1. Survey on Rights Review Committees Sandra McCullagh Inclusion Ireland

2. Why we did the survey
To find out information on Rights Review Committees across Ireland.
Where are they established?
Who is involved?
How are they working?

3. How we did the survey Literature search Input from Steering Group
Circulated by Hiqa

4. Responses to the survey
Total participants = 28
From all over Ireland
All kinds of services
People of all ages
All kinds of support needs

5. Committees or groups in operation across the country
Qualitative responses (other groups?)
1. The Organisation is managed by a Board of Directors representing all stakeholders
2. Our Rights Review Committee is now known as the Human Rights Committee
3. Quality Enhancement Committee; Audit Committee
4. Parents & Family Information Sessions
5. Personal Plan Development Group, Training Committee, Adverse Events Committee, Referrals Committee, Short Breaks Planning Forum, Etc.

6. Rights Review Committees
A Rights Review Committee reviews cases, incidents, policies or procedures relating to the rights of people using services
64% (n=18) have a Rights Review Committee

7. About the Rights Review Committee – Length of time in operation

8. Number of people represented by the Rights Review Committee

9. How Rights Review Committees are working
88% said people using service knew about the existence of the rights committee
27% are part of a Service Level Agreement with the HSE
7% part of a Contract of Care
13% part of both

10. How Rights Review Committees are working
69% of committees meet monthly
Committees have between people (one participant reported )

11. Who is on Rights Review Committees?

12. Average number of people in each role

13. Who chairs the committee?
External independent person - 50%
Staff member - 37%
Manager – 13%

14. Support for people to participate
87% said that there were supports available for people to participate
Supports include: talking through an issue with an advocate, family, or staff; accompany person to meeting, use of social stories, visuals, communicative aids.
Almost one fifth of respondents thought people were not supported to bring issues to the committee

15. Support for people to participate
25% said there was a budget to support the work of the Rights Committee
59% of Committee members have received training to support them in their role

16. Keeping people informed
All Committees take minutes but only around half publish them
Less than half (44%) said there is a mechanism for reviewing decisions made by the Committee
73% said there was a mechanism for appealing decisions

17. Examples of good practice
Use of independent advocates
Meetings outside service
Use of law and policy to guide practice - UN Convention on the Rights of Persons with Disabilities, Assisted Decision Making (Capacity) Act 2015

18. Room for improvement
Balance - more representation of people using services
Number of people being represented by each Committee
Better sharing of information
Spread of Rights Review Committees (almost 40% had none)

19. Thank you for listening!
Thank you to the people who participated in the survey and to Hiqa for sending the survey to service providers.