1. Consumer Health Informatics
LIS 4785 Introduction to Health Informatics
Fall 2015, Week 11-2
Instructor: Dr. Sanghee Oh

2. Consumer Health Informatics

3. Consumer Health Informatics
The area of health informatics that focuses on the ______________________________ to ensure that it interacts directly with the consumer, with or without the involvement of healthcare providers.
The analysis and modeling of _____________and information needs, ___________________ that support consumers obtaining high-quality information, and ____________________ that allows for the integration of consumer needs in clinical information management

4. E-health
The use of telecommunication platforms, mobile and ubiquitous hardware and software and advanced information systems to support and facilitate healthcare delivery and education
Support _______________ – namely, the transition from a ____________ where the patient is the recipient of care service to an ___________ where the patient is informed and involved in or even leads the decision-making processes

5. E-health Platforms
Bridge both the clinical and non-clinical sectors and includes both individual and population health-oriented tools, such as
Telehealth applications
Web portals
Personal health records
Online services for patient and family support groups
Consumer health information services
Social media
Potable or wearable monitoring tools

6. Use of Social Media in E-Health
Powered by Health 2.0
The use of ____________ to promote __________ between patients, their caregivers, medical professionals, and other stakeholders in health
Focused on the user experience bringing in the principles of ________________
______________, in that they both create data and present data to the user in order to help improve decision making
____________________
The process of obtaining needed services, ideas, or content by soliciting contributions from a large group of people, and especially from an online community, rather than from traditional employees or suppliers

7. PatientsLikeMe: The Next Generation of Healthcare
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8. Use of Social Media in E-Health
______________
Blogs are run by a community of healthcare insiders and experts and publishes news, opinions, and features about different health settings and sectors

9. Use of Social Media in E-Health
______________
Tweets may provide a venue to identify potential misuse or misunderstanding of antibiotics, to promote positive behavior change and to disseminate valid information
Global health information distribution and prevention

10. Use of Social Media in E-Health
______________
Health community wiki, a collaborative website authored by a group of patients or by medical professionals

11. Online Communities in E-Health
3 types of supports that health online groups share one another are
Informational support
Emotional support
Instrumental support

12. Online Communities in E-Health
3 types of supports that health online groups share one another are
______________________
Exchange of advice, explanations, opinions, and experiences
Bolster interpersonal connectedness and self-esteem
Reduce distress through the expression of feelings, such as anxiety, concern, empathy, or reassurance
Exchange of practical assistance and material goods
Financial support, transportation, or help with household chores

13. Social Network Sites ____________________
A website where consumers may be able to find health resources at a number of different levels and support the accessibility and exchange of health information for consumers
Support interaction or communication of patient-to-patient, patient-to-provider, and provider-to-provider
PatientsLikeMe
Everyday Health
HealthSpace
GroupLoop

14. Reliability Concerns
The information on health social network sites is crowd-sourced and thus may unreliable or inaccurate.
Postings from online communities could distribute persuasive, personally tailored but harmful misinformation.
Consumers may have health beliefs to engage in a group discussion with other consumers who can share and validate view points that may or may not be true.

15. Opportunities of Social Media in Health
Patient engagement by Health 2.0
Replacement of traditional forms of patient-physician or research subject communication (e.g., s) to social media
Social network sites as ___________________________
Health education and prevention

16. Barriers to Social Media Use in Health
____________________________
Consumers’ inaccessibility due to lack of knowledge or technology
Consumers’ low health literacy
Legal concerns of providers

17. Challenges in E-Health Applications
____________________
A person’s right to be free from and refuse interference, attention, observation, and other types of invasion
In healthcare, privacy is assurance that one’s health information is collected, accessed, used, retained, and shared only when necessary and only to the extent necessary and that the information is protected throughout its life cycle using fair privacy practices consistent with applicable laws, and regulations, and the preferences of the individual.
The obligation of every HIPPA-covered entity to enact and enforce policies that protect the patent’s privacy.
HIPPA compliance with the privacy and confidentiality standards is greatly affected the design and functions of e-health applications