH TVI AAC OT/PT 2014/2015 2015/2016 2016/2017 2017/2018
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May 25 – 30, 2015 DbI Conference, Romania Connections with researchers Dr. Susan Bruce, Boston College; Dr. Nadja Högner, Humboldt University Berlin; and Cassie Cooper, SENSE Scotland September: Creation of Deafblind Team Budget creation Integration Support Teacher with a focus on Deafblindness (0.5 FTE) Integration Support Teacher with a focus on Deafblindness – 1.0 FTE Create Itinerant Deafblind Intervenor Position October: 2nd pilot of TPBVDA assessment December: POPDB Conference February: Intervenor Networking Day with five school districts December: POPDB Conference, Paul Hart (SENSE Scotland) October: DB IST takes courses: Introduction to Deafblindness & Intervention for Individuals with Deafblindness and Additional Disabilities December: POPDB Conference, David Brown March: Develop brochure for parents of students with deafblindness “The Deafblind Team” Ongoing: Deafblind Intervenor Training for any interested EAs Resource gathering November: -PRCVI/EA meeting to offer Braille Training for EAs -Deafblind Simulation for staff -Literacy Skills Checklist and focus on literacy with local University March: Develop brochure for Teachers, Principals, and Vice Principals: “What is Deafblindness?” April: Network of the Americas Deafblind Conference June: Intervenor Symposium in Toronto; Canadian Deaf-Blind Camp, Winnipeg December: POPDB Conference, Vicki Rothstein IST, Classroom Teacher, and EA Training: Intensive Literacy Training for students who are Deafblind May: First pilot of Transdisciplinary Play-Based Van Dijk Assessment (TPBVDA) . Partnered with the Provincial Resource Centre for the Visually Impaired (PRCVI) Improved recognition & support for capacity building (e.g., releasing EAs for in-service) June: Summer Institute 2016: How We All Learn Maryland DC Deafblind Project Position Identification Forms are more detailed and student specific
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District Deafblind Specialists
©Beta News
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District Integration Support Teacher: Deafblindness
District Partner Team Leader/Case Manager: access and coordinate district supports (e.g., Teacher of the Deaf or Hard of Hearing, Teacher of the Visually Impaired, Augmentative Communication, District Intervenor etc.) Co-ordinate/chair Individual Education Plan (IEP), Integrated Case Management (ICM), and Safety Plan meetings Collaborate with team members to ascertain and create meaningful materials (e.g., anticipation calendars, object cue calendars, CVI books) and programming Plan community outings (e.g., swimming, horseback, Snoezelen Room, etc.) as this relates to the IEP Regular scheduled and flexible on-call visits Model support and interventions. Conduct specific Assessments (e.g., Literacy) to guide programming Assist the Classroom teacher with general assessment and report writing Play Based assessment—in collaboration with Provincial Resource Program for Children with Visual Impairments (PRCVI) Transitions to Kindergarten and Adulthood
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District Deafblind Intervenor
Peer support Model deafblind philosophy and specific skills Brainstorm and collaborate with EA for specific activities or general interactions Develop, buy, and gather materials Communication and calendar systems (anticipation and weekly) Meaningful activities Experience books and CVI books Texture and sensory exploration Share resources (articles, documents, books etc.) to Deafblind Team and school teams Flexible schedule Documentation Photos and Video recording Sort videos on individual USB drives for each student to track progress Use photos to make books for the student Communication systems and tangible symbols Activity plans Communication dictionaries Individualized dictionaries with expressive and receptive communication Visit notes and observations Intervenor for assessments (TPBA and literacy assessments)
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Extended Team Pediatrician Parent/guardian Foster Parent
Behaviour Consultant (ABA or other) Settlement (SWIS) Worker Interpreter/Multicultural Worker (MCW) STADD Worker/Navigator (secondary) Aboriginal Support Worker Other Parent/guardian Foster Parent Classroom Teacher Integration Support Teacher Education Assistant (EA) Principal/Vice Principal Sign Language Interpreter Nursing Support Staff (NSS) Children & Youth with Special Needs/Guardianship Social Worker
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Director of Instruction
Nursing PT OT AAC SLP TVI TDHH District Intervenor Case Manager (IST) POPDB Director of Instruction Educational Assistant Principal Classroom Teacher
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Principles of the Deafblind Team
Student centred service Building on strengths Holistic approach Advocacy (self) Inclusive Recognizing diversity Integrated Case Management Collaboration Mutual respect Participation Accountability Continuity Transition planning
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Catalysts Having several strong ‘champions’
Honest, trusting relationships with the other participants Rationalization of the documentation required Having the ICM case conference chair possess strong group facilitation/conflict resolution skills
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Benefits to Students Common goal: the well-being of the child
Students receive needed services and information Students feel respected Students feel supported and that people care Promotes understanding of students’ cultural context and way of doing things Children and youth are viewed as individuals and capable learners, and as a result have betters social and academic outcomes and learn new skills Shared understanding Comprehensive goals (i.e., they are not written in isolation by domain) Increased school capacity Leads to parents’ involvement in decision making
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Benefits to Practitioners
Shared responsibility, accountability and decision making Sense of community – of people working together Reduces sense of isolation Provides opportunities for reflective practice Provides opportunities for mentoring and a collective increase in professionals’ knowledge and skills Enhances practitioners’ appreciation of students’ strengths and capacities Decreases practitioners’ workload
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Challenges Several individuals learning to work as a cohesive team
Overlapping roles When schools have questions, we are sometimes unable to respond at the moment because of the need to connect with the other members of the team Timely and efficient communication among team members Triaging (e.g., programming/direct student support versus meeting with school staff or parents) Pseudo administrator
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Discussion Questions In considering the school district context in which you work, how would the development of a Deafblind team benefit your students? In considering the school district context in which you work, do you anticipate any challenges in the development of a Deafblind team, and if so, how might these be addressed? If a Deafblind team does not seem like a viable option for your district at this time, what are some strategies that you might use/ideas that you might implement to ensure that regardless of changes in staff and circumstances, the student’s educational team continues to move forward in a cohesive manner.
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