1. Empowering Disabled Consumers Through Personal Health Records
Ron Manderscheid, Ph.D.
Constella Group, LLC
&
Johns Hopkins University

2. Three Major Points
SCIENCE: Supports empowerment and the application of technology to PHRs for disabled consumers.
CASE STUDY: Supports empowerment of disabled mental health consumers and PHRs for their use.
BUSINESS CASE: Supports a specific focus on PHRs for persons with disabilities.

3. The Science

4. Institute of Medicine Framework
“Crossing the Quality Chasm”

5. Institute of Medicine Framework
“We have a large and growing chasm between actual healthcare delivery and the quality of the healthcare we need.”

6. Institute of Medicine Framework
Key principle:
“The patient is the ‘true north’ of the health care system.

7. Institute of Medicine Framework
Key service goals:
SAFE
PERSON-CENTERED
EFFECTIVE
EFFICIENT
EQUITABLE
TIMELY

8. Institute of Medicine Framework
Necessary Strategies:
Strategy 4. Using Information Technology

9. The Case Study

10. Mental Illness Population
Mental and Substance Use Conditions:
Any Disabling
Adults % %
Children and Adolescents 20% %

11. Mental Illness Population
Those with disabling conditions use approximately 80% of all financial resources expended for mental health care.

12. Mental Illness Population
Specialty Care: $120 Billion/Year ($400 per American)
State Care (All Departments): $100 Billion/Year
SSI/SSDI: $19+ Billion/year
Medicare: $41 Billion/Year (Exclusive of Pharmacy)

13. President’ New Freedom Commission on Mental Health
Key principles:
Foster consumer and family direction of care
Foster recovery-oriented care

14. President’ New Freedom Commission on Mental Health
Key goals:
Goal 6. Technology is used to access mental health care and information.

15. The Business Case

16. Personal Health Records
Persons with disabling conditions need personal health records to:
Monitor health status
Monitor health care use and quality
Learn better approaches to self-care
Monitor the expenditure of health care resources
Maintain virtual contact with other consumers

17. Personal Health Records
Persons with disabling conditions are highly motivated to:
Monitor their personal health status
Engage in effective self-help
Achieve the best results from health care

18. Personal Health Records
This attention to self help and effective care can pay financial dividends:
Effective self-help reduces health care costs.
High quality, effective care reduces the need for costly additional visits.
Self-coordination of care reduces costly fragmentation.

19. A Hypothetical
Care for chronic illnesses now costs in excess of $1 trillion per year.
A savings of only 5% percent through PHRs for persons with disabilities would pay a dividend of $50 billion each year.

20. Bottom Line
Empowering persons with disabilities through PHRs will lead to improved quality of care and reduced costs.

21. Contact Information
Ron Manderscheid, Ph.D.
Director, Mental Health and Substance Use Programs
Constella Group, LLC
6003 Executive Boulevard, Room 416
Rockville, Maryland 20852
(Voice)
(Cell)
(Fax)
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