1. SIDS and Ethnicity Risk, Rates, Changes, and Collaborative Translation
Wendy Middlemiss, Ph.D., University of North Texas, Dept. of Educational Psychology
and
Stephanie Cowan, Director, Change for our Children, Christchurch, New Zealand

2. COLLABORATIVE TRANSLATION
SIDS Across Ethnicity
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
Paper presented at the
National Council on Family Relations Conference, Orlando Florida
Culmination of the work, thinking, more thinking, and recommendations of the authors above and
Joseph G. Grzywacz, Ph.D.
Newly Dr. Kaylee Seddio
Cory Kildare, Ph.D.
Fern Hauck, M.D.
Cynthia Frosch, Ph.D.
Yolanda Mitchell, Ph.D.
Brittny Wells, Ph.D.
And many others who have taken time to step back and see why things are not working…..
The voice of the parent…in
a collaborative translation.

3. Translating Knowledge of Safety and Risk
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
Translating Knowledge of Safety and Risk
From Guidelines [discovery and policy informing practice] to Application
The voice of the parent…in
a collaborative translation.

4. Application necessitates honoring the Family part of our Science…
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
Application necessitates honoring the Family part of our Science…
Discovery
Application
The voice of the parent…in
a collaborative translation.

5. Pattern of Knowledge Transfer
Address the questions of
what, how, why w h
DISCOVERY
The voice of the parent…in
a collaborative translation.

6. QUESTIONS of DISCOVERY
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
QUESTIONS of DISCOVERY
Why do infants die?
New Zealand Infant Cot Death Study
Mitchell, E. A., Scragg, R., Stewart, A. W., Becroft, D. M., Taylor, B. J., Ford, R. P., ... & Roberts,
P. (1991). Results from the first year of the New Zealand cot death study. The New Zealand
Medical Journal, 104(906),
The voice of the parent…in
a collaborative translation.

7. QUESTIONS of DISCOVERY
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
What Places Infants at Risk?
Triple Risk Model-
critical period of risk
associated with infants from 1 to 6 months of age and peaking in incidence between 2 and 4 months;
infant vulnerability
associated with higher risk among infants exposed to smoke and those who experienced premature birth, low birth weight, or illness;
exogenous factors
associated with, such as infants’ sleep position, bedding, overheating, use of bedding or toys that impede breathing, or parents’ use of substances compromising awareness.
Filiano, J. J., & Kinney, H. C. (1994). A perspective on neuropathologic findings in
victims of the sudden infant death syndrome: The triple-risk model. Neonatology,
65, 194–197. doi: /
The voice of the parent…in
a collaborative translation.

8. Pattern of Knowledge Transfer
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
Pattern of Knowledge Transfer
Address the questions of
what, how, why
Transferring knowledge to practice using language of discovery
DISCOVERY TRANSFER
The voice of the parent…in
a collaborative translation.

9. Transfers Discovery to Policy
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
Transfers Discovery to Policy
What protects infants?
American Academy of Pediatrics SIDS Task Force Policy
Triple Risk Model-
critical period of risk
associated with infants from 1 to 6 months of age and peaking in incidence between 2 and 4 months;
infant vulnerability
associated with higher risk among infants exposed to smoke and those who experienced premature birth, low birth weight, or illness;
exogenous factors
associated with, such as infants’ sleep position, bedding, overheating, use of bedding or toys that impede breathing, or parents’ use of substances compromising awareness.
American Academy of Pediatrics. (1992). Positioning and SIDS. Pediatrics, 89, 1120–1126.
Retrieved from .
The voice of the parent…in
a collaborative translation.

10. Disparity
The voice of the parent…in
a collaborative translation.

11. Plateaus
The voice of the parent…in
a collaborative translation.

12. An attempt Safe to Sleep Campaign The voice of the parent…in
a collaborative translation.

13. Knowledge Transfer: Discovery to Application
 First, highlighted in this model is the distinction between the Science of Discovery and the Science of Practice.  Both contributing to development of theory and practice within family science.  There is on the left side, an indication of the role of the science of discovery in family science. Depicted on the right is the science that underlies professional practice.  This model demonstrates the manner in which professional practice is the science by which practitioners are guided by a systematic, evidence informed strategy.  
It is in this that as practitioners our strengths and training, and skills come into play. Taking the core essence of a scientific discovery and adapting that to the diverse ecological contexts in which we have families, communities, countries.
In applied health message exchanges, however, there is a tendency for communication to become unidirectional where each person appropriates a position relative to the individual’s personal concerns (Arnett, 2001; O’Connor), i.e., the family researcher focused on the evidence forming the basis for health practices and the family focused on their interpretation of appropriate approaches to care (Figure 1A).
Figure adapted from Allen & Grzywacz, 2017.

14. COLLABORATIVE TRANSLATION of KNOWLEDGE
The importance of a
COLLABORATIVE TRANSLATION of KNOWLEDGE !!
The voice of the parent…in
a collaborative translation.

15. HONORING and ACKNOWLEDGING… FAMILY
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
HONORING and ACKNOWLEDGING… FAMILY
The voice of the parent…in
a collaborative translation.

16. A pattern of collaborative translation
COLLABORATIVE DISCOVERY TRANSFER TRANSLATION
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
Address the questions of
what, how, why
Transferring knowledge to practice using language of discovery
The voice of the parent…in
a collaborative translation.

17. COLLABORATIVE TRANSLATION
The importance of a
COLLABORATIVE TRANSLATION
of KNOWLEDGE
Family scientists understand that knowledge in its
discovered form needs to be translated to be useful
Fit with caregivers’ values, preferences, and circumstances.
--unintended consequences and
-- harmful delays in achieving desired changes
–Ban on culturally relevant practices
The voice of the parent, practitioner, researcher in a collaborative translation.

18. Figure adapted from Allen & Grzywacz, 2017. communication
Thus, the effectiveness of health messaging can be enhanced by engaging in a dynamic interaction and integration of each perspective (Figure 1B). Integrating perspectives in creation of health messaging and evidence-based programs can increase likelihood of families utilizing the information provided.
Fosters consideration of the diversity of applied settings
Acknowledges differences across individuals and influences of ecological settings
Avoids health messaging based on a predetermined “normality” or a singular best practice
Figure adapted from Allen & Grzywacz, communication

19. SAFE SLEEP BLITZ Collaborative Translation Diffusion of Innovation
BEGINNING WITH FAMILY
Change for Our Children