1. Behavior & Wiedemann Steiner syndrome Orlando, Florida, USA
Floor Duijkers
MD, PhD,
Clinical geneticist
Wendy Jones
MD, PhD,
Clinical geneticist

2. Are there any behavioral abnormalities?
Yes No
Unsure
Which of these problems is most pronounced?
difficulty with changes in routines
anxiety
hyperactivity and/or difficulty concentrating
aggressiveness
self-harm
to others
other difficult behavior (e.g. toilet related)

3. When are these behavioral problems most pronounced?
At school or daycare
With strange people
At home
Other
Have you managed to get help for these behavioral problems?
Yes, and it helped
Yes, and it has not helped
Yes, and it has helped a bit no

4. Have you taken steps to take care of yourselves
options for time away (e.g. a night or weekend)
in house support from extra caregiver
psychological help
other

5. Extra questions Are there problems with sleeping Yes No, never
Yes, but it is better now

6. Extra question 2 What is the hardest thing about learning?
To write
To calculate
Understanding time (clock)
Other
Have you managed to get help for these learning difficulties?
Yes, and it helped
Yes, and it has not helped
Yes, and it has helped a bit no

7. Extra questions 3 What is your or your childs talent? Music
Telling and/or remembering stories
Sports
Games
Specific interest (eg cars, football)
Other