1. Once You Have Been Diagnosed With Celiac Disease
Kristin A. Sikes MSN APRN CPNP CDE
Yale Pediatric Celiac Clinic

2. Clinic Visits We would like to see you: 3 months after diagnosis
1 year after diagnosis
Annually thereafter
Anytime you are having trouble with living gluten free or have Celiac symptoms that concern you

3. What Will Happen at the Visit?
You will meet with either Dr. Porto or Kristin Sikes APRN
We review the following:
Growth and development
Gastro-intestinal symptoms
How is the gluten free diet going
You will meet with our nutritionist (if needed)
You will have some blood work drawn

4. Blood Tests that We Monitor
Celiac Markers
Tissue Transglutaminase IgA (TTG IgA)
Deaminated Gliadin Protein IgG (DGP IgG)
Iron Deficiency/Iron Deficient Anemia
Complete Blood Count
Iron/Ferritin Levels
Other commonly seen conditions
Thyroid Stimulating Hormone (TSH)
Hepatitis B Vaccine effectivness
Vitamin Deficiency
Vitamin D levels

5. Meeting with the Nutritionist
Get a quick refresher on how to read labels
Review alternatives to your “favorite” foods
Hear about new GF brands and foods
Ask any questions that you might have

6. How to Keep Your Body Healthy
Eat a wide variety of foods – with lots of fresh fruits and vegetables
Exercise daily (everyone should do this!)
READ labels – Gluten can hide in anything
Plan Ahead: Nothing worse than getting somewhere and not being able to eat because there is nothing GF available

7. What about the Rest of the Family?
We recommend that all first degree relatives (parents and siblings) of kids with celiac be monitored for Celiac as well
Genetic Tests
Celiac Screening tests
Will need to be done every 2-3 years or with Symptoms