1. The Arc & Tuberous Sclerosis Alliance
Trudy R. Jacobson
Senior Executive Officer, Development & Marketing
March 2, 2017

2. TS Alliance is a NATIONAL NONPROFIT ASSOCIATE MEMBER of The Arc

3. Benefits of Membership
Public Policy, Programs, and Services
Public Education and Communications Programs and Services
Meetings, Events and Other Educational Programming
Committee Participation
Shared Editorial

4. Plus…
We offer a ½ Day Topical Meeting in connection with The Arc’s Annual National Convention
We team with Dena to connect chapters of The Arc with 2017 Step Forward to Cure TSC®
Help identify speakers at selected events

5. Focus : Transition and Transition Tools
What does The Arc have to offer?

6. A Bit about The Arc
Oldest and Largest Human Services Agency for People with IDD and their Families
In 48 states plus DC (not in Vermont & Nevada)
Over 650 State and Local Chapters
Have a policy team of 5 professionals and over 100 years of combined policy and advocacy experience
One of very few organizations that advocates for policy change, develops and implements programs through our own network of chapters.

7. Now… What About Transition?
Education Employment Housing
Need to note that we appreciate that there are three transitions – first is tradition when the school bus stops, second is when post HS school ends and really get employed, and third is when they move into independent housing (fourth may be if they live at home with aging parent care-givers)

8. Policy - Federal Strong, Mission Focused Policy
Proactive - Experienced – Well Respected
Disability Advocacy Network (DAN)
Works Collaboratively with many other Disability organizations – a founding member of CCD
Educational Resources (accessible to all)
Technical Assistance to “translate” Federal Policy
Chapters Connect with our Staff
Policy based on annually updated legislative goals (new goals to be available and published at this year’s DPS – developed in collaboration with our chapters and partners including DPS co-convening partners including AAIDD, AUCD, NACDD, UCP, and SABE

9. 3 Major National Initiatives
Education: The
Employment: The
Housing: Center for Future Planning

10. The Arc@School Transition Planning for Students
Introduction to transition planning
Why is secondary transition important?
What should be included in the transition process?
How can students and their families participate in the transition process?
What happens when students reach the “age of majority” in their state?
What is a summary of performance?
Where can I get more information?

11. The Arc@Work Growing Relationship with Several Major Companies
Collaborate with Leading Researchers at UCED’s
Current Hiring Relationship with SAP, Baymont (Wyndham), Walmart, and others
Work collaboratively with chapters
Sourcing Candidates
Upgrade Hiring Best Practices
Connect Chapters to VR Resources
Technical Assistance for local chapters of The Arc
We are written into grants being worked on at U Illinois, U Mass Boston and other UCED’s
Providing info for families, for chapters, for agencies (including DD Councils) as well as for future planning (another reason to see CFP)

12. Housing: Center for Future Planning
Deciding Where to Live
Getting Started
Exploring Housing and Residential Options
With family
In a home you own
In a home or apartment you rent
In someone else’s home (often called “shared living”)
In housing owned by a service provider, such as a group home.
Funding Housing
Webinars to educate and provide additional resources

13. The Arc’s Chapter Network
All chapters provide advocacy
Some provide direct services and supports
Some provide or can offer direct advocacy resources
Someone to accompany you at IEP meetings
Have an onsite employment program
Advise independent living options in your community
Some have residential programs or have a relationship with housing providers
All provide resources about local/state resources
State Chapters (in 39 states) manage statewide advocacy

14. Take Advantage of The Arc’s Network
Depth and Breadth of Federation of Chapters
Advocacy and Services
Close Relationship with The Arc’s national office
Opportunities to connect with other families
Chapters help provide promising practices
We work and learn
Bottom up from our chapters to the national office
Top down providing policy, programs and technical assistance
although the diagnosis may be different the umbrella under which we all need protection, and the raison d’etre of The Arc will be there to promote and protect you and your families
Chapters are our Research and Development arm – on the ground providing much needed feedback for us that is the ultimate bottom up reality check

15. Thank You
Please Contact me! Phone: