1. The Dementia India Report 2010- The Impact
Mathew Varghese & K Jacob Roy
National Dementia Strategy Gp. of the ARDSI, India

2. Disclosure of Interest
Mathew Varghese, MD
Disclosure of Interest
Research Support
National Institutes of Health
Fogarty (ICOHRTA & FIRCA grants)
Dept of Science & Technology, India
Dept of Biotechnology, India
Ministry of Health, India
Speakers Bureau
Eisai, Novartis, Sun Pharma
Clinical Trials
Nil
Consultant
Eisai, Intas Pharma
Objective:
I own no stocks or equity in
any pharmaceutical company

3. ARDSI- National Dementia Strategy 2008-09
Committee formed with brief:
To raise awareness about dementia
To improve diagnosis and treatment
To provide cost effective interventions and care

4. The Dementia Report- Background
Initiative to meet the challenge of the India’s persons with dementia
Meetings Jan2009-Mar2010 in Delhi, Mumbai, Coimbatore, Bangalore, Kolkata, Trivandrum
Presentations, Group discussions by all stakeholders- caregivers, public, profs, government, policy makers, associations
Collate presentations and Group discussions of NDS meets

5. Dementia India Report- Methodology
Review of literature, meta analysis of data by team of editors
Review of other country reports- UK, Australia, Canada, France, USA etc
Preparation of Dementia India document and circulation to expert consultative group
Release of India report on 21 Sept 2010
Call for Action- press conf, dissemination of report
Lead to the National Dementia Strategy

7. The Dementia India Report- Contents
Introduction- problem, public health issue, prevention
Estimates of numbers of PWD-prevalence, nos. of PWD state wise and projections for 20 yrs
Impact of Dementia and Costs (Family, QOL, society, health services, co-morbidity, disability)
Services and Treatments available
The GAP and Call for action

8. A. Estimates of Numbers of People with Dementia

9. New estimates for India in 2010
millions
12.5
6.4
ADI commissioned a group of researchers to review the available epidemiological estimates, and come up with consensus estimates of the prevalence of dementia in all world regions, from which a total number of cases worldwide could be calculated
3.7

11. Prevalence of Dementia in India, 2010

15. B. The Impact of Dementia

16. Contribution of chronic diseases to years lived with disability

17. Contribution of chronic diseases to years of life lost

20. Psychological morbidity in carers of elders with/without dementia, and carers of older PwD

21. Care arrangements
Family members and non formal caregivers (usually women)
Not recognized as illness
Seen as normal ageing
Neglect & abuse
Caregiver strain-high depression, anxiety, economic burden
Burden more in nuclear families

23. C. Dementia Services in India
Hospital & Clinic based urban centers
Old Age homes few
Day Care Centers rare
Caregiver training & support
Agencies & Societies- Senior Citizen’s Forum, Helpage India, ARDSI, Gerontol. Society

24. Type of service in India
Approx no. of facilities
Residential care facilities 5
Day Care centres 10
Domiciliary care services 6
Support groups
No data
Memory clinics
100
Dementia Help Lines

25. Recommendations Make dementia a national priority
Increase funding for dementia research
Increase awareness about dementia
4 Improve dementia identification and care skills

26. Recommendations Develop community support
Guarantee carer support packages
7 Develop comprehensive dementia care models
8 Develop new National Policies and Legislation for PwD

27. Impact of the Report (6 months)
Press conference and press release on WAD Sept 21
Wide publicity in the press- print and television
Presentations/dissemination at conferences
Questions raised in parliament
Funding for research in dementia by agencies
Plan for training in dementia care

28. Q’s in Indian Parliament
Details of Alzheimer’s Disease reported in the country during the last 3 years and the current year.
The measures taken by the government to cure or prevent the disease
The details of the medical centers/hospitals available in the country to treat this disease.
Whether the government proposes to set up such medical centres in the rural areas like Orissa, Jharkhand, Chattisgarh…?
The effectiveness of the measures adopted by the government for the purpose especially amongst the elderly.
Whether India has been able to make a breakthrough to cure Alzheimer’s Disease?
What is the extent of this disease in this country?
How far have we succeeded to design drugs to control this disease?

29. Barriers to Dementia care in India