1. Pseudonymisation as a Service
Robert Navarro
Copyright © 2011 Sapior Ltd

2. Sapior Vision Enabling the Ethical Sharing of Data
Ethical Data Sharing
Trust Management
Researchers
Preventative medicine
Pharmaceuticals
Insurers
Health Entrepreneurs
Data Guardians
Data Consumers
Sapior believes privacy and utility are not antithetical. There is always a solution as long as you use the least amount of identifiable data, for the least time, visible to the smallest number of vetted people for each separate need/topic/application.
Ethical sharing is sharing that patients/subjects are happy with – not least required by law.
Sapior wrote the privacy section of BT’s winning Spine/SUS bid
We provided the de-identification standard for NHS Spine/SUS
Copyright © 2011 Sapior Ltd

3. Enhanced Trusted Third Party
No ECC approval needed!
On demand, no pooling
Easy to upload data
cleansing, standardisation, enriching, de-ID done on-site
Pseudo and linking done in eTTP
Separate collection per application
No data visible to eTTP
 Ethics approval easy
ECC reviewed
Copyright © 2011 Sapior Ltd

4. Features and Benefits No breach risk in “pipeline”
Easier/faster Ethics/IG approval
Use eTTP on demand
No/low cost when not collecting/linking
Separate collection for overlapping projects
Informed consent possible
Easy uploading of data
No need to pool data across projects
No eTTP pooling of data
No growing breach risk in eTTP
Highest grade pseudo
No technical worries over security
Copyright © 2011 Sapior Ltd

5. Standards that would be helpful…
Metadata to describe data for upload (including null/missing values)
Common means for extracting CSV data from local systems
To register for a trial:
Copyright © 2011 Sapior Ltd